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Thankful for Every Day!: Cental Pain Syndrome (CPS)

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Thankful for Every Day! Welcome to our blog! Friday, June 22, 2012. Cental Pain Syndrome (CPS). Elizabeth, John, Jack, and Luke. Labels: Cental pain syndrome. June 23, 2012 at 6:23 AM. Im so lucky that my central pain is restricted to my hemiplegic foot and that Tylenol gives me relief when I cant fall asleep. Elizabeth, John and Jack. June 24, 2012 at 11:15 AM. June 24, 2012 at 9:25 AM. As always, thank you my dear friend for your support and for doing so much to help others. You are so appreciated!

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Thankful for Every Day!: February 2015

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Thankful for Every Day! Welcome to our blog! Monday, February 2, 2015. I can totally relate to this! This is so me when I get too tired, except I would never say I don't need a nap. What a smart big brother! Elizabeth, John, Jack, and Luke. Links to this post. Subscribe to: Posts (Atom). Elizabeth, John, Jack, and Luke. Just a little family feeling lucky to be here everyday! View my complete profile. The big circle on the left in the picture is my cavernous angioma. Learn about cavernous angiomas. My New...

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Thankful for Every Day!: July 2013

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Thankful for Every Day! Welcome to our blog! Friday, July 26, 2013. The power of Hope. In many ways it reminded me of our story, except her condition was much more severe than mine. They have put together a video telling their story, and it's very well done. Enjoy! Elizabeth, John, Jack, and Luke. Links to this post. Subscribe to: Posts (Atom). Elizabeth, John, Jack, and Luke. Just a little family feeling lucky to be here everyday! View my complete profile. Learn about cavernous angiomas. Leading a Healt...

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Thankful for Every Day!: 6 word story

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Thankful for Every Day! Welcome to our blog! Wednesday, May 6, 2015. I am never short on words. So asking me to tell my angioma story in 6 words is really hard. Here goes,. Cavernous angioma changed my life, FOREVER! Here is a beautiful video illustrating other's stories. Please share with everyone. Having a "rare disease" makes it so much harder to get good care. Thank you Connie for all you do. This made me cry and is so well done! Elizabeth, John, Jack, and Luke. Subscribe to: Post Comments (Atom).

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Thankful for Every Day!: The icing on the cake

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Thankful for Every Day! Welcome to our blog! Monday, January 6, 2014. The icing on the cake. Ohn would say he wanted 3 kids, I always wanted 2 and was clear that 2 was my maximum.so 2 was the goal. Well, since my first pregnancy/delivery somehow aggravated my angioma (that I never knew I had).I knew I would not risk another pregnancy unless my angioma was gone. I also wasn't willing to undergo such a risky surgery just so we could have another baby, but I needed. Surgery and a baby could be a huge bonus!

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Thankful for Every Day!: September 2014

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Thankful for Every Day! Welcome to our blog! Thursday, September 25, 2014. Supporting Angioma Alliance and finding a cure for cavernous angiomas. All you SoCal folks and anyone willing to travel.Here's your chance to come out and support Angioma Alliance and all the wonderful work they do. There is an upcoming walk in Pasadena. It's part of the W. I will add the details as I am made aware, but right now, you can sponsor me. I will be there positively! Elizabeth, John, Jack, and Luke. Links to this post.

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Thankful for Every Day!: May 2015

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Thankful for Every Day! Welcome to our blog! Monday, May 18, 2015. The problem with a rare disease diagnosis. Stroke symptoms, hemorrhages, and headaches. She said BBPV and prescribed meclazine,(which did nothing to help), and exercises to "settle the crystals in my ears" from the BBPV. I scribbled down the words cavernous angioma and felt relieved for a moment, not knowing how asinine her words were at the time. While statistically that can be assumed, sort of. Yes, most times. Links to this post. We we...

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Thankful for Every Day!: Insight from an old friend

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Thankful for Every Day! Welcome to our blog! Monday, September 15, 2014. Insight from an old friend. The benefits to having a cavernoma. On a lighthearted note.I have been trying to get past the shock and be more positive about things. These are some things I've gained from having a cavernoma and I would love to hear yours! 10 I don't have to look like a wimp when I don't want to ride a roller coaster. 8 I now have a chauffeur to take me places (aka husband, mom, friend, etc.)! 4 More sincerity in prayers.

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Thankful for Every Day!: August 2014

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Thankful for Every Day! Welcome to our blog! Friday, August 29, 2014. Life is good and a new logo for AA. Luke continues to be the sweetest, cuddliest, easiest little baby. He is such a treat! Angioma Alliance has just launched a new logo that I think is really awesome. Previously they had a "little red guy" and now they have a bleeding bubble brain that I think tells the story so much better! That's why we need a cure! Elizabeth, John, Jack, and Luke. Links to this post. Subscribe to: Posts (Atom).

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Thankful for Every Day!: January 2014

http://thankfulforeveryday.blogspot.com/2014_01_01_archive.html

Thankful for Every Day! Welcome to our blog! Monday, January 6, 2014. The icing on the cake. Ohn would say he wanted 3 kids, I always wanted 2 and was clear that 2 was my maximum.so 2 was the goal. Well, since my first pregnancy/delivery somehow aggravated my angioma (that I never knew I had).I knew I would not risk another pregnancy unless my angioma was gone. I also wasn't willing to undergo such a risky surgery just so we could have another baby, but I needed. Surgery and a baby could be a huge bonus!