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Living With DMD - Not The End

Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD).

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Living With DMD - Not The End | bostongimp.blogspot.com Reviews
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Living With DMD - Not The End | bostongimp.blogspot.com Reviews

https://bostongimp.blogspot.com

Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD).

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1

Living With DMD - Not The End: February 2011

http://bostongimp.blogspot.com/2011_02_01_archive.html

Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Sunday, February 20, 2011. 43 Years Of Kicking DMD's Arse! After getting positioned in my wheelchair, one of the RNs came in and put a cardboard crown on my head. It was similar to the one you used to get at Burger King. I'm not sure if they still have them. Anyhow, the banner on my portable ventilator soon became my sash. I was king for a day minus the power one wields. I've spent a good...

2

Living With DMD - Not The End: February 2012

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Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Monday, February 6, 2012. Yes, I certainly realize that his wife and 2 healthy daughters as well as his auto detailing and online business come first and I would NEVER ask to be put before any of it. However, is it really that difficult to put aside a little time to visit me? This is a problem why? Is 20 minutes somehow not considered a visit? I'm sorry, but his excuse is in a word LAME.

3

Living With DMD - Not The End: A Very Special Visit

http://bostongimp.blogspot.com/2011/08/very-special-visit.html

Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Wednesday, August 17, 2011. A Very Special Visit. This past Sunday August 14th was a special day for me. Why, do you ask? For those of you who don't know who Matt Barlow is, he was the vocalist for Iced Earth from (1995-2003 and 2007-2011). He officially retired from Iced Earth on August 6th after the band's awesome performance at the Wacken Open Air Festival in Germany. In March 28th I s...

4

Living With DMD - Not The End: March 2011

http://bostongimp.blogspot.com/2011_03_01_archive.html

Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Tuesday, March 8, 2011. Subscribe to: Posts (Atom). I'm 45 and have Duchenne Muscular Dystrophy (DMD) and I'm ventilator dependent. I have lived in a rehab hospital since August, 14 1990. View my complete profile. The word from Old Scituate Light. A Big January Tide. How To Heal Your Gut and Get Back Into Shape. Part 2: Nepal and the Muscular Dystrophy Foundation Pictures.

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Living With DMD - Not The End: August 2011

http://bostongimp.blogspot.com/2011_08_01_archive.html

Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Wednesday, August 17, 2011. A Very Special Visit. This past Sunday August 14th was a special day for me. Why, do you ask? For those of you who don't know who Matt Barlow is, he was the vocalist for Iced Earth from (1995-2003 and 2007-2011). He officially retired from Iced Earth on August 6th after the band's awesome performance at the Wacken Open Air Festival in Germany. In March 28th I s...

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Medical | My Unfinished Story

http://toms.page.us/category/medical

Views from a Somewhat Not so Ordinary Life. Archive for the ‘Medical’ Category. June 30th, 2010 No Comments. Back in April I responded to a posting on the DMD Pioneers mailing list titled “What the Heck is Glossopharyngeal Breathing? 8221; stating that it was a technique also called “frog breathing” and I have been using it for years. The next day I was contacted to write an article for “Ventilator Assisted Living“. When I […]. 1, 2, 3… Yank! March 27th, 2009 1 Comment. The ‘Manny’ Event. Middot; Design ...

nodakwheeler.blogspot.com nodakwheeler.blogspot.com

Mark in Montana: March 2010

http://nodakwheeler.blogspot.com/2010_03_01_archive.html

Sunday, March 28, 2010. I've been awaiting a response on my journalism school application and last Wednesday I received a long white envelope in the mail from the university. My heart was racing as my nurse opened the envelope and began reading. She started saying something about congratulations and I let out a yell. I sat stunned in my van while learning I'll be an official journalism student this fall! I can't thank you enough. Saturday, March 13, 2010. A couple weeks ago we were given probably the har...

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Mark in Montana: September 2009

http://nodakwheeler.blogspot.com/2009_09_01_archive.html

Thursday, September 10, 2009. I’m happy to report that I independently took my own pictures on Tuesday. It has taken weeks of planning and research to get to this point but the wait has been worth it. You may be wondering how this is possible. Well here’s my setup. There are a few people I have to thank for making this all possible. Dick at Conceptus Remote Switches. For letting me demo the bite switch. Scott Sands. School has gotten off to a quick start. It’s hard to believe that two weeks are...Student...

