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The Resilient Son

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Sunday, March 18, 2012. When he takes his first steps. I am now in a position to assist her with figuring out ways to play with her little brother and maintain that sibling relationship. This weekend was one of those few fantastic weekends. This story starts with an early riser on a beautiful Saturday morning, that also happened to be St. Patrick's day! Ok, that I'm chalking up to...

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The Resilient Son | theresilientson.blogspot.com Reviews
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Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Sunday, March 18, 2012. When he takes his first steps. I am now in a position to assist her with figuring out ways to play with her little brother and maintain that sibling relationship. This weekend was one of those few fantastic weekends. This story starts with an early riser on a beautiful Saturday morning, that also happened to be St. Patrick's day! Ok, that I'm chalking up to...
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The Resilient Son | theresilientson.blogspot.com Reviews

https://theresilientson.blogspot.com

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Sunday, March 18, 2012. When he takes his first steps. I am now in a position to assist her with figuring out ways to play with her little brother and maintain that sibling relationship. This weekend was one of those few fantastic weekends. This story starts with an early riser on a beautiful Saturday morning, that also happened to be St. Patrick's day! Ok, that I'm chalking up to...

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theresilientson.blogspot.com theresilientson.blogspot.com
1

The Resilient Son: When sometimes the best words, are unspoken

http://www.theresilientson.blogspot.com/2011/03/sometimes-best-words-are-unspoken.html

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Tuesday, March 15, 2011. When sometimes the best words, are unspoken. Seby was very mad at Mom and Dad last night. Seby thought it would be a good idea to wake up at 2am to "talk" (which is really just very loud squawking with the long A sound - Aaaaaaaaaaaaaaaaaauuuuuuuuuuwwwwwwwwwwuuuuuhhhhh) to tell us that he wanted to play. Of all the nights for him to wake up and. It's 6:45 ...

2

The Resilient Son: Today I feel angry

http://www.theresilientson.blogspot.com/2011/02/today-i-feel-angry.html

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Thursday, February 17, 2011. Today I feel angry. Today I feel angry. I feel angry for my son, because, well he can't feel anger. He doesn't know what anger is, and he may never know. I feel angry that this happened to my son, and there's nothing I can do about it. Am I pissed at myself for making my son sick? Am I pissed at Emanuel Syndrome for latching it's hell onto my child?

3

The Resilient Son: When Time Stands Still

http://www.theresilientson.blogspot.com/2011/09/when-time-stands-still.html

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Friday, September 30, 2011. When Time Stands Still. There are days when I forget how old I am, but with the hustle and bustle of life I get reminded in the most unique of ways. My reminder today consisted of pink hair. As the months go by I find myself having a hard time. Now I MUST have all this time on my hands, right? It's 10 AM and here I am, watching Seby watch TV while I typ...

4

The Resilient Son: So I have an affinity for my son's shoes....

http://www.theresilientson.blogspot.com/2011/03/so-i-have-affinity-for-my-sons-shoes_10.html

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Thursday, March 10, 2011. So I have an affinity for my son's shoes. So I've been asked lately, "Why did you decide to take up blogging again? Why did you pick this title? And "How is your son today? I'm glad that people care enough about my son to read his caringbridge page. What do you mean by that Em? Where 90% of them are non-verbal? In this blog, you will see just how resilien...

5

The Resilient Son: When you find your voice.....

http://www.theresilientson.blogspot.com/2011/03/i-want-to-write.html

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Monday, March 14, 2011. When you find your voice. I want to write. I really do. I have forgotten how freeing it is, and how personal it can be. A few weeks ago I stumbled upon a really old picture of me, that was taken right after I moved back to Jersey in 2005. A group of us are on the couch and I'm at the end, writing in my journal. I have a thought every second of every day, bu...

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mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Struggling to Maintain.

http://mynewnormal.blogspot.com/2012/06/struggling-to-maintain.html

Friday, June 01, 2012. I had taken down my psych hospital visits for a while for personal reasons. I put them back up the other day and didnt realize they would RE PUBLISH AGAIN on my blog just thought it would unhide them. Sorry if anyone got confused.I know I did! It's been a rough week. She has an incisional hernia. I'm not sure what to do.but we are going to talk to the surgeon. At 6/01/2012 05:41:00 PM. I hope you can get it straightened out and make it better for her. Thanks for sharing your experi...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Ketchup.

http://mynewnormal.blogspot.com/2012/07/ketchup.html

Thursday, July 05, 2012. Let's play catch up. I took Makily to the surgeon. He looked at her belly and said she needs a longer feeding tube. He feels if it is rubbing it's because the tube is too short. She has grown a lot and so the size has to be changed. We got the new size tube yesterday and I plan on putting it in tonight. I just hope it does not leak. He was not at all concerned about the incisional hernia so I'm not either. I have some exciting things going on behind the scenes right now. I ca...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Paranoid Schizophrenia.

