xlinked1.com
X-linkedA blog dedicated to our son with X Linked Hydrocephalus. Life with a rare genetic disorder can be hard and beautiful at the same time.
http://www.xlinked1.com/
A blog dedicated to our son with X Linked Hydrocephalus. Life with a rare genetic disorder can be hard and beautiful at the same time.
http://www.xlinked1.com/
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X-linked | xlinked1.com Reviews
https://xlinked1.com
A blog dedicated to our son with X Linked Hydrocephalus. Life with a rare genetic disorder can be hard and beautiful at the same time.
xlinked1.com
X-linked: What I am most afraid of
http://www.xlinked1.com/2016/04/what-i-am-most-afraid-of.html
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. Sunday, April 3, 2016. What I am most afraid of. What is this thought that I am so afraid of? We will be left with our other 2 childr...
X-linked: Hospital stays SUCK! and 5 ways we avoided them
http://www.xlinked1.com/2016/03/hospital-stays-suck-and-5-ways-we.html
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. Wednesday, March 2, 2016. And 5 ways we avoided them. This day marks the 1 year anniversary of our sons last hospital stay! We have n...
X-linked: Our Story
http://www.xlinked1.com/p/our-story.html
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. It was early January 2012. 3am. MRI taken 2 days after birth. The dark area is all fluid. His brain is being pushed against his s...
X-linked: April 2016
http://www.xlinked1.com/2016_04_01_archive.html
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. Friday, April 8, 2016. To my special needs child: THANK YOU! Dear sweet child,. Thank you for saving me. Thank you for changing me.
X-linked: June 2016
http://www.xlinked1.com/2016_06_01_archive.html
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. Sunday, June 19, 2016. Our Make A Wish wish. So, what could be better then a camper? From Make A Wish Foundation. This has given us a...
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xLinked-for-lifee's blog - ▐▬▌ e u r e u s e* x) - Skyrock.com
9616;▬▌ e u r e u s e* x). Le bonheur à L'étαt pur (! 10/05/2010 at 9:37 AM. 27/07/2010 at 1:27 AM. Subscribe to my blog! Uisqu'on est jeunes and con x). O one's gonna take me alive. 10006; Appellez moi Séraphine. Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.3) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Monday, 10 May 2010 at 9:46 AM.
xlinked-for-lifep's blog - xlinked-for-life/ blog complément - Skyrock.com
28/10/2009 at 1:02 PM. 30/07/2010 at 11:27 AM. Subscribe to my blog! Posted on Wednesday, 28 October 2009 at 1:13 PM. Edited on Friday, 09 July 2010 at 3:51 PM. Page 1 of 47. Page 2 of 47. Page 3 of 47. Page 4 of 47. Page 5 of 47. Page 6 of 47. Page 7 of 47. Page 8 of 47. Page 9 of 47. Page 10 of 47. Page 11 of 47. Page 12 of 47. Page 13 of 47. Page 14 of 47. Page 15 of 47. Page 16 of 47. Page 17 of 47. Page 18 of 47. Page 19 of 47. Page 20 of 47. Page 21 of 47. Page 22 of 47. Page 23 of 47. Page 24 of 47.
The 50/50 Girl: Life with an Ectodermal Dysplasia
The 50/50 Girl: Life with an Ectodermal Dysplasia. National Foundation for Ectodermal Dysplasia. Incontinentia Pigmenti International Foundation. Friday, September 7, 2012. Taking Things For Granted. National foundation for ectodermal dysplasias. Wednesday, June 20, 2012. Blues For The Cure. Now this is what I call a fun fundraiser (not that collecting change isn't)! If you are in the area, I highly encourage you to go check it out and support this awesome cause! Blues for the Cure Benefit. EDI200 is an ...
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X-linked
Our oldest son has a rare genetic disorder called X Linked Hydrocephalus. This is our journey though life with that very special boy that will, hopefully, inspire and educate others. I want to share the ups and downs, trials and triumphs, all while letting others know that they are not alone. My life, My loves. X-linked Hydrocephalus (L1 syndrome). Helpful tips and tricks. Sunday, June 19, 2016. Our Make A Wish wish. So, what could be better then a camper? From Make A Wish Foundation. This has given us a...
X-LINKED LETHAL
Oh, what a tangled. Oh, what a tangled. Oh, what a tangled. Oh, what a tangled. Oh, what a tangled. Oh, what a tangled. Oh, what a tangled. No We are not what your mother would recommend. No We won’t give you branded stuff at bargain basement prices. No We don’t consider pandering to your idiosyncrasies to be our life’s mission. On the contrary, we are here to do things that we like and kick some butts while we are at it. We are here because what the heck? When not writing popular columns on drunkards an...
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Blog de xLinkeed - « Attrait du risque » - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. AVATAR VIDEO FAIT PAS MA CHERIE NE PAS ME LE PIQUER /! Mise à jour :. Abonne-toi à mon blog! L'auteur de ce blog n'accepte que les commentaires d'utilisateurs inscrits. Tu n'es pas identifié. Clique ici pour poster un commentaire en étant identifié avec ton compte Skyrock. Et un lien vers ton blog ainsi que ta photo seront automatiquement ajoutés à ton commentaire. Posté le dimanche 23 mai 2010 11:50. Les amis sont acceptés à condition d'avoir lâché. Tu n'es ...
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