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A. Fibromatosis Information -               Aggressive FibromatosisDesmoid Tumour Information Page

http://af-information.weebly.com/a-fibromatosis-information.html

Aggressive FibromatosisDesmoid Tumour Information Page. An Introduction to Aggressive Fibromatosis. How AF is diagnosed. Another option is to refrain from any medical treatment at all, some studies have shown that eventually the tumour can just burn itself out and stabilise, some patients even report remission. I have discussed a report on this technique in the “Recent Publications and Research” section of this website and I have included the link for the original report. Create a free website.

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Other's Stories -               Aggressive FibromatosisDesmoid Tumour Information Page

http://af-information.weebly.com/others-stories.html

Aggressive FibromatosisDesmoid Tumour Information Page. Please send your stories to: afibromatosis@hotmail.co.uk. How do you treat it? Will it come back? I spent the next few years monitoring the growth of my tumors with my oncologist, and trying to manage the near-constant pain. I was frustrated that I never felt fully healthy; I just wanted the pain to go away and I wanted to be normal like everyone else. I didn't want to feel embarrassed to wear a swimsuit where people could see my scars.

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              Aggressive FibromatosisDesmoid Tumour Information Page - Home

http://af-information.weebly.com/index.html

Aggressive FibromatosisDesmoid Tumour Information Page. General Desmoid Tumour Survey. What is your age? Prefer not to say. Where is your Desmoid Tumour located? Prefer not to say. Which treatments have you tried? Drugs e.g. Tamoxifen. I have only just been diagnosed and haven't chosen a treatment yet. If you ticked yes to surgery, has your tumour reoccured? I haven't had surgery. Create a free website. Create your own free website. Start your own free website.

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Videos -               Aggressive FibromatosisDesmoid Tumour Information Page

http://af-information.weebly.com/videos.html

Aggressive FibromatosisDesmoid Tumour Information Page. Currently none of these videos are made by myself, all permission was collected and the channel names provided along with the video and it's description. After a reoccurence and a second surgery, the tumour was still growing. I had to undergo radiation surgery to stop the growth. Here is my crispy leg after 20 or so radiation treatments (I had 27 in total). Youtube Channel: desmoidgirl (15 Oct 2008). Youtube Channel: ClareColette (26 Jun 2011).

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Recent Publications -               Aggressive FibromatosisDesmoid Tumour Information Page

http://af-information.weebly.com/recent-publications.html

Aggressive FibromatosisDesmoid Tumour Information Page. The DTRF official publication list can be found at the following:. Http:/ www.dtrf.org/dtrf linkstopublishedresearch.htm. I will be aiming however to go through the latest publications and simplify some of the research into an easy to read article in this section. Prognostic Factors Influencing Progression-Free Survival Determined From a Series of Sporadic Desmoid Tumors: A Wait-and-See Policy According to Tumor Presentation. Create a free website.

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Links -               Aggressive FibromatosisDesmoid Tumour Information Page

http://af-information.weebly.com/links.html

Aggressive FibromatosisDesmoid Tumour Information Page. Pages and Articles I have come across so far. The DTRF (Desmoid Tumour Research Foundation) based in America. Http:/ www.dtrf.org. Association SOS Desmoïde - A French Site but parts of the site are in English. Http:/ www.sos-desmoide.asso.fr/article.php3? This site has to be one of my favourites, clear and easy to read with plenty of information. Http:/ whippetrun bc.tripod.com/the fibromatosis page/index.html. Create a free website.

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              Aggressive FibromatosisDesmoid Tumour Information Page - Home

Aggressive FibromatosisDesmoid Tumour Information Page. General Desmoid Tumour Survey. What is your age? Prefer not to say. Where is your Desmoid Tumour located? Prefer not to say. Which treatments have you tried? Drugs e.g. Tamoxifen. I have only just been diagnosed and haven't chosen a treatment yet. If you ticked yes to surgery, has your tumour reoccured? I haven't had surgery. Create a free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

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