clairealtmanheinefoundation.org clairealtmanheinefoundation.org

clairealtmanheinefoundation.org

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Facts and educational resources promoting spinal muscular atrophy (SMA) testing and family planning.

http://www.clairealtmanheinefoundation.org/

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CONTACTS AT CLAIREALTMANHEINEFOUNDATION.ORG

Claire Altman Heine Foundation, Inc.

Deborah Heine

1112 Mon●●●●●●●●Site 372

Sant●●●●nica , CA, 90403

US

1.31●●●●3262
de●@preventsma.org

View this contact

Claire Altman Heine Foundation, Inc.

Deborah Heine

1112 Mon●●●●●●●●ne # 372

Sant●●●●nica , CA, 90403

US

1.31●●●●3262
1.31●●●●7154
de●@preventsma.org

View this contact

Claire Altman Heine Foundation, Inc.

Deborah Heine

1112 Mon●●●●●●●●ne # 372

Sant●●●●nica , CA, 90403

US

1.31●●●●3262
1.31●●●●7154
de●@preventsma.org

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PREVENTSMA | clairealtmanheinefoundation.org Reviews

https://clairealtmanheinefoundation.org

Facts and educational resources promoting spinal muscular atrophy (SMA) testing and family planning.

LINKS TO THIS WEBSITE

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: Happy Birthday Little Man

http://olliestale.blogspot.com/2013/08/happy-birthday-little-man.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Monday, August 5, 2013. Happy Birthday Little Man. 36 hours to be born. 363 days to live an all too short life. We will never forget you. August 5, 2013 at 10:01 AM. Ollie's Tale is...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: Bittersweet Milestones

http://olliestale.blogspot.com/2015/08/bittersweet-milestones.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Monday, August 3, 2015. Today is the 6th anniversary of Oliver’s death. Day to day, we don’t (can't) focus on it much as we stay so busy with Penny and Isaak, and they deserve...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: April 2014

http://olliestale.blogspot.com/2014_04_01_archive.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Wednesday, April 30, 2014. Happy 4th Birthday to our Favorite Set of Twins. And then click on newer below each post. Thanks for all the support, love, wishes and prayers over the ye...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: Bekka back for c-section

http://olliestale.blogspot.com/2010/04/bekka-back-for-c-section.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Friday, April 30, 2010. Bekka back for c-section. More later. Little girl was just Too unstable. April 30, 2010 at 7:14 AM. April 30, 2010 at 7:41 AM. Sending prayers from NC! Frien...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: August 2015

http://olliestale.blogspot.com/2015_08_01_archive.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Monday, August 3, 2015. Today is the 6th anniversary of Oliver’s death. Day to day, we don’t (can't) focus on it much as we stay so busy with Penny and Isaak, and they deserve...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: December 2014

http://olliestale.blogspot.com/2014_12_01_archive.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Tuesday, December 9, 2014. 8220;Whose stocking is this, Mom? Bekka told her it was her brother Ollie’s stocking. Penny asked, “Where is Ollie? So do we little one, so do we. This of...

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: Pictures? Pictures? Wait, what?

http://olliestale.blogspot.com/2012/02/pictures-pictures-wait-what.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Tuesday, February 28, 2012. What could possibly be going on here. The twins are growing gangbusters right now. They are running amok. Nifty pictures that Bekka took in the kitchen.

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: 2nd Annual Carolinas Chapter Cure SMA Walk-n-Roll

http://olliestale.blogspot.com/2014/09/2nd-annual-carolinas-chapter-cure-sma.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Thursday, September 11, 2014. 2nd Annual Carolinas Chapter Cure SMA Walk-n-Roll. Like last year, the event will be held at Anderson Point Park in Raleigh. We hope to see you there.