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Mark in Montana: July 2010

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Thursday, July 08, 2010. Life here in Missoula has slowed down after summer school wrapped and I've started enjoying summertime. It feels good to have had a successful summer class and there was so much I was able to learn. Hope everyone's summer is going great and hopefully I'll be back with another update real soon. Subscribe to: Posts (Atom). Missoula, Montana, United States. Student journalist, vent user, disability activist, pugaholic. View my complete profile. Adventures of Carter Blaze.

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Mark in Montana: August 2009

http://nodakwheeler.blogspot.com/2009_08_01_archive.html

Monday, August 31, 2009. The sip and puff pole was in for repair so I didn't make an attempt. The good news is that Montech is working at getting in a switch operated automatic rod and reel setup. I can't wait to give it a test drive when it comes in. Thanks to the folks at Summit and Montech for their efforts at making this outing possible. Monday, August 24, 2009. The most troubling thing to me about living with a progressive disease is the lack of recreational outlets. For many the desire is there...

nodakwheeler.blogspot.com nodakwheeler.blogspot.com

Mark in Montana: January 2010

http://nodakwheeler.blogspot.com/2010_01_01_archive.html

Sunday, January 31, 2010. I find it funny every time I think an easy semester is upon me, it turns out to be the opposite. Don't get me wrong, I'm glad to be done with break and I look forward to the endeavors ahead. The new semester will continue to teach me many things and it should put me in good position as I apply to the professional program. Photojournalism will be my big challenge but I'm optimistic that I will become a decent photographer. We'll be spending the beginning of the semester learn...

nodakwheeler.blogspot.com nodakwheeler.blogspot.com

Mark in Montana: June 2011

http://nodakwheeler.blogspot.com/2011_06_01_archive.html

Saturday, June 25, 2011. Missoula churches look to provide temporary housing for homeless. Man wants unnamed Glacier peak dedicated to his dad, a former park worker. Missoula Moose Lodge to mark century of servi. Former Lucky Diamond casino manager accused of embezzling nearly $400K. EPA awards $1.2M in soil cleanup money to Kalispell, CSKT. UM scholarship created for Japanese students affected by tsunami. Missoula man wins national Older Volunteers Enrich America Award. The range of stories I’ve c...

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Mark in Montana: December 2009

http://nodakwheeler.blogspot.com/2009_12_01_archive.html

Thursday, December 24, 2009. Some of you may be wondering where the heck I've been but here I am alive and kicking after a fantastic fall semester. My school obligations have kept me extremely busy so the blog had to be put on hold temporarily. That being said, here's a wrap up of how the fall semester went for me. I want to wish my family, friends, and blog readers a very Merry Christmas! May you have a wonderful holiday season and best wishes in the new year ahead. Subscribe to: Posts (Atom).

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Mark in Montana: June 2009

http://nodakwheeler.blogspot.com/2009_06_01_archive.html

Thursday, June 25, 2009. Theresa and Dustin left for New York on Monday and are departing Rockford Illlinois as I type this. T and D took along Ugga, Daisy, and Sammy to the Pug Meetup so it is pretty quiet around here. The Pugs here with me are doing good but boy they sure miss their Mommy and Daddy. Theresa is maintaining a blog during their entire trip and you can view it at Adventures of the MT Pug Pack. I'd like to say hello to all the FP folks who will be in Marlboro this weekend! I can’t bel...

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Call 020 7603 1616. Boston Gilmore have been Chartered Surveyors and Commercial Property Agents for West London since 1983. Commercial Property Agents for over 30 years: Use our experience to sell or let your commercial property in London. London Office Space: Let us find you the best office in the best location at the best price. Rent Reviews: We aim to get our clients safely through these encounters, taking every opportunity to improve their position. West London Property Map. Offices in West London.

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Living With DMD - Not The End

Living With DMD - Not The End. Put simply, this blog is a chronicle of living with Duchenne Muscular Dystrophy (DMD). Monday, March 12, 2012. Iced Earth At The Palladium - 03/09/12. Okay, here's my account of going to see one of my favorite Heavy Metal bands; Iced Earth. After getting out of bed, the worst part of the day occurred.WAITING! A little step up to door level and beyond the glass doors, steps leading up and steps leading down. After another 15 minutes in the cold, the door opens and we're led ...

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