http://mynewnormal.blogspot.com/2012/01/paranoid-schizophrenia.html

Monday, May 28, 2012. The guy that called me out on why I was in the nut house. On my first day was a paranoid schizophrenic. I knew it BY day two of being around him. At first I just would listen to him and the ENTIRE time think WOW this man is most definitely a lunatic. Johnny told me that the VA was giving him a hard time because they said he was not cooperating with the program. You see he was there to get changed from Methadone. He was taking THOSE meds just fine. The night before I was to leave Joh...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Don't Worry Be Happy.

http://mynewnormal.blogspot.com/2012/01/dont-worry-be-happy.html

Monday, May 28, 2012. Don't Worry Be Happy. I've had several people express their worries about me. Wanting to make sure I have follow up appts. Do I have help? What do I need? Well first off YES I have follow up. I was not permitted to leave without an appt with a therapist. I go see her for the first time this Wednesday. I am hoping she is NOT like the lunatic I went to previously. My meds with a few of my over the counters thrown in there. I feel like a geriatric patient. Fo Realz. I have already seen...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: The worst shrink ever.

http://mynewnormal.blogspot.com/2012/01/worst-shrink-ever.html

Monday, May 28, 2012. The worst shrink ever. Okay so maybe not EVER but she's pretty awful. I will not put her name here. I'm feeling generous.or maybe it's just pity for this woman who seems to be so horrible at her job and have no idea. On my way there I was nervous. I didn't really WANT to go but I am to the point I realize I do need professional help, so I went in the hopes that I would get something out of it. How do I know that? There were no fireworks to be had though. In response to his son telli...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: The Nurses Station and Cutting Strings.

http://mynewnormal.blogspot.com/2012/01/nurses-station-and-cutting-strings.html

Monday, May 28, 2012. The Nurses Station and Cutting Strings. If you have not read the last couple entries:. Things will make more sense that way. The secretary picked up my bag and we walked out of the room and into "The Unit". It was about 4pm at this point (Allen and I had left the house around noon). The secretary gave all my things to the front desk clerk and said we still needed to "check them in". Thankfully. She let me keep my blanket.that zebra blanket. She had me sit. This was true and by the e...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Already Gone and The New Shrink.

http://mynewnormal.blogspot.com/2012/01/already-gone-and-new-shrink.html

Monday, May 28, 2012. Already Gone and The New Shrink. So one of the things every therapist has told me since talking is that I need to do things for myself. I do everything for the kids but little for me. When I do I half ass it or do it really cheap because I FEEL AWFUL spending money on me. My Kelly WILL BE IN JACKSONVILLE in just a mere:. I was shocked to see there were several seats up pretty close and then I saw that there were still seats IN THE PIT available. Then I could hear everyone's comments...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Who's Been Pooping In My Bed?!?

http://mynewnormal.blogspot.com/2012/03/whos-been-pooping-in-my-bed.html

Monday, May 28, 2012. Who's Been Pooping In My Bed? My title is a quote from a lady that was in the Nut House with me. This lady annoyed the bajeezers out of me. I could put up with, sympathize and even almost befriend the paranoid schizo guy. I could deal with the lady that pulled her hair out and ate it. I could EVEN put up with the lady that incessantly asked me if I had a hidden cell phone in my bra. For the record I did not. :-). This lady though.she drove me crazier than I already was. At this poin...

mynewnormal.blogspot.com mynewnormal.blogspot.com

My New Normal: Turning Tables.

http://mynewnormal.blogspot.com/2012/01/turning-tables.html

Monday, May 28, 2012. I'm so happy I can't breathe. Does that make sense what I'm saying? I can't run from the love I have for Makily, it's there in fact deeper than any other feeling I have ever had but that is what makes it frightening because when she is gone.then what? What do I do? I don't know how to be anything anymore except to be Makily and Jakob's mommy. Example of LUST and NOT love. LMAO! I've been printing pics of the kids and Allen and I. I'm working on framing them and putting them up.

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The Resilient Son

Rants, ravings, and inspiring stories about a loving family embracing Emanuel Syndrome, and a son named Sebastian who has it. Sunday, March 18, 2012. When he takes his first steps. I am now in a position to assist her with figuring out ways to play with her little brother and maintain that sibling relationship. This weekend was one of those few fantastic weekends. This story starts with an early riser on a beautiful Saturday morning, that also happened to be St. Patrick's day! Ok, that I'm chalking up to...

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Eileen McDargh - Motivational, Keynote, Professional Speaker

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