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Craig Knier Blog

Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Subscribe to: Posts (Atom). BLOG Subject: Life with Acromegaly.

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Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Subscribe to: Posts (Atom). BLOG Subject: Life with Acromegaly.
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Craig Knier Blog | caknier.blogspot.com Reviews

https://caknier.blogspot.com

Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Subscribe to: Posts (Atom). BLOG Subject: Life with Acromegaly.

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Craig Knier Blog: BLOG Subject: Life with Acromegaly

http://caknier.blogspot.com/2008/04/blog-subject.html

Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Feel free to contact me anytime you might like to chat or share stories.

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Craig Knier Blog: April 2008

http://caknier.blogspot.com/2008_04_01_archive.html

Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Subscribe to: Posts (Atom). BLOG Subject: Life with Acromegaly.

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Remembering to take the tablets | Acromegaly Diary

https://acromegaly.wordpress.com/2014/03/11/remembering-to-take-the-tablets

Getting Started – Info. Stepping forward, one big foot at a time. Remembering to take the tablets. March 11, 2014. It’s possible to miss taking your tablets, or remembering which tablet you’ve taken. I find it helpful to put the tablets in a place that makes you likely to remember to take them. My morning tablets I keep in the kitchen. My evening tablet I keep in the bathroom. I continue in the same way with the remaining three packets, one at a time. So why this routine? April 14, 2014 at 4:13 pm. You a...

acromegaly.wordpress.com acromegaly.wordpress.com

Cycling over 60 miles for charity (ouch) – please help | Acromegaly Diary

https://acromegaly.wordpress.com/2011/07/05/cycling-over-60-miles-for-charity-ouch-please-help

Getting Started – Info. Stepping forward, one big foot at a time. Cycling over 60 miles for charity (ouch) – please help. July 5, 2011. Wow, that's longer than I thought. The Endocrinology department that I go to is at The Christie in Manchester (UK). This coming Sunday (10th July) they are holding a Christie Manchester to Blackpool Bike Ride. That’s over 60 miles. Anyhow, I’m going to have a go at doing it. Silly me. It’s going to hurt! I won’t be able to sit down for a week I’m sure. I read your posts,...

acromegaly.wordpress.com acromegaly.wordpress.com

IGF-1 Still in normal range | Acromegaly Diary

https://acromegaly.wordpress.com/2010/09/10/igf-1-still-in-normal-range

Getting Started – Info. Stepping forward, one big foot at a time. IGF-1 Still in normal range. September 10, 2010. We have the results of the blood test back on 2 August (the six month mark after surgery)! It’s still in normal range at 226 ug/ml. Indeed, the normal range for the assay they use (for my age) is up to 267ug/ml from what I understand. It’s pretty much the same value as my blood test three months after. No Six Month Day Curve. It’s Official – ‘Cured’ of Acromegaly. Thinking of you,. Thanks fo...

acromegaly.wordpress.com acromegaly.wordpress.com

Acromegaly Symptoms | Acromegaly Diary

https://acromegaly.wordpress.com/acromegaly-symptoms

Getting Started – Info. Stepping forward, one big foot at a time. Below is a list of typical symptoms of a person with acromegaly when diagnosed by a doctor. 100% Facial changes, Acral enlargement (enlarged hands and/or feet – such as widening feet or growing feet, widening of space between lower teeth). 90% Enlarged sella (bone around the pituitary gland). 88% Hyperhidrosis (excessive sweating). 87% Lethargy or Fatigue. 70% Pareshesias (tingling/numbness of hands/fingers, carpal tunnel syndrome). 4% Hyp...

acromegaly.wordpress.com acromegaly.wordpress.com

Phone call from hospital | Acromegaly Diary

https://acromegaly.wordpress.com/2012/04/20/phone-call-from-hospital

Getting Started – Info. Stepping forward, one big foot at a time. Phone call from hospital. April 20, 2012. I had a phone call from the hospital today (Mrs MR) regarding the high IGF-1 result in blood test results. She explained that it wasn’t necessarily anything to be too worried about at this stage. She’s absolutely brilliant. Anyhow, going back to the phone call. I was given a few options for going back in for earlier blood tests or leave it until the next six-month follow up. I’m delig...I’m n...

