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Ronan Reflections: July 2013
http://marsolan.blogspot.com/2013_07_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...
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Links - Jaxon Ott
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August 27, 2016. Foundation for Faces of Children. CHARGE Syndrome Facebook Group. CHARGE Syndrome Listserv (Yahoo). All That Hath Life and Breath. The Adventures of Kennedy. The Adventures of Mighty Max. Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Hi, I’m Jaxon. Send to Email Address. Post was not sent - check your email addresses!
marsolan.blogspot.com
Ronan Reflections: And, away we go!
http://marsolan.blogspot.com/2013/07/and-away-we-go.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...
marsolan.blogspot.com
Ronan Reflections: December 2012
http://marsolan.blogspot.com/2012_12_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Friday, December 28, 2012. Hope for the Holidays. Well, little Ronan, we have sure had an eventful last few weeks. And of course, you have taken the path we did not expect. Ronan will g...
marsolan.blogspot.com
Ronan Reflections: A dream is a wish...
http://marsolan.blogspot.com/2013/06/a-dream-is-wish.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Tuesday, June 25, 2013. A dream is a wish. Over Father's Day weekend, my mother came out to visit and we all took Ronan to Disneyland! The adults, however, had a great time! Robin Hood ...
marsolan.blogspot.com
Ronan Reflections: February 2013
http://marsolan.blogspot.com/2013_02_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, February 27, 2013. Puppies, eating, and more! This week, and in fact in one day, Ronan started using "more" and "eat"! Ronan's other big milestone this week was one that I ba...
marsolan.blogspot.com
Ronan Reflections: October 2013
http://marsolan.blogspot.com/2013_10_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk. ...One o...
marsolan.blogspot.com
Ronan Reflections: January 2013
http://marsolan.blogspot.com/2013_01_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, January 30, 2013. I don't know how you do it.". I remember those early weeks and months when we seemingly always got bad news, and I remember how Paul and I would motivate ou...
marsolan.blogspot.com
Ronan Reflections: Finally out of the rut...
http://marsolan.blogspot.com/2013/08/finally-out-of-rut.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Sunday, August 25, 2013. Finally out of the rut. One pound in eight months! Of us need to stay home? Ronan standing at his cart in PT. Much more confident standing! Ronan's school has t...
marsolan.blogspot.com
Ronan Reflections: The heart of it...
http://marsolan.blogspot.com/2012/10/the-heart-of-it.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Monday, October 8, 2012. The heart of it. The balloon floating away. October 8, 2012 at 7:56 PM. He has come so far! Heres to many many more years full of amazing milestones lil man!