Over 30 million Americans live with a rare disease and 15 million of those are children. Rare disease has become a hot topic in the US on the political front as lawmakers in the House have launched a Rare Disease Caucus and the Senate is following suit. And creating a National Emergency Treatment Database for Rare Disease Patients. Help us raise awareness for rare diseases and the need for a National Emergency Treatment Database by joining our #Wear4Rare365 campaign. KS Rare Disease Advisory Council.