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Stichting Amy and Friends — Cockayne Syndroom Support, Nederland

Cockayne Syndroom Support, Nederland

http://www.amyandfriends.net/

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CONTACTS AT AMYANDFRIENDS.NET

Stichting Amy And Friends, Nederland

Mark Veron

Heilige●●●●●●●raat 14

EE●●EL , 5521 LC

NL

31.0●●●●8789
ma●●●●●●@gmail.com

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Stichting Amy And Friends, Nederland

Mark Veron

Heilige●●●●●●●raat 14

EE●●EL , 5521 LC

NL

31.0●●●●8789
ma●●●●●●@gmail.com

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Stichting Amy and Friends — Cockayne Syndroom Support, Nederland | amyandfriends.net Reviews
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Cockayne Syndroom Support, Nederland
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1 cockayne syndroom
2 de stichting
3 over amy
4 over friends
5 nieuws
6 evenementen
7 vlindertuin
8 webshop
9 sponsors
10 doneren
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Stichting Amy and Friends — Cockayne Syndroom Support, Nederland | amyandfriends.net Reviews

https://amyandfriends.net

Cockayne Syndroom Support, Nederland

INTERNAL PAGES

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1

Vlindertuin

http://www.amyandfriends.net/vlindertuin

Voor altijd in ons hart…. Abriella (4,5 jaar). Kyle 30-03-16 (28 jaar). Tasha ( 9 jaar). Chanelle 20 maart 2016. Samantha ( 13 december 2015, 13 jaar). Fiona ( 10 december 2015, 3 jaar). Shianne ( 19 maart, 30 jaar). Lacie 10-12-'14 (4 jaar). Rebekah 6 sept. '14 (31 jaar). Matthew 2 sept. '14 (7 jaar). Kayden 25-08-'14 (4 jaar). Ivy 7 juli 2014. Nathanael 3 juni 2014 (5 jaar). Javier 13 mei (26 jaar). Mary 16 april 2014. Thomas, 19-02-2014 (9 jaar). Caleb * 17-02-2010 - 15-02-2014.

2

Stichting Amy and Friends, Nederland

http://www.amyandfriends.net/over-de-stichting

Stichting Amy and Friends, Nederland. 8211; Wereldwijd meer bekendheid te werven voor Cockayne Syndroom. Door middel van deze website, social media zoals Facebook en Twitter, door het verspreiden van informatiefolders en door het organiseren diverse publieke en fondsenwervende activiteiten, hopen we meer aandacht te krijgen voor deze zeldzame, erfelijke aandoening. 8211; Meer bekendheid werven voor Cockayne Syndroom bij artsen en wetenschappers. 8211; Emotionele en praktische en daar waar noodzakelijk en...

3

Links

http://www.amyandfriends.net/links

Hieronder vindt u een overzicht van links naar interessante websites. Cockayne Syndroom support websites:. Facebook Amy and Friends Cockayne Syndroom support, NL. Twitter Amy and Friends Cockayne Syndroom support, NL. Website Amy and Friends Cockayne Syndrome support, UK. Facebook Amy and Friends Cockayne Syndrome support, UK. Twitter Amy and Friends Cockayne Syndrome support, UK. Website Volwassenen, Kinderen en Stofwisselingsziekten (VKS), Cockayne Syndroom. De info op deze pagina is niet up to date).

4

Cockayne Syndroom

http://www.amyandfriends.net/cockayne-syndroom

Wat is Cockayne Syndroom? Enkele veel geziene symptomen en problemen bij kinder. Niet alle symptomen hoeven bij elk kind aanwezig te zijn. Ook zijn de symptomen niet altijd meteen bij de geboorte aanwezig, maar deze kunnen ook later ontstaan.). 8211; Extreme overgevoeligheid voor zonlicht. 8211; Cataracts (grijze staar). 8211; Ernstige groeiachterstand. 8211; Microcefalie (klein hoofd). 8211; Verstandelijke beperking. 8211; Diepliggende ogen. 8211; Relatief grote, laag ingeplante oren. Het erfelijkheidsp...

