bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ

The Life and Times of a Mom On WheelZ. Wednesday, March 21, 2012. Count on us to make a trip to WalMart an adventure. My children have found such interesting ways to take advantage of my wheelz. A 70lb Staffy of one side, and a 50lb monkey with a life-long aversion to walking on the other. Had Destiny been with us, the three of us woulda been chasing her too! Can you imagine this wide-load coming at you? Posted using BlogPress from my iPad. Sunday, March 11, 2012. And death is at your doorstep. Benny bei...

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The Life and Times of a Mom On WheelZ | bouldermomonwheelz.blogspot.com Reviews

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The Life and Times of a Mom On WheelZ. Wednesday, March 21, 2012. Count on us to make a trip to WalMart an adventure. My children have found such interesting ways to take advantage of my wheelz. A 70lb Staffy of one side, and a 50lb monkey with a life-long aversion to walking on the other. Had Destiny been with us, the three of us woulda been chasing her too! Can you imagine this wide-load coming at you? Posted using BlogPress from my iPad. Sunday, March 11, 2012. And death is at your doorstep. Benny bei...

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3 says the momonwheelz

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5 posted by

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The Life and Times of a Mom On WheelZ | bouldermomonwheelz.blogspot.com Reviews

https://bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ. Wednesday, March 21, 2012. Count on us to make a trip to WalMart an adventure. My children have found such interesting ways to take advantage of my wheelz. A 70lb Staffy of one side, and a 50lb monkey with a life-long aversion to walking on the other. Had Destiny been with us, the three of us woulda been chasing her too! Can you imagine this wide-load coming at you? Posted using BlogPress from my iPad. Sunday, March 11, 2012. And death is at your doorstep. Benny bei...

INTERNAL PAGES

bouldermomonwheelz.blogspot.com

1

The Life and Times of a Mom On WheelZ: Pride

http://bouldermomonwheelz.blogspot.com/2012/01/pride.html

The Life and Times of a Mom On WheelZ. Wednesday, January 18, 2012. Benny spent the day on a wonderful playdate with a new friend and his new friend's father. He made this new friend at The Patchwork School. And this was his first playdate from his new school, so it was pretty special! This evening, on my way out to my first Patchwork School "Learning Dialogue", I gave him three assignments to do before bed. When I returned, my son handed me this report. I hope you can read it.it's pretty impressive!

2

The Life and Times of a Mom On WheelZ: Snapshots of "Benny and Destiny's World Homeschool"

http://bouldermomonwheelz.blogspot.com/2012/01/snapshots-of-and-destiny-world.html

The Life and Times of a Mom On WheelZ. Wednesday, January 25, 2012. Snapshots of Benny and Destinys World Homeschool. It's no Secret - I love teaching my children and taking a 'non-traditional' approach to education. While schools are cramming academics into kid's brains (which they may or may not retain, much due to the ridiculous standardized requirements that teacher's are forced to meet nowadays), I'm nurturing and educating my kids in using a "child-centered approach". Here we all are studying away.

3

The Life and Times of a Mom On WheelZ: July 2009

http://bouldermomonwheelz.blogspot.com/2009_07_01_archive.html

The Life and Times of a Mom On WheelZ. Saturday, July 18, 2009. Cute and Sporty Kiddos. Benny was born a Kicker. Those of you that were close to me durinng my pregnancy with him may recall him practicing Goalie Kicks on my right ribcage for months. It's true, it was insane and painful, but it became a beloved pain of security - On the rare d. Oh well, that's what this blog is all about, right? Now the great soccer news! And "which of these programs are you on? Thank you NOVA SOCER CLUB! Benny will be pla...

4

The Life and Times of a Mom On WheelZ: January 2012

http://bouldermomonwheelz.blogspot.com/2012_01_01_archive.html

The Life and Times of a Mom On WheelZ. Wednesday, January 25, 2012. Snapshots of Benny and Destinys World Homeschool. It's no Secret - I love teaching my children and taking a 'non-traditional' approach to education. While schools are cramming academics into kid's brains (which they may or may not retain, much due to the ridiculous standardized requirements that teacher's are forced to meet nowadays), I'm nurturing and educating my kids in using a "child-centered approach". Here we all are studying away.

