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ArchAngel MLD Trust

What is Metachromatic Leukodystrophy (MLD)? Metachromatic leukodystrophy (MLD) is a rare genetically inherited disease that affects nerves, muscles, other organs, and behaviour. MLD is a rare disease affecting about one in 100,000 people, and there is currently no cure for MLD. More information about MLD and an MLD FAQ What we are doing? ...

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ArchAngel MLD Trust | archangel.org.uk Reviews
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What is Metachromatic Leukodystrophy (MLD)? Metachromatic leukodystrophy (MLD) is a rare genetically inherited disease that affects nerves, muscles, other organs, and behaviour. MLD is a rare disease affecting about one in 100,000 people, and there is currently no cure for MLD. More information about MLD and an MLD FAQ What we are doing? ...
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2 about mld
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ArchAngel MLD Trust | archangel.org.uk Reviews

https://archangel.org.uk

What is Metachromatic Leukodystrophy (MLD)? Metachromatic leukodystrophy (MLD) is a rare genetically inherited disease that affects nerves, muscles, other organs, and behaviour. MLD is a rare disease affecting about one in 100,000 people, and there is currently no cure for MLD. More information about MLD and an MLD FAQ What we are doing? ...

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1

ArchAngel MLD Trust | Products

http://archangel.org.uk/shop

Showing all 5 results. Sort by price: low to high. Sort by price: high to low. MLD Awareness Wristband (Large). MLD Awareness Wristband (Medium). MLD Jellycat Keyring Ballet Bunny. Official MLD Campaign T-Shirt. There are no upcoming events at this time. MLD Jellycat Keyring Ballet Bunny. Two Peas in a Pod. The wait is over. You could save a life. MLD is a rare disease. Of the population are affected. MLD on Wikipedia… more. ArchAngel MLD Trust, 59 Warwick Square, Pimlico, London SW1V 2AL, UK.

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ArchAngel MLD Trust | Donation Page

http://archangel.org.uk/donate

Please make cheques payable to ArchAngel MLD Trust and post to: ArchAngel MLD Trust, 59 Warwick Square, Pimlico, London SW1V 2AL. Donate by Bank Transfer / Online Banking. Archangel MLD Trust Sort code: 60 19 26 Account number: 29119170. Credit Card Donation Online. One-off or recurring donations. Alternatively, you can purchase official campaign merchandise. To help raise money and spread awareness of MLD. MLD is a rare disease. Of the population are affected. MLD on Wikipedia… more.

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ArchAngel MLD Trust | Team Page

http://archangel.org.uk/team-page

The ArchAngel Trust is managed by a dedicated team of trustees:. About the ArchAngel MLD Trust. The Trust was founded by the community in Ava's school. She is a much loved girl and her family is part of our children's lives. The bravery of Ava's parents to look for a cure has been inspiring and we have come together to fulfill their wishes of supporting those who are working relentlessly to find a cure for rare and terminal diseases. What is the ArchAngel MLD Trust? Can I organise a fundraiser? There are...

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ArchAngel MLD Trust | What is MLD?

http://archangel.org.uk/about-mld

What is Metachromatic Leukodystrophy (MLD)? Is a rare genetically inherited disease that affecting 0.001% of the population. There are 3 forms to the disease, all of which result in life-long disability or death. In plain speak, is a rare disease affecting about one in 100,000 people, where the lack of an important enzyme called arylsulfatase A causes your brain and nervous system to progressively lose function affecting: speech, memory, movement, sight, hearing, touch, eating and swallowing. A US-based ...

5

ArchAngel MLD Trust | Grants

http://archangel.org.uk/grants

At ArchAngel we understand that caring for a child affected by MLD presents many challenges, and we are now in a position to award private grants to individual families. We hope to help families primarily in the following areas:. Equipment not provided by the NHS. Intensive blocks of physical or occupational therapy. Equipment not provided by the NHS. Intensive blocks of physical or occupational therapy. Contributions for one-off items/assistance for individual families. MLD is a rare disease. ArchAngel ...

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To raise funds for. Thank you for supporting. Thank you for your support. The reason for the ArchAngel Trust: A lovely nine year old named Ava. Through research, her parents discovered the San Raffaele Hospital in Milan, Italy. Where a ‘Gene Therapy’ research study. In January 2014 Ava was accepted as the 12th child in the world to participate in the trial and her transplant was successful. Her DNA has been corrected and her new cells are actively halting progression of the disease. Following the...The t...

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