agnc.org.uk

jeansforgenesukblog.org

Genetics | Jeans for Genes

https://jeansforgenesukblog.org/category/genetics

What could your jeans do? To all the ‘rare’ Mums out there on Mother’s Day. March 6, 2016. Jeans for Genes Day. You never imagined that motherhood was going to be this way. Welcome to the world of mothering a child with a rare disease. Welcome to your new normal. My son, Nick has a rare genetic condition called Barth syndrome. Michaela and her son Nick, photo courtesy of Amanda Clark. Then comes the time when you and your rare disease group will need to look around to see what other groups are doing....

jeansforgenesukblog.org

Charity | Jeans for Genes

https://jeansforgenesukblog.org/tag/charity

What could your jeans do? To all the ‘rare’ Mums out there on Mother’s Day. March 6, 2016. Jeans for Genes Day. You never imagined that motherhood was going to be this way. Welcome to the world of mothering a child with a rare disease. Welcome to your new normal. My son, Nick has a rare genetic condition called Barth syndrome. Michaela and her son Nick, photo courtesy of Amanda Clark. Then comes the time when you and your rare disease group will need to look around to see what other groups are doing....

ukgtn.nhs.uk

Useful Links - UK Genetic Testing Network

http://ukgtn.nhs.uk/resources/useful-links

Department of Health Home page http:/ www.dh.gov.uk/en/index.htm. Department of Health Genetics Team: web page under development. NHS Scotland - http:/ www.show.scot.nhs.uk/. National Services Division - http:/ www.nsd.scot.nhs.uk/. Commissioning for Scotland's Health. NHS Wales - http:/ www.wales.nhs.uk/. NHS Northern Ireland - http:/ www.n-i.nhs.uk/. NHS Specialised Services - http:/ www.specialisedservices.nhs.uk/. NHS England - http:/ www.commissioningboard.nhs.uk/. Genetic Societies and Associations.

jeansforgenesukblog.org

Children we help | Jeans for Genes

https://jeansforgenesukblog.org/category/children-we-help

What could your jeans do? To all the ‘rare’ Mums out there on Mother’s Day. March 6, 2016. Jeans for Genes Day. You never imagined that motherhood was going to be this way. Welcome to the world of mothering a child with a rare disease. Welcome to your new normal. My son, Nick has a rare genetic condition called Barth syndrome. Michaela and her son Nick, photo courtesy of Amanda Clark. Then comes the time when you and your rare disease group will need to look around to see what other groups are doing....

ukcgg.org

Websites & Downloads

http://www.ukcgg.org/information-education/websites-downloads

Forgotten Username or Password? News and Events from the Cancer Genetics Group (CGG). Submit a News Item. Useful links and downloads, job listings and other helpful information. Cancer Genetics Group (CGG). Websites - (5 files and links). Constituent Societies - (5 files and links). British Society for Genetic Medicine (BSGM). Last updated Sunday, 12th April 2015. Clinical Genetics Society (CGS). Last updated Sunday, 12th April 2015. Association of Clinical Cytogeneticsits (ACC). Posted 26th June 2016.

appacgen.org

Associações internacionais de aconselhamento genético - APPAcGen

http://www.appacgen.org/associacoes-internacionais-de-aconselhamento-genetico

Como se tornar associado. O profissional do aconselhamento genético. Legislação e reconhecimento internacional. O nosso programa de formação profissionalizante. Número de profissionais do aconselhamento genético. Cursos profissionalizantes em aconselhamento genético. Associações internacionais de aconselhamento genético. European Network of Genetic Nurses and Counsellors. Website: www.engnc.org. Spanish Society of Genetic Counselling. Presentación de la Sociedad Española de Asesoramiento Genético (SEAGen).

jsgc.jp

リンク | 日本遺伝カウンセリング学会

http://www.jsgc.jp/link.html

American Board of Genetic Counseling. Association of Genetic Counseling Program Directors. Association of Genetic Nurses and Counsellors. Australasian Society of Genetic Counsellors. Australasia Board of Censors in Genetic Counselling. Canadian Association of Genetic Counsellors. Dutch Association of Genetic Counsellors. French Association of Genetic Counselors. Health Professions Council of South Africa. International Society of Nurses in Genetics. National Society of Genetic Counselors.

rppath.wordpress.com

Genetic Counselling | UK Care Pathway for People with RP

https://rppath.wordpress.com/the-pathway-for-patients/genetic-counselling

UK Care Pathway for People with RP. Mapping a journey for people with retinitis pigmentosa and their families. Terms Used for RP. Your Optician and GP. RP with Other Disabilities. The Hospital and Eye Clinic. Basic Information for GPs. What You Can Do. Basic Information for Teachers. What You Can Do (1). What You Can Do (2). What You Should Know. What You Can Do. Map of the RP Pathway. About RP Fighting Blindness. Understand the nature of the condition in the family. Help families make decisions. The gen...

genomics.research.southwales.ac.uk

About the GPU, Genomics Policy Research Unit

http://genomics.research.southwales.ac.uk/about

Genomics Policy Research Unit. The Genomics Policy Unit ( GPU. Is one of the longest established research groups studying the ‘new genetics’ in existence in the UK. Since 1996 we have been conducting a range of innovative research programmes that relate to the impact of genomic technologies on health and social care, particularly in relation to the implications for professionals and the public. The GPU. All Wales Medical Genetics Service. Association of Genetic Nurses and Counsellors. Staff and student l...