olliestale.blogspot.com olliestale.blogspot.com

Ollie's Tale: Walkin' and Rollin'

http://olliestale.blogspot.com/2013/10/walkin-and-rollin.html

So this is Ollie's Tale. It's about a little boy whose (almost) toothless smile and big, blue eyes melted hearts everywhere he went. It's about his loving parents and the difficult choices they had to make. And it's about a disease called Spinal Muscular Atrophy that took Oliver's life just two days before his first birthday. Friday, October 25, 2013. In his short life, Ollie never had a chance to walk, but he definitely loved to roll. Click here to go to Ollie's Team page. How Can You Help? Ollie's Tale...

gettyowl.org gettyowl.org

Getty Owl Foundation » SMA Library

http://gettyowl.org/what-is-sma/sma-library

Helping families. Fighting SMA. Consensus Statement for Standard of Care in SMA [General]. Consensus Statement for Standard of Care in SMA [Family Guide]. Introduction for SMA Families. Caring Choices for SMA. SMA MebEd Cafe Webcast. Special Considerations for Respiratory Management of SMA – Schroth. NOTE: Bipap “Span of 10” discussed at p. 5247.]. SMA Type 1: Noninvasive Respiratory Management Approach – Bach. NOTE: Bipap “Span of 10” discussed.]. SMA Intensive Care and Extubation Protocol – Bach.

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Wednesday, June 24, 2009. Garbage Strike, Athens. Labels: body of work. Rockefeller Park 1996, 2001. Acrylic on Drafting Film. I tend to consider these two paintings the turning point of my work, where my technique and concept merged. The work that I have done since has its roots here, in these two initial. Of being in a place at a time. Labels: body of work. I'm going to start , however, by posting. And writing about a few of the cornerstones of my body of work. Http:/ web.mac.com/cae8485/.

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clairealtmanheinefoundation.org clairealtmanheinefoundation.org

PREVENTSMA

DEDICATED TO PROMOTING SMA CARRIER TESTING and EDUCATION. In memory of Claire, January October 2004. While closing CAHF is bittersweet, we are proud of CAHF’s role in implementing pan-ethnic carrier screening for Spinal Muscular Atrophy (SMA). We will continue to support and work to further perfect our cause. Thank you for all your support. Deborah and Chris Heine. CLAIRE ALTMAN HEINE FOUNDATION. Carrier Screening for Spinal Muscular Atrophy.

clairealtschuler.com clairealtschuler.com

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Content: Healthcare and Lifestyle. Content: Healthcare and Lifestyle. Content Services - Media Relations. I'm an award-winning journalist and media relations advisor based in the greater New York City area. I create content for all platforms, including social media, blogs, websites, print and online newspapers and magazines. I also write speeches and create narration for videos and podcasts. Claire began her career as a freelance journalist. Along the way, Claire has used her storytelling skills and medi...

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CLAIRE ALVE: GRAPHIC DESIGNER. January 2, 2014. Dance class flyer 8. January 2, 2014. Dance class flyer 7. January 2, 2014. Dance class flyer 6. January 2, 2014. Dance class flyers 5. January 2, 2014. Dance class flyer 4. January 2, 2014. Dance class flyer 3. January 2, 2014. Dance class flyers 2. January 2, 2014. Dance class flyer 1. November 9, 2010. September 9, 2010. Paper Stacks, a collaboration by FiftyThree.

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Book & Compétences. Dans le design de vêtements. Des idées aux images. Recherche de tendances and moodboards. Dessin and fiches techniques. Propositions de matières and accessoires. L'esthétique au service de la fonction. Pour des vêtements dans lesquels on peut vivre et bouger! Tel +33 615 038 872. 22, rue du Square / Cran Gevrier.

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Includes unlimited streaming via the free Bandcamp app, plus high-quality download in MP3, FLAC and more. Released August 18, 2015. Feeds for this album. Los Angeles, California. Track Name: The Last Time. I think we’re on two different pages. I think we’re at two different stages. I want to love you like a lover. You want to play me like a player. But when you say my name like that. I just can’t help it; I come back. It’s a dangerous game we’re playing. Broken hearts in the making. This is the last time.