5

The Life and Times of a Mom On WheelZ: March 2012

http://bouldermomonwheelz.blogspot.com/2012_03_01_archive.html

The Life and Times of a Mom On WheelZ. Wednesday, March 21, 2012. Count on us to make a trip to WalMart an adventure. My children have found such interesting ways to take advantage of my wheelz. A 70lb Staffy of one side, and a 50lb monkey with a life-long aversion to walking on the other. Had Destiny been with us, the three of us woulda been chasing her too! Can you imagine this wide-load coming at you? Posted using BlogPress from my iPad. Sunday, March 11, 2012. And death is at your doorstep. Benny bei...

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wingsfordestiny.blogspot.com

Wings For Destiny: Wings For Destiny REBIRTH!! (hopefully!!)

http://wingsfordestiny.blogspot.com/2013/07/wings-for-destiny-rebirth-hopefully.html

Thursday, July 4, 2013. Wings For Destiny REBIRTH! You know when you really wanna do something but it seems like such an huge undertaking, especially amidst all the tasks you HAVE TO complete just to keep your world turning, and so this undertaking becomes a tumor-like guilt task, always applying almost unbearable pressure on your brain and then you just begin to resent the thing you wish you could do, and you really do NEED to do it? Well, that is my relationship with Destiny's blog! I am in love with h...

wingsfordestiny.blogspot.com

Wings For Destiny: She's Bad, She's Bad - She knows It!

http://wingsfordestiny.blogspot.com/2012/02/shes-bad-shes-bad-she-knows-it.html

Wednesday, February 1, 2012. She's Bad, She's Bad - She knows It! In the hospital now for a planned 5-day EEG. Posted using BlogPress from my iPad. Posted by Destiny Ann. Subscribe to: Post Comments (Atom). Dravet Syndrome and Destiny. Medical Fund - Please Donate! Shes Bad, Shes Bad - She knows It! The Life and Times of a Mom On WheelZ. Low cost web hosting. Watermark template. Powered by Blogger.

wingsfordestiny.blogspot.com

Wings For Destiny: Girls Just Wanna Have FUN!

http://wingsfordestiny.blogspot.com/2012/01/girls-just-wanna-have-fun.html

Wednesday, January 18, 2012. Girls Just Wanna Have FUN! This video was taken on our last day in the hospital! I think the spaghetti-mouth just adds to the song! Ms Destiny Ann improves each day! On Monday, she practiced writing the alphabet.now this is not an easy feat for this little girl, but she did it happily! Notice her new highchair - known to her as her table rocket chair. Notice her "Princess Crown Helmet" and her sippy cup! This child loves them all! Things change, we evolve and Life Goes On.

wingsfordestiny.blogspot.com

Wings For Destiny: February 2012

http://wingsfordestiny.blogspot.com/2012_02_01_archive.html

Wednesday, February 1, 2012. She's Bad, She's Bad - She knows It! In the hospital now for a planned 5-day EEG. Posted using BlogPress from my iPad. Posted by Destiny Ann. Subscribe to: Posts (Atom). Dravet Syndrome and Destiny. Medical Fund - Please Donate! Shes Bad, Shes Bad - She knows It! The Life and Times of a Mom On WheelZ. Low cost web hosting. Watermark template. Powered by Blogger.

wingsfordestiny.blogspot.com

Wings For Destiny: November 2011

http://wingsfordestiny.blogspot.com/2011_11_01_archive.html

Saturday, November 26, 2011. Gnome and Deluxe Fairy Door Raffle for Destiny! Raffle Tickets Sold Here! Only $2.00 EACH! Young or old, all gnomes gneed to believe in miracles. It's just in their gnature to do so. Everygnome is destined for greatness, whether that be through great acheivements or small ones. Perhaps a gnome will one day save the entire garden, or perhaps their Destiny is to just remind their loved ones around them that life is good. A special friend, Jennifer, of Gniffer's Gomes. Two weeks...

