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my life with chronic illness
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Tilt Table Test Tuesday | the best liar you know
https://bestliaryouknow.wordpress.com/2016/10/05/tilt-table-test-tuesday
The best liar you know. My life with chronic illness. Tilt Table Test Tuesday. Inspired by BC Becky. I’m going to write this post in a different way, eliciting a more first person, autoethnographic, style. Since it was only yesterday, this test is still relatively fresh in my mind, so we’ll see how it goes. I am, by far, the youngest person there; and soon I am the only person there. The gentleman I made the trip with sweetly apologizing for getting to go first while I still had to wait. That feeling whe...
Wise Words | the best liar you know
https://bestliaryouknow.wordpress.com/2016/10/16/wise-words
The best liar you know. My life with chronic illness. 8230; →. Here are some incredibly wise words from Scottx5. He shared these in a comment, but they deserve to be more prominent. And repeated frequently. Illness has a lot to do with sense making. That first you are a person and that matters. And you are a person with the ability to reason and solve things and even if the answer doesn’t fix you back to where you want to be, you are an active participant. These words pull together my whole life.
Weight | the best liar you know
https://bestliaryouknow.wordpress.com/2016/09/21/weight
The best liar you know. My life with chronic illness. Chronic Illness: The Munchausen Effect. Tilt Table Test Tuesday →. As of this morning I weigh 114.2lbs. I weighed 120lbs in early July. And 134 in January (and the entire year before that). I mean, yes, I am not bloated and distended like I am pregnant anymore, and I am glad about that. But I want my stomach to look flat because I have good abdominal muscles, not because it’s slowly sinking into itself. One thought on “ Weight. Understand the part abo...
Today | the best liar you know
https://bestliaryouknow.wordpress.com/2016/10/13/today
The best liar you know. My life with chronic illness. Tilt Table Test Tuesday. Wise Words →. My world isn’t spinning, but it definitely isn’t still either. It’s a weird state of dizziness that I don’t know how to describe. I’m not lightheaded. Actually, my head feels like it weighs a ton. But it does feel like a balloon, far disconnected from the rest of my body. I’m uncoordinated. My body awareness is minimal. I’ve run into everything today, and toppled over standing still. 3 thoughts on “ Today. All th...
bmbod | the best liar you know
https://bestliaryouknow.wordpress.com/author/bmbod
The best liar you know. My life with chronic illness. I want to resist. To fight. The world around me seems to be erupting in flames. Burning. Burning with hatred and fear. Burning with passion and resilience. Burning. Every day I watch the fire touch every aspect of my life, of humanity. And deep within me I feel the fire catch. A passion for humanity; a visceral need for humanity. And I don’t know how to channel it. One breath at a time as I move forward. Its been a long time since I’ve written h...
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Educational Game: Quotable Quotes | Creative Cairo
https://miralkhafagy.wordpress.com/2016/12/08/educational-game-quotable-quotes
Educational Game: Quotable Quotes. Overview of Quotable Quotes. To pick the type of quote you must figure otu, you spin a spinner with labeled subjects: Science theory, math theory/formula, English concepts, geography. You have cards with the quotes; each card has a word from the quote. Use strategy to choose card wisely. If you get the quote on the first time, you get a token. If you know who said the quote, you get a token. Each word is 2 points. Clashing/overlapping quotes are canceled with each other.
A note from me | Scottx5's Blog
https://scottx5.wordpress.com/2015/01/13/a-note-from-me
A note from me. The branch clinic oncologists have been quite successful at sustaining my low opinion of them and now that the Patient Concerns person who represents the whole Provincial institute has shut me down I’m going into no-speaking mode. They want me to be silent, “respectful” and submissive and do it by constantly judging my comments, “correcting” my understandings and shitting on my feelings, so shut-down time. To my medical care-takers. January 13, 2015 at 6:38 AM. Always Apologizing ». I rea...
Change | Scottx5's Blog
https://scottx5.wordpress.com/2015/04/12/change
This blog inspired by things said by Rebecca Matos at her blog http:/ thesmallc.com/2015/04/09/to-ignore-or-to-educate-that-is-the-question/. And Maha Bali’s blog “Pushing: A Matter of Perspective and Faith”. Http:/ blog.mahabali.me/blog/uncategorized/pushing-a-matter-of-perspective-faith/#respond. Illness isolates us, we withdraw from the normal social exchange, become more fragile and when we try to explain the hurt raises up and chokes us or comes out in an emotional over-reaction. Right now my choice...