acromegaly.wordpress.com acromegaly.wordpress.com

Wedding Ring Size after Acromegaly surgery | Acromegaly Diary

https://acromegaly.wordpress.com/2013/07/01/wedding-ring-size-after-acromegaly-surgery

Getting Started – Info. Stepping forward, one big foot at a time. Wedding Ring Size after Acromegaly surgery. July 1, 2013. My wedding ring has become smaller! A few months after having transphenoidal surgery for my acromegaly I notice that my wedding ring had become very loose. As I was not sure how my fingers would change over time, or whether I was in remission or not I put away my wedding ring and wore a cheap stainless steel ring. Naturally, I have to fend off the women somehow. This blog has been g...

acromegaly.wordpress.com acromegaly.wordpress.com

1st Year Anniversary of Trans-sphenoidal Surgery for Acromegaly | Acromegaly Diary

https://acromegaly.wordpress.com/2011/02/09/1st-year-anniversary-of-trans-sphenoidal-surgery-for-acromegaly

Getting Started – Info. Stepping forward, one big foot at a time. 1st Year Anniversary of Trans-sphenoidal Surgery for Acromegaly. February 9, 2011. Well today is the first anniversary of my surgery for Acromegaly that I had at Hope Hospital (Salford Royal Hospital) in Manchester (UK). It’s hard to believe it’s been a year. It seems so recent in a way to some extents, but I’ve really been enjoying things. It’s Official – ‘Cured’ of Acromegaly. Pauline in the Great Manchester Run 2011. Thank you ever so m...

acromegaly.wordpress.com acromegaly.wordpress.com

Blood Tests only after a Follow-up Consultation? | Acromegaly Diary

https://acromegaly.wordpress.com/2014/03/21/blood-tests-only-after-a-follow-up-consultation

Getting Started – Info. Stepping forward, one big foot at a time. Blood Tests only after a Follow-up Consultation? March 21, 2014. In two weeks time I have a follow-up consultation to see if I’m still in remission of acromegaly. In the past I’d generally ring up to get values of the blood test results, but I wouldn’t get to discuss the results for six (or twelve) months. Remembering to take the tablets. High IGF-1 Result Possibly? One thought on “ Blood Tests only after a Follow-up Consultation? Notify m...

acromegaly.wordpress.com acromegaly.wordpress.com

It’s Official – ‘Cured’ of Acromegaly | Acromegaly Diary

https://acromegaly.wordpress.com/2010/10/18/its-official-cured-of-acromegaly

Getting Started – Info. Stepping forward, one big foot at a time. It’s Official – ‘Cured’ of Acromegaly. October 18, 2010. Last week I went for a follow-up appointment to discuss tests and an MRI scan I’d had on September 17th (some seven months after surgery). Test showed suppression of GH to less than the sensitivity of the assay ( 0.3 ug/ml. Was bang in normal range at 180 ug/ml. My wife and I enjoyed a bottle of champagne that night to celebrate, as it is reason indeed to be incredibly delighted.

acromegaly.wordpress.com acromegaly.wordpress.com

Acromegaly Body Image Questionnaire | Acromegaly Diary

https://acromegaly.wordpress.com/2014/01/31/body-image-questionnaire

Getting Started – Info. Stepping forward, one big foot at a time. Acromegaly Body Image Questionnaire. January 31, 2014. I had a brown envelope through the door yesterday. Usually it’s only letters from the taxman come in brown envelopes so it was good to see it came from the hospital. It was a “Body Image” questionnaire. At first, from the title, I thought it was something to do with getting an MRI done or something. In other ways too, I have just been trying to get on with my life and I’ve just a...

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Craig Knier Blog

Friday, April 11, 2008. BLOG Subject: Life with Acromegaly. It occurred to me the other day that there are not many people in the world who have acromegaly. So, I am going to create and update this blog about my acromegaly story. From the beginning when I first found out to the current date of medications and appointments. Its an interesting story and I am trying to get the materials laid out to make sense as you read though the blog. Subscribe to: Posts (Atom). BLOG Subject: Life with Acromegaly.

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