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Welcome to The Romberg's ConnectionThe Romberg's Connection
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Gerri Neal
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Gerri Neal
2418 Ced●●●●●●●●ts Drive
Ceda●●●●alls , Iowa, 50613
United States
View this contact
Gerri Neal
2418 Ced●●●●●●●●ts Drive
Ceda●●●●alls , Iowa, 50613
United States
View this contact
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Welcome to The Romberg's Connection | therombergsconnection.com Reviews
https://therombergsconnection.com
The Romberg's Connection
therombergsconnection.com
Romberg's 2003 Survey Introduction
http://www.therombergsconnection.com/survey/intro2003.html
Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case. This was not a scientific survey. Back to Main Page. Back to Main Page.
Den danske side
http://www.therombergsconnection.com/other_pages/Danish.html
Denne side indeholder links til de danske sider. Ofte stillede spørgsmål. Vores "Familie" Photo Album. European Organisation for Rare Diseases. Sidst opdateret 5 April 2014.
La página española
http://www.therombergsconnection.com/other_pages/Spanish.html
Esta página contiene enlaces a páginas en español. Síndrome de Parry Romberg. NORD ¿Quién es y qué pueden hacer por nosotros? Preguntas más frecuentes. Nuestra "familia" álbum de fotos. MAS SOBRE LA ESCLERODERMIA. El Síndrome de Parry-Romberg por Jon Stone. Asociación Argentina de Esclerodermia. European Organisation for Rare Diseases. Santo Domingo Alcazar of Columbus. Nacional de la Construcción. Antigua Oficina de Correos. El Palacio Nacional de México. Plaza de Armas Lima Peru. Palacio Real de Madrid.
Our Photo Album
http://www.therombergsconnection.com/photo_album/photoalbum.html
All photos and text are the property of the families represented, and may not be used without their consent. Back to Main Page. Our "Family" Photo Album. Theresa and Terry in Chicago, Illinois USA. Co-founders Of Our Connection. Sylvie - Burnham on Sea. Silvia, husband Steven and. Manu and his family. Adelaide, South Australia. Before Surgery - Age 15. Kelley With Dr. Siebert Three. After Surgery #3 June 2008. 1 Month After Surgery #3. North Dakota, USA. Suffolk, United Kingdom. Amy and fiancé.
Register with the National Organization of Rare Disorders
http://www.therombergsconnection.com/nord.html
Who is NORD and what can they do for us? From the NORD (National Organization of Rare Disorders) wedsite:. NORD’s vision and guiding principles on which our advocacy initiatives are based:. A national awareness and recognition of the challenges faced by people living with rare diseases and the associated costs to society. A nation where people with rare diseases can secure access to diagnostics and therapies that extend and improve their lives. What is A Rare Disorder? Any disease affecting fewer than 20...
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thehankchronicles.blogspot.com
The Hank Chronicles: November 2009
http://thehankchronicles.blogspot.com/2009_11_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Wednesday, November 25, 2009. One week from today, Hank will be in surgery! Can't believe it's here! How quickly the last five months have passed. Weren't we just there? But I think the stress is getting to me. Tears are flowing. After a year of holding it together, I no longer can. Why now? Hank has been his usual stoic self. When I ask him how he feels about surgery, he gives me a big smile and a thumbs up. “Good! And was pointing...
thehankchronicles.blogspot.com
The Hank Chronicles: Hank's Surgeries
http://thehankchronicles.blogspot.com/p/hanks-surgeries.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. On July 2, 2009, Hank underwent a microvascular free-flap tissue transfer surgery. His surgery was performed at Langdon NYU Medical Center, by Dr. John W. Siebert. Dr Siebert also has a practice in Madison, Wisconsin and now performs this surgery at University of Wisconsin's Children's Hospital as well as other Medical institutions in Madison. We learned about Dr. Siebert throug. If you are looking into this surgery for yourself or ...
thehankchronicles.blogspot.com
The Hank Chronicles: December 2009
http://thehankchronicles.blogspot.com/2009_12_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Sunday, December 6, 2009. It's Sunday, late morning and I am in the playroom watching Lucy play pretend and Hank and Charlie play video games. Just a normal weekend in the Gibbs' household. Except it's anything, but "normal". This isn't our playroom.and those aren't our video games.and this isn't the Gibbs' household! He said to Hank, as they gave each other a high-five. "How are you feeling? Hank replied. "You look great! I smiled ...
thehankchronicles.blogspot.com
The Hank Chronicles: May 2010
http://thehankchronicles.blogspot.com/2010_05_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Monday, May 17, 2010. I call it the "let down". You go, go, go.and then STOP! But we can't stop. Hank has a progressive illness.and we need to stay diligent, watchful, and. Aware And so we prepare to head back to NYC this summer.for a follow-up appointment and 3rd (minor) revision. In the meantime, we are so grateful to have Dr. John Siebert.the man who truly gave us hope through all of this. The man who made a huge diff...Even so, ...
thehankchronicles.blogspot.com
The Hank Chronicles: July 2009
http://thehankchronicles.blogspot.com/2009_07_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Thursday, July 30, 2009. Three weeks post-surgery. Has it. Time seems to be suspended as we eagerly watch Hank's face for signs that he is healing. Each day he looks. More and more like his old self.after getting used to the atrophy on the left side of his face, we are now trying to get used to the fuller-than-full left side of his face. He has lots of energy and wants to be outside and doing things! Before he ever had the surgery?
thehankchronicles.blogspot.com
The Hank Chronicles: Wear GREEN for Hank
http://thehankchronicles.blogspot.com/p/wear-green-for-hank.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Wear GREEN for Hank. On Surgery Day, June 19, 2014, we asked everyone to wear GREEN. For Hank and show their support. It meant to world to us, that so many people were thinking about, praying for, and took the time to not only wear green, but send and post their photos. We are still showing him the photos and the greetings! Subscribe to: Posts (Atom). The students at OMS wearing green for Rare Disease Day 2015. STUDENT OF THE MONTH!