5

Evenementen

http://www.amyandfriends.net/category/evenementen

KLIK OP TITEL OM VOLLEDIG BERICHT TE LEZEN […]. Steun onze lopers van Vierdaagse Team Amy and Friends! Juli 2016: Steun Vierdaagse Team Amy and Friends! Van 19 t/m 22 juli a.s. gaan de onderstaande personen de uitdaging aan om tijdens de 100e editie van de Nijmeegse Vierdaagse samen MEER DAN 1000 KILOMETER! Te wandelen voor Stg. Amy and Friends Cockayne Syndroom support. Stg. Amy and Friends kent geen betaalde banen. Het uiteindelijk […]. Een zeer geslaagde derde Amy and Friends familie- lotgenotendag!

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AmyAndFriends.com is for Sale! @ DomainMarket.com, Maximize Your Brand Recognition with a Premium Domain

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0,00 €*. Telefonische Unterstützung und Beratung unter:. Mo-Fr: 09:30 -13:00 u. 15:00 - 18:30 Uhr. Sa: 09:30 - 14:00 Uhr. Alle Preise inkl. gesetzl. Mehrwertsteuer zzgl. Versandkosten. Und ggf. Nachnahmegebühren, wenn nicht anders beschrieben.

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Amy and Friends, Nederland (Stichting) | geef.nl

Maak je eigen actie pagina. Hoe het precies werkt. Maak je eigen actie pagina. Inloggen als aangesloten goed doel. Kom in actie voor Amy and Friends, Nederland (Stichting). Stg Amy and Friends Ne. Van 20 april 2015 tot 31 mei 2015. Hallo allemaal, Mijn naam is Hans Teijn. Ik ben de vader van Demi Teijn. Demi heeft Cockayne Syndroom. Ik loop de 7 km. tijdens de Nesseloop op 30 mei a.s. in Rotterdam voor stichting Amy and Friend. Lees verder ». 204% - € 510,-. Stg Amy and Friends Ne. Lees verder ». Hallo a...

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Stichting Amy and Friends — Cockayne Syndroom Support, Nederland

Welkom op de website van Stichting Amy and Friends, Cockayne Syndroom Support, Nederland. 386083 10150501872863375 1446982041 n. 424035 10150610243213375 336902311 n. 375787 10151111122143375 1035322523 n. 397896 10151473514023375 964578279 n. 58797 10151440910173375 338836299 n. 522572 10150672601523375 1672588316 n. 522910 10150668900378375 251991925 n. 530547 10150676834028375 1865569730 n. 393997 10150500591693375 1935789017 n. Hartelijk dank voor uw bezoek aan deze site. Met vriendelijke groet,.

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Amy and Friends - Cockayne Syndrome Support

Amy and Friends - Cockayne Syndrome Support. My Time to Be Me. Welcome to Amy and Friends - Cockayne Syndrome Support. Who are Amy and Friends? Amy and Friends have an annual family/medical conference. This is attended by specialists from across the globe. Our children and families have the most amazing time! We hold a weekly siblings club called My Time To Be Me. This group is being piloted in the North West UK area and we hope to open similar clubs in the near future!

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Amy and Friends Show – Talk Radio & Information Show

Amy and Friends Show. Amy and Friends Show. Talk Radio and Information Show. March 31, 2017. To get the latest update of me and my works.

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Amy and Fur Crew

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Amy & Gabriel are Getting MARRIED! – RSVP Site

Please join us on the joyful occasion of our wedding. May 5th 2017 – 4:00pm. Church of the Pacific. Ceremony and Reception Details. We will gather at the Church of the Pacific at 4pm and shuttle/carpool across the highway and up Kapaka St. a very short drive to our outdoor ceremony location. After the ceremony, we will all return to the reception hall next to the Church of the Pacific for the party! Join us for dinner around 6pm, music, and celebration! Thank you for thinking of us,. RSVP / Contact Us.