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Army of Us | We fight Rett syndrome

We are a not-for-profit charity organisation dedicated to fighting Rett syndrome.

http://www.armyofus.org/

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Army of Us | We fight Rett syndrome | armyofus.org Reviews
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We are a not-for-profit charity organisation dedicated to fighting Rett syndrome.
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1 resources
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3 and twitter
4 or contact us
5 loss of speech
6 apraxia or dyspraxia
7 extreme anxiety
8 gastrointestinal issues
9 newly diagnosed
10 cookies
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Army of Us | We fight Rett syndrome | armyofus.org Reviews

https://armyofus.org

We are a not-for-profit charity organisation dedicated to fighting Rett syndrome.

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shop.armyofus.org shop.armyofus.org

Army of Us Online Store | Together Stronger

Army of Us Online Store. Army of Us Temporary Tattoo. Our online store is the place to come to get Army of Us quality branded items at a great price. Want your own page to help boost your fundraising? Please visit our UK Store. For prices in pounds sterling and local shipping.

INTERNAL PAGES

armyofus.org armyofus.org
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Army of Us | About us

https://armyofus.org/about-us

Shop (opens in a new window). Army of Us is not-for-profit company limited by guarantee, created to help anyone affected by Rett syndrome. Specifically, we have the following aims and objectives:. Raise the profile and awareness of Rett syndrome and related conditions through websites, social media and other activities. These funds can be used for an individual's needs, or donated to charities involved with Rett syndrome or related conditions. Or by post here:. View our terms and conditions.

2

Army Of Us Blog -

https://armyofus.org/blogs

Army Of Us Blog. More about the #REALLIFERETT Campaign. Hope is in the heart of us. Rett Communication: A Mother’s Experience. On A worn path. On A worn path. On Keep looking forward. In October we called our awareness campaign the HOPE campaign, because we wanted to talk about the things that we are hopeful about. We wanted to talk about how all those little things are slowly coming together, helping us progress, and how every day we are beating Rett syndrome a little bit at a time. As a community we ca...

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ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Seizures

http://ourcarolinelily.blogspot.com/2014/06/seizures.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Friday, June 13, 2014. Life is unpredictable. That much I knew. I just never expected there would be these many sharp turns. Rett Syndrome is relentless, throwing one obstacle after another. And just as we start to catch our breath, a new challenge creeps up around the corner. I'm exhausted. This is not the life I thought...

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Toy stores and Rett Syndrome don't mix

http://ourcarolinelily.blogspot.com/2013/12/toy-stores-and-rett-syndrome-dont-mix.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Sunday, December 22, 2013. Toy stores and Rett Syndrome don't mix. Here’s what goes through my head when I visit a toy store. This is not my world. I always start by telling myself the same thing…maybe if I walk around long enough, I’ll somehow magically find a toy Caroline may. Sigh, I don't want to reinforce gender role...

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : My "new normal" is not what I expected

http://ourcarolinelily.blogspot.com/2013/11/my-new-normal-is-not-what-i-expected.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Saturday, November 2, 2013. My "new normal" is not what I expected. When Caroline was diagnosed, I understood that everything in my life would be very different from that point on. I made a few assumptions.but life is always full of surprises. Subscribe to: Post Comments (Atom). What is Rett Syndrome? Toy stores and Rett ...

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Running away from Rett Syndrome...until it catches up with me again

http://ourcarolinelily.blogspot.com/2013/09/running-away-from-rett-syndromeuntil-it.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Sunday, September 22, 2013. Running away from Rett Syndrome.until it catches up with me again. Focus on the positive. Focus on the positive. Be grateful for what you have (which is a lot). We are going to be happy despite Rett Syndrome. This mantra runs like broken record inside my head. September 23, 2013 at 4:03 PM.

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Yes, she is in there

http://ourcarolinelily.blogspot.com/2013/08/you-can-see-wheels-turning.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Sunday, August 18, 2013. Yes, she is in there. Some may think my relationship with Caroline is one-sided. Here's a little glimpse of the way Caroline connects with us. Her eyes and facial expressions say so much. August 20, 2013 at 8:32 PM. I think the same a lot of the time! I talk to Lucy ALWAYS! What is Rett Syndrome?

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Some dreams are still possible

http://ourcarolinelily.blogspot.com/2013/09/some-dreams-are-still-possible.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Thursday, September 26, 2013. Some dreams are still possible. Almost two years ago, I wrote a post on this blog titled " what would Caroline say? I savor every word she says. And I hope we can eventually kick that door wide open. Caroline's main page (each symbol opens up options for more words). What is Rett Syndrome?

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Ending the year on a bittersweet note

http://ourcarolinelily.blogspot.com/2012/12/ending-year-on-bittersweet-note.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Thursday, December 20, 2012. Ending the year on a bittersweet note. This past year was marked by exciting progress, some painful realizations, and a new level acceptance. Overall, I think we had a good year. And I don't take any of it for granted. Caroline still tries to talk (December 2012). Caroline can now make choices...

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : Communication breakthrough!

http://ourcarolinelily.blogspot.com/2012/10/communication-breakthrough.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Sunday, October 7, 2012. Something wonderful happened this weekend. Caroline is beginning to express "yes" and "no" with switches and cards! While working with Linda Burkhart. On the PODD communication system. Caroline made her own choices for the first time! Also, please click here. Here's Caroline "babbling" for the fir...

ourcarolinelily.blogspot.com ourcarolinelily.blogspot.com

Making our way through Rett Syndrome : December 2013

http://ourcarolinelily.blogspot.com/2013_12_01_archive.html

Making our way through Rett Syndrome. My name is Marta and I am Caroline Lily’s mother. In June 2011, at 17 months, Caroline was diagnosed with Rett Syndrome. The Road to the Diagnosis. Sunday, December 22, 2013. Toy stores and Rett Syndrome don't mix. Here’s what goes through my head when I visit a toy store. This is not my world. I always start by telling myself the same thing…maybe if I walk around long enough, I’ll somehow magically find a toy Caroline may. Sigh, I don't want to reinforce gender role...

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