thoughtsaboutme.com
CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground | Thoughts About M.E.
https://thoughtsaboutme.com/2015/08/14/cfsac-comments-august-2015-ampligen-update
Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. 267% Price Increase for Ampligen. Oops, they did it again! CFSAC violates FACA →. CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground. August 14, 2015. I looked into the Ampligen issue–the exorbitant 267% price increase by Hemispherx. CFSAC Meeting August 18. Public Comments by Jeannette Burmeister. Submitted on August 13, 2015. Below are two letters I sent to Dr. Woodcock on August 11, 2015 and today (August 13, 2015) wit...
thoughtsaboutme.com
CFS | Thoughts About M.E.
https://thoughtsaboutme.com/tag/cfs
Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits. March 21, 2016. Many ME/CFS* sufferers are covered by employer-sponsored long-term disability ( LTD ) policies. These policies almost universally limit LTD benefits to 24 months for disability caused or even just contributed to by a mental/nervous disorder. The following language is taken from a current policy … Continue reading →. February 21, 2016.
cfspatientadvocate.blogspot.com
CFS Patient Advocate: Hugh and Chris Hempel - and their daughters Addi and Cassi
http://cfspatientadvocate.blogspot.com/2015/02/hugh-and-chris-hempel-and-their.html
The job of Patient Advocate came upon me uninvited. I did not apply for this job, nor did I have any qualifications for it. I am a sculptor, not a doctor or a researcher. My daughter. Survey Results on Adaptogens. When Retreat Means Advance: A Recovered Chronic Fatigue Syndrome/Fibromyalgia Patient Looks Back. OMG: Prof Chalder admits that they made up the death threats themself to ridicule patients. LOOKING AT LYME DISEASE - MSIDS. TICK AWARENESS IN SURREY - LYME DISEASE. Quixotic: My M.E. Blog. The Hem...
cfs-living.blogspot.com
Living with CFS: 22/11/09 - 29/11/09
http://cfs-living.blogspot.com/2009_11_22_archive.html
Living with Chronic Fatigue Syndrome. Thursday, 26 November 2009. Expert Answers on Chronic Fatigue Syndrome. November 24, 2009. Subscribe to: Posts (Atom). Enter your search terms. British Guidelines for CFS/ME. CFIDS Association of America. Mayo Clinic information on CFS. MedicineNet information on CFS. Onward Through the Fog. View my complete profile.
roslemarchand.blogspot.com
My A-Z of M.E. (Myalgic Encephalomyelitis) : July 2016
http://roslemarchand.blogspot.com/2016_07_01_archive.html
My A-Z of M.E. (Myalgic Encephalomyelitis). This is about me and M.E. (Myalgic Encephalomyelitis). It`s about living with a chronic and invisible illness. It`s how I express that life through my poetry. Sunday, 17 July 2016. Recently I have been touched and moved by so many heartbreaking stories of those with M.E. who have lost so much because of this illness. This illness steals our lives, what we once had and what could have been. ME does not discriminate and can affect anyone at any time in their life.
katherinereynoldswriter.blogspot.com
Katherine Reynolds: The Ground of Being
http://katherinereynoldswriter.blogspot.com/2013/04/the-ground-of-being.html
Thursday, April 4, 2013. The Ground of Being. I beg to urge you everyone:. Life and Death are a Great Matter. Awaken, awaken, awaken. Do not waste this precious life. Evening chant, written on the wooden han. The True Secret of Writing: Connecting Life with Language. Subscribe to: Post Comments (Atom). Katherine Reynolds is a poet and creative nonfiction writer. She is currently at work on a memoir and a book of poetry. . View my complete profile. A Rabbit In The Garden. Onward Through the Fog.
roslemarchand.blogspot.com
My A-Z of M.E. (Myalgic Encephalomyelitis) : November 2016
http://roslemarchand.blogspot.com/2016_11_01_archive.html
My A-Z of M.E. (Myalgic Encephalomyelitis). This is about me and M.E. (Myalgic Encephalomyelitis). It`s about living with a chronic and invisible illness. It`s how I express that life through my poetry. Tuesday, 15 November 2016. This blog is going to be a bit more personal but one you can probably relate to if your life has also changed because of chronic lifelong illness. They say that you should never look back in the past or too far in the future but live in the moment. I once had a job and a career.
thoughtsaboutme.com
Chronic Fatigue Syndrome Advisory Committee | Thoughts About M.E.
https://thoughtsaboutme.com/tag/chronic-fatigue-syndrome-advisory-committee
Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Tag Archives: Chronic Fatigue Syndrome Advisory Committee. Holding HHS Accountable for Unrelenting and Unrepentant Legal Violations. September 8, 2015. Many members of the community have called out HHS for legal violations over the years, such as Dr. Mary Ann Fletcher and Ms. Eileen Holderman confronting Dr. Nancy Lee, DFO of CFSAC, for her attempted intimidation of CFSAC members by … Continue reading →. Federal Advisory Committee Act. This i...
katherinereynoldswriter.blogspot.com
Katherine Reynolds: Losing another M.E (CFS) Patient to Suicide
http://katherinereynoldswriter.blogspot.com/2013/09/losing-another-me-cfs-patient-to-suicide.html
Wednesday, September 18, 2013. Losing another M.E (CFS) Patient to Suicide. I read two long blogs in the middle of the night about Thomas that brought me to tears not only for his family but frankly for me too. We have to have outside funding, we have to have solutions, we have to have the important government funding, we have to have trained literate M.E. doctors. This disease is killing people. We need help; we can't do it alone. We can't do this without people who are not sick....View my complete prof...
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