cycletothecircle.wordpress.com
DSC_0321 (2014_09_17 21_44_43 UTC) | Cycle to the Circle
https://cycletothecircle.wordpress.com/2015/01/09/all-the-miles-in-between/dsc_0321-2014_09_17-21_44_43-utc
Cycle to the Circle. Duncan and Rod's Arctic Journey for Batten Disease. DSC 0321 (2014 09 17 21 44 43 UTC). December 11, 2014. All The Miles In Between. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Notify me of new comments via email.
cycletothecircle.wordpress.com
Bears Kill You | Cycle to the Circle
https://cycletothecircle.wordpress.com/2015/07/10/bears-kill-you
Cycle to the Circle. Duncan and Rod's Arctic Journey for Batten Disease. July 10, 2015. July 10, 2015. 8220;So meet a bear and take him out to lunch with you. And even though your friends may stop and stare. Just remember that’s a bear there in the bunch with you. And they just don’t come no better than a bear” (Lyle Lovett). I thought it helpful to let you know where we’re at with preparations since we leave in 16 days. Would they even know the process? Add to this that bears like nothing better than a ...
battlebatten.com
What is Batten | Battling Batten
https://battlebatten.com/what-is-batten
With Freddie and Louie. Skip to primary content. Donate to CLN5 research and equipment. Donate to CLN5 research through BDFA. Batten disease was first identified in 1903. By a paediatrician named Spielmeyer-Vogt-Sjogren-Batten. Children who are born with Batten disease will appear healthy. But later develop epilepsy; lose their eye sight; speech ability and cognitive and motor abilities. The disease is fatal. A rare disease that affects 150-200 children and young adults in the UK. Only 1-2 children are d...
pediatricmetabolism.wordpress.com
Links | CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM
https://pediatricmetabolism.wordpress.com/link
CLINICAL PEDIATRIC ENDOCRINE AND METABOLISM. 124; Comments RSS. Information and Education Programme for Professional. Fight Against AIDS, Save The Children Indonesia. Poems and Songs For Children. Save Our Children from Smoke. Save Our Children from Smoke. Clinical Pediatric Rehabilitation Medicine. Juvenile Diabetes Research Foundation International. National Organization for Rare Disorders. Alliance of Genetic Support Groups. Acorns Children’s Hospice. Batten Disease Family Association (BDFA). Maple Sy...
altanacharitabletrust.com
THE BENEFICIARIES | Altana Charitable Trust
http://www.altanacharitabletrust.com/content/charity-list
About Our Charitable Book. We increase the reach of your gesture by passing on your full donation to a wide range of charities. Please see the current list of charity beneficiaries below. Against the Odds Foundation. Amnesty International is a global movement of 2.8 million supporters, members and activists in more than 150 countries and territories who campaign to end grave abuses of human rights. Batten’s Disease Foundation. Child’s i Foundation. In Uganda poverty, disease and violence are rife –...
ncl-netz.de
NCL-Netz, Informationen rund um NCL
http://www.ncl-netz.de/links.htm
Informationen rund um NCL. Für Betroffene, Angehörige und Ärzte. Hier finden Sie weitere Informationen zum Thema. Universitätsklinikum Hamburg-Eppendorf, Klinik für Kinder- und Jugendmedizin. Sitz des NCL-Netzes mit NCL-Spezialsprechstunde. Vereine, Verbände und Stiftungen. NCL Gruppe Deutschland e.V. Elternverein NCL-betroffener Familien in Deutschland. Nächstenliebe e.V. Gemeinnützige Stiftung gegen die Stoffwechselkrankeit NCL. Batten Disease and Research Association (BDSRA). Dr Angela Schulz -.
ncl-stiftung.de
NCL-Stiftung - Links
http://www.ncl-stiftung.de/main/pages/index/p/297
Links (Verknüpfungen zu externen Web-Seiten). Beyond Batten Disease Foundation. Brains for Brain Foundation. Ein Herz für Kinder. Stiftung Kindness for Kids. NCL-Gruppe Deutschland e.V. Beschreibung der Krankheit NCL). Internetportal mit Kliniken-Datenbank, med. Informationen usw.). National Organization for Rare Disorders. Ständige Ansprechpartner für Ärzte und Patienten). Office of Rare Diseases. Seltene Krankheiten und Medikamente für seltene Krankheiten). 49 (0) 40-69 666 74-10. 49 (0) 178-34 160 57.
kyranrichmondfundraising.co.uk
Battens
http://kyranrichmondfundraising.co.uk/battens.html
Kyran's Story - Battens Disease. For further information visit the. About Batten Disease Page. Batten Disease is the common name for a group of diseases called the Neuronal Ceroid Lipofuscinoses (NCLs). They are rare, genetic, progressive neurodegenerative diseases that occur in children and adults worldwide. Batten Disease is the main paediatric neuro-degenerative disorder in the UK. Age at onset and first symptoms. Symptoms usually begin at early school age. Sleep disturbance and unrest. Diagnostic inv...
justsingchoir.org
Just Sing Choir Charities
http://www.justsingchoir.org/pages/JSC%20charities.html
Since the Just Sing Choir was formed, it has raised a considerable amount of money for the following charities:. When you wish upon a Star. In July 2015 we raised 820 for charity:. At our Christmas concert, we are supporting the BDFA and Ollie's Army a local Charity based in Poynton. He Batten Disease Family Association.
shca.info
Specialised Healthcare Alliance: Members
http://www.shca.info/members.php
Vice Chairs: Baroness Redfern and Lord Sharkey. AHUSUK – atypical Haemolytic Uraemic Syndrome. 8211; the Association for Multiple Endocrine Neoplasia Disorders. 8211; Arthritis and Musculoskeletal Alliance. Association for Glycogen Storage Diseases. 8211; British Association for Parenteral and Enteral Nutrition. Batten Disease Family Association. 8211; Eating Disorders Association. Behcet’s Syndrome Society. 8211; premature baby charity. Bone Cancer Research Trust. British Kidney Patient Association.
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