Broken ties | Scottx5's Blog
https://scottx5.wordpress.com/2015/03/10/broken-ties
This call got me completely shut down. So I’m finished talking to the system. It’s obvious my unwillingness to be ignored has broken their patience with me. I’m just trouble and need to go away–fair enough. By the way, this is a good thing:-). March 10, 2015 at 5:31 PM. Or leave a trackback: Trackback URL. Inspiration for my Blogs ». On March 10, 2015 at 6:57 PM. Used to be nurses could do more but the dehumanized system won’t let. From: Scottx5’s Blog To: vcrary@yahoo.com. On March 10, 2015 at 10:43 PM.
Not Easy Yet | Scottx5's Blog
https://scottx5.wordpress.com/2015/04/26/not-easy-yet
Last week we visited my younger daughter and went out for dinner. It wasn’t fun and even though I’m done with chemo and clear of cancer the fact is I’m twisted up inside and damn tired of being told to “get over it.” Or the latest, “we’re all sick of you feeling sorry for yourself.”. Blog Impact Survey a Reminder. Just a quick reminder that I’m doing a study on how breast cancer blogs impact those who read. So if you are reading this now please take a couple of minutes to complete the survey. The mor...
invisibleillnessbattle.wordpress.com
No One Talks About the Fear | Then Everything Changed
https://invisibleillnessbattle.wordpress.com/2015/04/18/no-one-talks-about-the-fear
A glimpse of life with and without an Invisible Illness. My Story, The Abridged Version. She replied, I wish I had a stroke as an excuse for my short-term memory issues! What does it mean to live? No One Talks About the Fear. April 18, 2015. Turns out, this was a good question. Who wouldn’t want to take a walk? Should I have only walked every other day? Would it have mattered? Suppose this flare lasts for three days and on the fourth I actually feel really good, should I brave a walk? How is my mood?
Walk away | Scottx5's Blog
https://scottx5.wordpress.com/2015/07/09/walk-away
This posting just doesn’t want to start. I’m tired of my problems with the medical system and have to rethink everything. Here’s what I have for now. Been having trouble blogging about my cancer experience I think because rehashing the emotions I went through were not resolved. They keep coming back as strong as ever. Every time I relive the memories the shut-down and rejection my so called care-givers repeated month after month returns. From something my friend Rebecca Matos said at her blog the small c.
Leaving | Scottx5's Blog
https://scottx5.wordpress.com/2015/02/20/leaving
What’s it like to leave a group? Give up defending yourself? Sometimes you can’t be understood no matter what you say because you are inarticulate, tired of explaining yourself, won’t play. And you get too comfortable and need to drop that comfort. Or maybe you never belonged and have been fooling yourself? February 20, 2015 at 5:58 PM. Or leave a trackback: Trackback URL. Broken ties ». On February 20, 2015 at 10:30 PM. On February 21, 2015 at 5:35 AM. Or maybe language as a weapon? In a way this breaki...
Different | Scottx5's Blog
https://scottx5.wordpress.com/2015/01/24/different
This is supposed to be a Provincial medical system but city and country services are not comparable. At least in the country I know my treatment will be sloppy, unprofessional and performed by people I don’t trust or like. But it beats city people who are the same type with better manners who will kill you just the same. January 24, 2015 at 9:35 PM. Or leave a trackback: Trackback URL. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. My life wit...
Seven reasons why Endo-Fatigue causes so much trauma to its sufferers – survivingendometriosis
https://survivingendometriosis.com/2014/11/25/seven-reasons-why-endo-fatigue-causes-so-much-trauma-to-its-sufferers-2/comment-page-1
My battle with endometriosis. About / Contact us. Seven reasons why Endo-Fatigue causes so much trauma to its sufferers. The Many Faces of Endometriosis. Seven reasons why Endo-Fatigue causes so much trauma to its sufferers. November 25, 2014. Have you recently been tired? Have you recently been endo-tired? If yes, you’re very likely to know the difference. Explaining how you feel to the rest of the world is a different matter altogether. I’m too busy to ‘rest’ like you do. It’s accepted that the reasons...
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the best liar you know | my life with chronic illness
The best liar you know. My life with chronic illness. I’m so glad I see my therapist tomorrow. I’ve never considered myself anxious, but right now the anxiety is almost paralyzing. I’m too stunned to even cry. Too scared to plan anything for the future; but I do know I want to make it better, brighter, not what is staring down the barrel at us right now. To everyone reading, remember, you matter. We are in this together. I will fight for you. 8230;just as soon as I can. Thank you for sharing them Scott!
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