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Raphael in CHARGE: Raphael's colobomas

http://raphaelincharge.blogspot.com/2010/02/raphaels-colobomas.html

Friday, 12 February 2010. I have a special treat for you today. The ophthalmologist kindly agreed to take photos of Raphael's coloboma. We did not get a photo of the right eye coloboma becuase it is quite low but there are some good ones of the left eye. If people are interested I amhappy to explain the parts of the images (as far as my eye anatomy will allow me to do so). Subscribe to: Post Comments (Atom). Practicing .k and .dy. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2).

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Raphael in CHARGE: Practicing ...k and ...dy

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Monday, 8 February 2010. Practicing .k and .dy. Subscribe to: Post Comments (Atom). Practicing .k and .dy. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Ear Nose and Throat Doctor (ENT) (x3). Ophthalmologist (eye surgeon) (x3). Orthoptist [RHH and Hobart Eye Surgeons]. Paediatric home care nurse (x2) [RHH]. Speech Pathologist [RHH (x2) and CHC and Speech Pathology Tasmania (x2)]. CHARGE Syndrome Foundation (USA).

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Raphael in CHARGE

http://raphaelincharge.blogspot.com/2012/10/i-had-first-appointment-today.html

Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Do some online research into sound localisation training. Speech Pat...

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Raphael in CHARGE: Australasian CHARGE Conference 2010

http://raphaelincharge.blogspot.com/2011/05/australasian-charge-conference-2010.html

Saturday, 30 October 2010. Australasian CHARGE Conference 2010. We took some realy valuable information away with us from the Australasian CHARGE conference this year. Some more information on the conference can be found here:. Http:/ www.chargesyndrome.org.au/conference2010.html. But the really valuable stuf came from talking to the presenters and other attendees. Subscribe to: Post Comments (Atom). Australasian CHARGE Conference 2010. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2).

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Raphael in CHARGE: Simple Sleep Study

http://raphaelincharge.blogspot.com/2009/04/simple-sleep-stufy.html

Friday, 10 April 2009. Raphael had a simple sleep study performed last night in hospital. This is mainly to monitor his blood oxygen saturation while not on CPAP. The results were good in that he maintained good oxygen levels all night without a single desaturation. He even has a slight upper respiratory infection at the moment so this was an excellent effort. We will leave him off CPAP at home for the next few nights and he will go back into hospital on Monday night to see if things are still the same.

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Raphael in CHARGE: It has been a long time since the last post

http://raphaelincharge.blogspot.com/2009/07/it-has-been-long-time-since-last-post.html

Friday, 10 July 2009. It has been a long time since the last post. Q: So what has been happening lately? A: The regular drudge of appointments of course. In addition to the occasional doctor appointment, this is what a typical week looks like at the moment:. Monday: Signing with a deaf adult followed by the early intervention playgroup. Wednesday: RIDBC (Royal Institute of Deaf and Blind Children) videoconference. Thursday: Teacher of the Deaf - teaching listening skills. 24 August 2009 at 4:04 pm. Feel ...

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Raphael in CHARGE: Oxymetry study

http://raphaelincharge.blogspot.com/2010/09/oxymetry-study.html

Friday, 3 September 2010. Raphael stayed in hospital last night to confirm that his breathing is still ok over night. The results were all good and so I think that finally marks the absolute end of his night time breathing problem. Subscribe to: Post Comments (Atom). Chronology of events that doctors are usually inte. Summary of chronology summary. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Http:/ ellencharger&#...

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Raphael in CHARGE: The new sound "s"

http://raphaelincharge.blogspot.com/2010/06/new-sound-s.html

Friday, 4 June 2010. The new sound "s". Today Rapahel made a new sound "s". He did this at the end of a word that he was copying "Always". It is not a very confident sound but it is being made with the correct part of the mouth rather than him using the constant fluid in his nose to make an s whistle when he breathes out his nose. Ironically his Chinese can be quite clear but he has a very limited Chinese vocabulary. Mostly "I want" and "I don't want". 14 July 2010 at 2:52 pm. 16 July 2010 at 7:04 am.

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Raphael in CHARGE: More sleep studies

http://raphaelincharge.blogspot.com/2009/05/more-sleep-studies.html

Friday, 1 May 2009. Raphael had two more sleep tests in Hobart and he continued to maintain excellent saturations over night. So with this information we organised another full Polysomnography test in Melbourne for 29-30/4/2009. To cut a long story short, this latest test confirmed the good results that he appeared to be having in Hobart. As for Annie and I, we are celebrating the opportunity of getting uninterrupted sleep for the first time in three years. And a short video like the one from 2008:.

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Raphael in CHARGE: My child has just been diagnosed with CHARGE syndrome, what should I do?

http://raphaelincharge.blogspot.com/2011/09/my-child-has-just-been-diagnosed-with.html

Thursday, 15 September 2011. My child has just been diagnosed with CHARGE syndrome, what should I do? BIG DISCLAIMER: I have no relevant qualifications other than being a parent of a child with CHARGE syndrome. Get a good baby sitter network for other kids. Early intervention (physiotherapy, occupational therapy, speech pathologist, hearing and vision specialists). Possibly learn sign language to give your child a language as early as possible. Get disabled parking permit. If you don't understand anythin...