ohtwist.com
About EDS | Oh TWIST
http://ohtwist.com/about-eds
Shining Light on a Twisted Condition. Meet Peanut, CNO. When to Suspect EDS. When Else to Suspect Ehlers-Danlos Syndrome. The BRIGHTON Diagnostic Criteria. When to Suspect MCAD. Common bendy signs of EDS. May 13, 2016: Please read my Heads Up Change Is Coming May 2016 caveat post. First before reading the following original text now – which may all be subject to great change soon, accordingly, thanks! Original post text (pre-May 2016):. Ehlers-Danlos Syndrome or EDS is the name given to a. There are seve...
rieds.org
Next Meeting May 30th! | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/05/05/next-meeting-may-30th
Ehlers Danlos Syndrome Awareness, Information and Support Group. Next Meeting May 30th! Our next meeting will be on May 30th 2015. This entry was posted in Uncategorized. May 5, 2015. Come join us today at the Marfan Foundation’s Walk For Victory! Ellen & Stu’s Page. Center for EDS Alliance. The Coalition Against Pediatric Pain. Chiari & Syringomyelia Foundation. The American Syringomyelia & Chiari Alliance Project, Inc. Americans for Safe Access. Proudly powered by WordPress.
rieds.org
2015 School Nurse Conference Awareness Event | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/05/20/238
Ehlers Danlos Syndrome Awareness, Information and Support Group. 2015 School Nurse Conference Awareness Event. We had a wonderful time today at the School Nurse Conference. Thanks to everyone who came out. Special thanks to Ginny Law for getting us the opportunity and working tirelessly to get us even more opportunities for community outreach! If anyone else has pictures we would love to see them! Http:/ www.marfan.org/. Http:/ www.healyphysicaltherapy.com/. Http:/ www.ehlersdanlosnetwork.org/. The Coali...
rieds.org
ianbrack@gmail.com | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/author/ianbrackgmail-com
Ehlers Danlos Syndrome Awareness, Information and Support Group. Author Archives: ianbrack@gmail.com. RI EDS Awareness Events 2015. The Rhode Island Ehlers Danlos Awareness and Support Group was very busy in the month of May raising awareness, and we aren’t done yet! Ellen and Stu also made sure we had our Proclamation in for the first day of May. PICTURES CLOCKWISE 1. SERVICE DOG MAGGIE GREATS PASSERBYS, 2. VOLUNTEERS FROM THE LEFT: ELLEN, JEN, CHRISTINE, AND DINA MAN THE TABLE, 2. CLOSE UP ...Ginny put...
edsdallas.com
Resources – Ehlers-Danlos Syndrome – Dallas/Ft. Worth Support Group
http://edsdallas.com/resources
GENERAL INFORMATION ABOUT EDS. To learn about Ehlers-Danlos syndrome (EDS), a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. Is a new online resource for the Ehlers-Danlos Syndrome community. We provide informative resources for individuals suffering with EDS and their caregiver networks. Joint Hypermobility Handout by Dr. Pocinki. Dysautonomia and POTS Resources. The Dysautonomia Information Network.
rieds.org
April Meeting | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/04/10/april-meeting-2
Ehlers Danlos Syndrome Awareness, Information and Support Group. Saturday April 18th 2pm 4:30pm. 600 Sandy Lane Warwick, RI. This entry was posted in Uncategorized. April 10, 2015. Awareness Event Opportunity →. Ellen & Stu’s Page. Center for EDS Alliance. The Coalition Against Pediatric Pain. Chiari & Syringomyelia Foundation. The American Syringomyelia & Chiari Alliance Project, Inc. Americans for Safe Access. Proudly powered by WordPress.
rieds.org
Awareness Event Opportunity | Ehlers Danlos Syndrome Awareness, Information & Support Group
http://www.rieds.org/2015/04/23/awareness-event-opportunity
Ehlers Danlos Syndrome Awareness, Information and Support Group. Miriam Hospital Awareness Event. A full week of awareness 8am to 5pm daily. We need you to help out! Sign up to be a volunteer by emailing Krista Krista@rieds.org. Or you can also sign up on our Facebook page in the events area, please note what time slot you will be filling in for. Starts: Monday May 4. We will have a table set up directly outside of the cafeteria on the first floor of Miriam Hospital. This entry was posted in Uncategorized.
edsers.com
The EDS Community
https://www.edsers.com/the-eds-community.html
If you know of a social media community that is not listed, please contact us so that we may add them to this list. New Jersey EDSers United Meet Ups and Events. Ehlers-Danlos Initiatives, Surveys, and Unified Voices: The World Speaks! Ehlers Danlos Support Group. Ehlers-Danlos Syndrome Western Canada. Living with Invisible Illness. Ehlers-Danlos Syndrome (EDS) for Kids. Ehlers-Danlos and Joint Hypermobility Syndrome Australia. EDSAUS - EDS Support in Australia Forum. Yoga for Ehlers-Danlos Syndrome.
bodysupportstore.com
All Products
http://www.bodysupportstore.com/products
Comfort and Support Solutions for the Whole Body. A large portion of our proceeds go toward Ehlers-Danlos Syndrome awareness. Click here. To learn about EDS. Visit our BLOG @ B odySupportStoreBlog.com. Receive articles, tips, product discounts and more! Your info remains private. Unsubscribe at any time. Type email below and submit. Did you hear about us via the EDS community? Handshake Mouse" - Evoluent Vertical Mouse 4. 3 Layer Foam Mattress Topper. 9 Position - Support Wedge Cushion Set - WIDE version.
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