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The Big Deal - Living With Rett

The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. If I'd be...

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The Big Deal - Living With Rett | thebigdealwithrett.blogspot.com Reviews
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The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. If I'd be...
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The Big Deal - Living With Rett | thebigdealwithrett.blogspot.com Reviews

https://thebigdealwithrett.blogspot.com

The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. If I'd be...

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The Big Deal - Living With Rett: Loud and Clear

http://www.thebigdealwithrett.blogspot.com/2015/01/loud-and-clear.html

The Big Deal - Living With Rett. Thursday, January 22, 2015. Zoe is vocally interacting with Steph in a way we don't really see anymore. Three years have gone by since the video was taken, and when I say we don't see this anymore, it's not me lamenting something we lost. Zoe now has many. Subscribe to: Post Comments (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. View my complete profile.

2

The Big Deal - Living With Rett: June 2014

http://www.thebigdealwithrett.blogspot.com/2014_06_01_archive.html

The Big Deal - Living With Rett. Friday, June 27, 2014. A Story for Sisters. Of course you've heard of Frozen. Everyone has heard of Frozen. As this great article. Subscribe to: Posts (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. A Story for Sisters. View my complete profile. Ethereal template. Powered by Blogger.

3

The Big Deal - Living With Rett: Who Asked You, Anyway?

http://www.thebigdealwithrett.blogspot.com/2015/03/who-asked-you-anyway.html

The Big Deal - Living With Rett. Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. Subscribe to: Post Comments (Atom). What is The Big Deal? The Big Deal Kindle Single. Like The Big Deal on Facebook. Follow The Big Deal on Twitter. Rett Syndrome Research Trust. Who Asked You, Anyway? If You All Want To Adapt, Im Not Going to Stop Yo. View my complete profile. Ethereal template. Powered by Blogger.

4

The Big Deal - Living With Rett: July 2014

http://www.thebigdealwithrett.blogspot.com/2014_07_01_archive.html

The Big Deal - Living With Rett. Sunday, July 27, 2014. Special Day, Regular Girl. In particular, as has already been noted. This year, she picked everything. Her birthday dinner. The party location. And every choice was clear. Finally, we had our family dinner and celebration. She got to open presents from us, which for once, felt like the right gifts for her age, for her interests, and for her ability to enjoy them. We gave her Frozen. Saturday, July 12, 2014. The Wonders of Eye-Gaze.

5

The Big Deal - Living With Rett: The Giving Up and the Giving In

http://www.thebigdealwithrett.blogspot.com/2015/07/the-giving-up-and-giving-in.html

The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? July 15, 2016 at 5:46 AM. I love your gene band aids! It is about how epigenetics might improve your family’s life&...

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Kate Foundation for Rett Syndrome Research: November 2012

http://katefoundation.blogspot.com/2012_11_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Thursday, November 29, 2012. Table Full of Rett Citron. Rett Citron before they're packed in individual boxes. Kate Foundation for Rett Syndrome Research. Saturday, November 17, 2012. The link is here: http:/ www.katefoundation.org/buy 2012 ornaments.html. The wondrous hum of...

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Kate Foundation for Rett Syndrome Research: July 2012

http://katefoundation.blogspot.com/2012_07_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Thursday, July 19, 2012. Kate Foundation for Rett Syndrome Research. Monday, July 16, 2012. I Don't Know What You Want Me To Do. Note to self for future flights: if online attempts to acquire seat assignments fail, call the airline ahead of time. ME: My daughter is five. ...

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Kate Foundation for Rett Syndrome Research: Sound, Sound Everywhere

http://katefoundation.blogspot.com/2013/03/sound-sound-everywhere.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Friday, March 29, 2013. Sound, Sound Everywhere. Kate Foundation for Rett Syndrome Research. Note: Only a member of this blog may post a comment. Subscribe to: Post Comments (Atom). Girl Power 2 Cure. Runner Spotlight: Kelly O'Donahoe. Fighting Monsters with Rubber Swords.

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Kate Foundation for Rett Syndrome Research: March 2012

http://katefoundation.blogspot.com/2012_03_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Tuesday, March 27, 2012. Kate Foundation for Rett Syndrome Research. 3D Computer Animation of Kipnis Nature Paper. Animation of Kipnis Nature paper. Kate Foundation for Rett Syndrome Research. Your Money at Work. Dear Friend of the Kate Foundation:. Bone marrow transplantatio...

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Kate Foundation for Rett Syndrome Research: December 2011

http://katefoundation.blogspot.com/2011_12_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Tuesday, December 20, 2011. Over $10,000 - Thank You! Kate Foundation for Rett Syndrome Research. Labels: kate foundation rett syndrome research trust ornaments. Thursday, December 15, 2011. Rett Wave - Sold Out! The Rett Wave ornament is now sold out. Thank you! They’r...

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Kate Foundation for Rett Syndrome Research: November 2011

http://katefoundation.blogspot.com/2011_11_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Tuesday, November 29, 2011. When I ran across this 2-minute 43-second film, I couldn’t help but think of Kate sleeping. On those nights when her body is quiet and her brain free from the crackle of Rett syndrome, where does her imagination take her? Tuesday, November 22, 2011.

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Kate Foundation for Rett Syndrome Research: Table Full of Rett Citron

http://katefoundation.blogspot.com/2012/11/table-full-of-rett-citron.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Thursday, November 29, 2012. Table Full of Rett Citron. Rett Citron before they're packed in individual boxes. Kate Foundation for Rett Syndrome Research. Note: Only a member of this blog may post a comment. Subscribe to: Post Comments (Atom). Girl Power 2 Cure. The Giving Up...

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Kate Foundation for Rett Syndrome Research: March 2013

http://katefoundation.blogspot.com/2013_03_01_archive.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Friday, March 29, 2013. Sound, Sound Everywhere. Kate Foundation for Rett Syndrome Research. Saturday, March 23, 2013. I Was Raised to Treat Others How You'd Want to be Treated". Kate Foundation for Rett Syndrome Research. Wednesday, March 20, 2013. Subscribe to: Posts (Atom).

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Kate Foundation for Rett Syndrome Research: 2013 Kate Foundation Ornaments!

http://katefoundation.blogspot.com/2013/11/2013-kate-foundation-ornaments.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Monday, November 18, 2013. 2013 Kate Foundation Ornaments! We're excited to announce the 2013 Kate Foundation Glass Ornament Collection! The ornaments are now available for purchase on our website and will begin shipping out on November 25! Buy 2013 ornaments.html. A paper au...

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Kate Foundation for Rett Syndrome Research: Activating the X

http://katefoundation.blogspot.com/2013/02/activating-x.html

Kate Foundation for Rett Syndrome Research. The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders. Thursday, February 14, 2013. Kate Foundation for Rett Syndrome Research. Note: Only a member of this blog may post a comment. Subscribe to: Post Comments (Atom). Girl Power 2 Cure. Runner Spotlight: Kelly O'Donahoe. This mare eats oats. Fighting Monsters with Rubber Swords.

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The Big Deal - Living With Rett

The Big Deal - Living With Rett. Saturday, July 11, 2015. The Giving Up and the Giving In. The fact that it was Angelman's struck a special chord with me. It's a condition very similar to Rett Syndrome. Years ago, before Zoe's diagnosis, Steph's mom had gotten an email from her sister with information about Angelman's. The context was, essentially, could this be what's wrong with Zoe? Friday, March 13, 2015. Who Asked You, Anyway? Dylan has been fascinated by Zoe's Tobii device for a while now. If I'd be...

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