wingsfordestiny.blogspot.com

Wings For Destiny: Erie High School Girl's Basketball Team Plays With Heart'

http://wingsfordestiny.blogspot.com/2012/01/erie-high-school-girl-basketball-team.html

Wednesday, January 25, 2012. Erie High School Girls Basketball Team Plays With Heart. DESTINY BURTON.YOURE OUR INSPIRATION TO PLAY WITH HEART. Tammy, our whole team wrote this on our wrists tonight, in honor of you and your family :]". Was the message from Nicole, my friend, assistant and sitter. I woke to Benny's asthma attack at 1:15 this morning to find this. Words cannot express our gratitude for Nicole, and for the members of her basketball team at Erie High for thinking of us. Posted by Destiny Ann.

wingsfordestiny.blogspot.com

Wings For Destiny: Dravet-Related News

http://wingsfordestiny.blogspot.com/p/dravet-related-news.html

September 9, 2011. Adjunctive antiepileptic drug treatment can lower risk of dying from a sudden unexpected death. New research published Online First in The Lancet Neurology, has found that epilepsy patients who receive additional treatment with antiepileptic drugs (AEDs) have about a seven times lower risk of dying from a sudden unexpected death—the most common cause of death in epilepsy patients. They point out that contrary to research suggesting that polytherapy might increase the risk of SUDEP: "Ou...

wingsfordestiny.blogspot.com

Wings For Destiny: Destiny's Utopia by Lucia

http://wingsfordestiny.blogspot.com/2012/03/destiny-utopia-by-lucia.html

Saturday, March 10, 2012. Destinys Utopia by Lucia. I first met Destiny back in September through a friend of my mom. Since then I have had the pleasure of consistently interacting with her, and what a wonderful experience it is! On a play-date with me at my house one day Destiny transformed into a beautiful girl named Crush. She had discovered the makeup supply in my room. After applying about five coats of blush and eye shadow she jumped up and exclaimed, “I’m Crush! Wedged under all this amazingness o...

wingsfordestiny.blogspot.com

Wings For Destiny: May 2012

http://wingsfordestiny.blogspot.com/2012_05_01_archive.html

Tuesday, May 8, 2012. Destiny Bracelets Spread Worldwide. What began as a small cooperative - an idea for one friend to use her talents to help raise a little awareness and funds for Destiny's medication - has turned global, and raised more than $3500 in just three months! We are beginning to meet people, by pure chance, wearing Destiny Bracelets. They're making Destiny by helping to save her. I've never been so touched and so grateful for anyone or anything in my life. And thank you for reading! We are ...

wingsfordestiny.blogspot.com

Wings For Destiny: The Medication

http://wingsfordestiny.blogspot.com/p/medication.html

In highly technical terms, from the National Publication of Medicine. Epilepsia. 2011 Apr;52 Suppl 2:72-5. doi: 10.1111/j.1528-1167.2011.03007.x. The pharmacologic treatment of Dravet syndrome. Chiron C, Dulac O. Inserm, U663, Paris, France. catherine.chiron@nck.aphp.fr. Wiley Periodicals, Inc. © 2011 International League Against Epilepsy. Subscribe to: Posts (Atom). Dravet Syndrome and Destiny. Medical Fund - Please Donate! Wings For Destiny REBIRTH! The Life and Times of a Mom On WheelZ.

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bouldermomonwheelz.blogspot.com

The Life and Times of a Mom On WheelZ

The Life and Times of a Mom On WheelZ. Wednesday, March 21, 2012. Count on us to make a trip to WalMart an adventure. My children have found such interesting ways to take advantage of my wheelz. A 70lb Staffy of one side, and a 50lb monkey with a life-long aversion to walking on the other. Had Destiny been with us, the three of us woulda been chasing her too! Can you imagine this wide-load coming at you? Posted using BlogPress from my iPad. Sunday, March 11, 2012. And death is at your doorstep. Benny bei...

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