adrakesprogress.blogspot.com
A Drake's Progress: Appointments
http://adrakesprogress.blogspot.com/2015/05/appointments.html
Saturday, 16 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. These are the appointments you have when you have a Prader-Willi person. Simple tem...
adrakesprogress.blogspot.com
A Drake's Progress: Shame
http://adrakesprogress.blogspot.com/2015/05/shame.html
Sunday, 3 May 2015. My last blog post. Was about how my daughter, previously P.E. phobic, has recently started attending a Saturday morning disabled sports club. Last week, she didn’t go, however. The entire family overslept. There was no chance of getting her to the club in time to catch the minibus which was taking the kids to the swimming pool. She was disappointed, and her anxiety levels were starting to rise, as they usually do when plans are changed unexpectedly. Labels: Belle and Sebastian. Dark M...
adrakesprogress.blogspot.com
A Drake's Progress: May 2015
http://adrakesprogress.blogspot.com/2015_05_01_archive.html
Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...
adrakesprogress.blogspot.com
A Drake's Progress: March 2015
http://adrakesprogress.blogspot.com/2015_03_01_archive.html
Sunday, 22 March 2015. The things we say shape our children. Our verbal interactions with them mould their personalities, inspire them, help them as they learn how to think, how to act, and how to be. What would Einstein have achieved if his mum hadn’t regularly used the phrase: “Well, it’s all relative, isn’t it”? What would have happened to Martin Luther King if his ma hadn’t reassured him after a restless night by saying: “What you’ve had there, my boy, is a dream”? Where Peaceful Waters Flow. The mes...
adrakesprogress.blogspot.com
A Drake's Progress: January 2015
http://adrakesprogress.blogspot.com/2015_01_01_archive.html
Friday, 30 January 2015. You might think life is tough for a child with Prader-Willi Syndrome. There’s the hunger, the anxiety, the learning difficulties, and all the rest of the blah blah blah. There’s also the poor circulation, giving rise in my PWS daughter’s case to really cold hands and feet. But I really don’t see what she’s got to complain about. She gets to wear cosy thermal socks. Life of bleedin’ Riley, I tell you. Song is Eels - To Lick Your Boots. Labels: cold hands and feet. So we arrived, w...
adrakesprogress.blogspot.com
A Drake's Progress: Genetics
http://adrakesprogress.blogspot.com/2015/05/genetics.html
Monday, 11 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. Egg and sperm cells normally contain just 23 chromosomes, so that they join up in con...
adrakesprogress.blogspot.com
A Drake's Progress: November 2014
http://adrakesprogress.blogspot.com/2014_11_01_archive.html
Sunday, 23 November 2014. I came up with a new non-sweary swear today. It was a tweak of Sylvester the cat’s “Sufferin’ succotash”. “Perseveratin’ balderdash! 8221; hasn’t quite got the same ring to it, but saying it to myself in a lispy cartoon moggy voice possibly saved my sanity (although if anyone had overheard they would have thought otherwise). 8221; was high up in that week's Top Five of her repetitive sayings. Over the months, this morphed into “Do I grind my teeth? A few weeks ago, I broke my ru...
adrakesprogress.blogspot.com
A Drake's Progress: February 2015
http://adrakesprogress.blogspot.com/2015_02_01_archive.html
Saturday, 28 February 2015. How perfectly composed this photo is," I thought. Until I realised the back of the programme makes. It look like they went to see The Lion King. It’s been a perfect day. 8220;I’m so sorry,” I spluttered. 8220;It could be worse,” my daughter told him, nodding philosophically. She won't be smiling when I tell her she's paying that bloke's dry-cleaning bill. Secured at half price with a phone call asking for ‘access tickets’ for children with special needs. (WHY d...The show was ...
adrakesprogress.blogspot.com
A Drake's Progress: Love
http://adrakesprogress.blogspot.com/2015/05/love.html
Sunday, 17 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. What I haven’t said enough about is love. I don’t like who I used to be. I know what ...
adrakesprogress.blogspot.com
A Drake's Progress: Eatiquette
http://adrakesprogress.blogspot.com/2015/05/foodiquette.html
Wednesday, 13 May 2015. This week is PWSA UK Awareness Week. The Prader-Willi Syndrome Association UK want to spread the word about the rare chromosome disorder. They want more people to know about the syndrome, in an effort to allow children and adults with PWS to be understood and accepted, and to make more people across the country aware of what the condition means for PWS people and their families, friends, and carers. So I’ve come up with some etiquette advice about food. I'm calling it. 8221; when ...
SOCIAL ENGAGEMENT