Kealy's Journey with Linear Scleroderma from Mom's Perspective: Follow up Visit
http://kealyona.blogspot.com/2012/04/follow-up-visit.html
Kealy's Journey with Linear Scleroderma from Mom's Perspective. A journey with linear scleroderma, en coup de sabre, Parry Romberg syndrome or whatever you want to call it. Note: All images/videos throught out this blog are the property of Terry Bullard, and cannot be used without my consent. Thanks! Wednesday, April 4, 2012. Thank you to the Church of Christ family in Skiatook for their support, the funds they provided will sponsor most all of this next trip. We love you guys. And I didn't wait ...And j...
thehankchronicles.blogspot.com
The Hank Chronicles: April 2009
http://thehankchronicles.blogspot.com/2009_04_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Tuesday, April 21, 2009. Ten weeks until we are back in New York for Hank's surgery. Time is flying! Hank talked about the trip and the surgery the other day. He is looking forward to the trip and understands about the surgery, but the poor little guy has no idea what the recovery will be like! And that's good.we NEED Jeff to be busy, but bad timing to be away for two weeks. Not thrilled about being in New York by myself, but I am g...
thehankchronicles.blogspot.com
The Hank Chronicles: Hank In The News
http://thehankchronicles.blogspot.com/p/hank-in-news.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Hank In The News. In our effort to raise awareness of Parry Romberg Syndrome as well as our fundraising efforts for Hank's surgeries.Hank has had some news coverage. You can read the stories and watch the news clips by clicking on the links below. While in NYC, we were interviewed by FOX News. Read the article here:. Http:/ www.foxnews.com/story/0,2933,598207,00.html. Fox 40 News Boy-Afflicted-With-Disease-You-Have-Never-Heard-Of.
thehankchronicles.blogspot.com
The Hank Chronicles: September 2009
http://thehankchronicles.blogspot.com/2009_09_01_archive.html
Hank In The News. Hope for Hank" Fundraiser Photos. Wear GREEN for Hank. Wednesday, September 30, 2009. Hank is good. He is really good! Little by little I see things that make me think the surgery was a success. Hank used to cringe and complain that his scalp hurt every time we combed his hair. But a couple of weeks ago, I watched as Jeff combed Hank's hair and Hank sat there quietly not even noticing. It took a minute for it to register in my brain. "Hank's head doesn't hurt! But, he does look differen...
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The Roma Takeaway - Italian takeaway
It's safe, secure and reliable. Welcome to The Roma Takeaway located on Main Street in Newcastle. This fast food takeaway serves a wide range of all classics ranging from Burgers, Chips, Family Meal deals. So why not order online from Just-eat.ie! Kebab Meal Donner Kebab. Chicken Breaded Burger Meal. More dishes ».
theromawebsite
therombaldsmoorproject.wordpress.com
The Rombalds Moor Project | Archaeology, Folklore, Geology, Natural History, Place-Names & Rock Art of Ilkley Moor and district
The Rombalds Moor Project. Archaeology, Folklore, Geology, Natural History, Place-Names and Rock Art of Ilkley Moor and district. Barrows, Cairns and Tumuli. Cup-and-Rings, Petroglyphs or Rock Art. Old Roads & Trackways. Leys or Ley Lines. The Rombald’s Moor Project. HELLO VISITOR – PLEASE NOTE THIS SITE IS STILL IN THE EARLY “UNDER CONSTRUCTION” PHASE, WITH WORK GOING ON IN THE BACKGROUND UNTIL WE’RE READY TO SWITCH ON! The Rombald’s Moor Project. The Rombald’s Moor Project. Can help us get access to su...
Welcome to The Romberg's Connection
The Romberg's Connection is an international support group made up of over 600. Individuals and families whose lives are affected by Parry Romberg Syndrome. We have come together to offer our strength, courage, support and friendship to one another. For more information and to join our Romberg's Connection, please e-mail us at rombergs@hotmail.com. On May 23, 2013 we have launched an important new initiative: a patient registry for Parry Romberg Syndrome. To learn more click here. Helping Hands for Hank.
theromblood | In search of family history and identity
In search of family history and identity. Spilling the beans: Family secrets. Life in the rotten barrel: Romani gypsy discrimination and the police. What’s in a name? Panning for ancestral gold. The mythical gypsy past. Here’s looking at you kid. August 10, 2015. Lest we forget: The courage to care. August 2, 2015. August 6, 2015. Today is a significant anniversary, but chances are you won’t have heard of it. Surely you would have heard of that right? Actually, maybe not. Continue reading →. July 30, 2015.
The Rombo Code
Ya formas parte de The Rombo Code. Elige tu zona de acción. Entra, piensa, coopera y escapa.
Resurrection Outreach Church
Welcome: Let's Do It Together. Sundays : 10:00a.m. Wednesdays : 7:30p.m. Church Websites Ministry Websites.
TheRomCom - DeviantArt
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The Romdenhs in Cambodia
The Romdenhs in Cambodia. Urban church planting, Community development, and Compassionate ministries. Wednesday, January 4, 2017. Thoughts on concluding a very eventful year. 2016 was the most eventful year of our marriage, perhaps even of our individuals lives. How God is growing our family:. On February 4th, Sophear turned two-years-old and on March 16th, she had surgery to close a hole in her heart. It was a very scary time for us, but we felt so supported! Over the weekend, I built a blanket fort for...
