wames.org.uk
Carers | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/carers
You are here: Home. Are you a carer? In this section of the website we will be adding articles about a wide range of topics of interest to those caring for people with ME. We use the term ‘carer’ here for all who provide unpaid care and support for someone with ME, and the term care worker for those who are paid to provide care. Caring for a person with ME. Be Sociable, Share! Registered charity number 1144534.
wames.org.uk
WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support
http://wames.org.uk/cms-english
You are here: Home. The Welsh Association of ME and CFS Support (WAMES) works in Wales to improve the lives of people with ME, CFS and PVFS, their families and carers. Latest issue: April 2016. ME is a debilitating physical condition largely ignored or misunderstood by the health and social care community. It’s time for change! Help us campaign for better services in Wales. Tell us your story. Take the WAMES priorities survey. AGM and ‘Shape our future event’ Sat 25 June 2016. Be Sociable, Share!
wames.org.uk
Fundraise | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/get-involved/fundraise
You are here: Home. Raquo; Get Involved. There are many ways you can help WAMES to raise funds for our activities and campaigns. Here are some suggestions:. 8211; sign up to easyfundraising. And raise funds at no cost to yourself by shopping at thousands of online stores. Buy a stair lift through Stairlifts Nationwide. And WAMES will receive a 50 charity donation. Compare all types of Stairlifts. Such as car boot sale, concerts, coffee mornings, parties, pub quizzes or treasure hunts. Collect in your area.
wames.org.uk
News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support
http://wames.org.uk/cms-english/news
You are here: Home. Raquo; Latest News. Global protest 27 Sep 2016 for the ‘Millions missing’ due to ME. September 5, 2016. There are #MillionsMissing from their lives because of Myalgic Encephalomyelitis (ME), a debilitating neuroimmune disease. In May 2016 there were peaceful protests in 13 cities including Belfast. On September 27th, the #MillionsMissing will once again protest around the world, including Cardiff and Bristol. Join the millions missing round 2. September 5, 2016. Children with CFS/ME (...
wames.org.uk
Which name for the illness do you prefer? | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/2015/02/which-name-for-the-illness-do-you-prefer
You are here: Home. Raquo; Latest News. Raquo; Which name for the illness do you prefer? Patients with a chronic condition need support to self-manage. Link between early menopause and CFS →. February 16, 2015. Which name for the illness do you prefer? Systemic Exertion Intolerance Disease (SEID) (22%, 2 Votes). Post-Exertional Relapse Syndrome (PERS) (22%, 2 Votes). ME-CFS (22%, 2 Votes). Chronic Postural Neuroimmune Dysfunction Disease (11%, 1 Votes). Myalgic Encephalopathy (11%, 1 Votes).
wames.org.uk
Professionals | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/professionals
You are here: Home. There is a lot of confusion and disagreement surrounding the nature and treatment of ME and CFS. We are always adding information to these pages based on good clinical practice and biomedical research results from around the world which will help you to make a difference to people affected by ME and CFS and improve their quality of life. WAMES welcomes enquiries about all aspects of living with ME and CFS. Let us know what you wish to know. About ME in Wales. Guidelines & Policies.
wames.org.uk
Young People | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/young-people
You are here: Home. Raquo; Young People. Are you aged 24 or under? Would you like to get in touch with other young people with ME in Wales? Do you want to find out what’s happening for young people with ME? The WAMES magazine me voice. Articles about Education, Living with ME, Young carers, Health and social care, Fun and laughter, Local info etc. with a dedicated U21. Section for young people. See our Introduction to ME for children. And find out about support groups. Young people: What is ME?
wames.org.uk
Severe ME day Saturday 8 August 2015 | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/2015/08/severe-me-day-saturday-8-august-2015
You are here: Home. Raquo; Latest News. Raquo; Severe ME day Saturday 8 August 2015. Cardiff ME Support group meet 10 August 2015. Dermatological manifestations of POTS →. August 7, 2015. WAMES invites you to join with them and the 25% ME Group. To raise awareness of the home care. Needs of people with severe ME. Many severely affected people in Wales struggle to help professionals understand the extent of their need for nursing and social care in the home. Share our Facebook. Not sick enough for.
wames.org.uk
Teenage kickboxer with CFS | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/2015/08/teenage-kickboxer-with-cfs
You are here: Home. Raquo; Latest News. Raquo; Teenage kickboxer with CFS. Dermatological manifestations of POTS. Mum with CFS gets award nomination for her blog →. August 11, 2015. Caerphilly teen kickboxer to defend world crown, by Caio Iwan in South Wales Argus online. Wednesday 5 August 2015. A TEENAGE kickboxer from Pontllanfraith is set to travel to Germany to defend her world crown despite nearly having her legs amputated as a child. She has gone on to achieve a black belt and various prestigious ...
wames.org.uk
Get Involved | WAMES (Working for ME in Wales)
http://wames.org.uk/cms-english/get-involved
You are here: Home. Raquo; Get Involved. WAMES faces many challenges in our task of improving the quality of life for people with ME and their families in Wales. There are numerous ways, both large and small, in which you can help us to make a difference. Join us as a volunteer. Help us to fundraise. To let us know how you think you can get involved or to share your ideas. Be Sociable, Share! Registered charity number 1144534.