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curlybones.com

Curly Bones

Living with JRA

http://www.curlybones.com/

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Curly Bones | curlybones.com Reviews
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Living with JRA
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Curly Bones | curlybones.com Reviews

https://curlybones.com

Living with JRA

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1

Curly Bones: I'm back!

http://www.curlybones.com/2016/09/im-back.html

Saturday, September 17, 2016. My husband surprised me and bought me a new Chromebook so I can get back to writing again! Now my son can officially take over my iPad, my daughter can nap and I can blog in peace. Well try to anyways. heehee. We started the entire IVF process with the fear that we might not even be able to have one child but our hopes were lifted when we found out we had 13 embryos. One child seemed possible again, why not 3! Subscribe to: Post Comments (Atom).

2

Curly Bones: 1 year old and a shoulder replacement...

http://www.curlybones.com/2015/04/1-year-old-and-shoulder-replacement.html

Wednesday, April 1, 2015. 1 year old and a shoulder replacement. I can't believe my baby girl is already and year old! She's walking, slowly but steadily and babbles 24/7! She still adores Jimmy and loves playing with him but also loves her alone time with her books. She's a crazy little girl and she keeps us busy but she makes us smile and laugh through all of it. I'm so incredibly proud to be her Mama! Jimmy's doing well, he'll be two and a half this month which is mind-boggling to me!

3

Curly Bones: No replacement, miscarriage and a 3 Year Old...

http://www.curlybones.com/2016/01/no-replacement-miscarriage-and-3-year.html

Sunday, January 3, 2016. No replacement, miscarriage and a 3 Year Old. It's been so long since I've written anything on this page, I even forgot my password! Luckily I figured it out, so it's time for an update! On a more positive note, my little man turned 3, I can't believe it! Subscribe to: Post Comments (Atom). Want to send a private message?

4

Curly Bones: Ideas...

http://www.curlybones.com/2017/01/ideas.html

Tuesday, January 24, 2017. Subscribe to: Post Comments (Atom). Want to send a private message?

5

Curly Bones: Another miscarriage...

http://www.curlybones.com/2016/02/another-miscarriage.html

Saturday, February 13, 2016. On January 29th, my husband left work early and drove me to the OB. You have to take a pregnancy test before any biopsy, standard procedure but what threw us for a loop was that it came back positive! We were speechless, even my OB was shocked! I'd only been back on birth control for 2 months, so we all agreed it wasn't 100% but I'd always used it to control my hormones, I never actually needed it to prevent a pregnancy! Maybe this was all a one time thing, maybe we'll never ...

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From This Point. Forward.: Time To Wean

http://www.fromthispointforward.com/2014/10/time-to-wean.html

Tuesday, October 21, 2014. I swear it feels like just yesterday that CZL was born. But little CZL isn't quite so little anymore! He weighs more than 14 lbs and he is almost three months old! CZL is a beautiful, happy little baby and his big brother OZL completely adores him. We are a very happy little family! But, unfortunately (but not unexpectedly) I am not doing so well. Despite the fact that I am currently taking Enbrel and. Baby-related painful to accomplish). Just like last time. Despite being on m...

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: Megan Park & the Joint Decisions Web Chats!

http://www.fromthispointforward.com/2015/06/megan-park-joint-decisions-web-chats.html

Monday, June 8, 2015. Megan Park and the Joint Decisions Web Chats! I am happy to announce that I will be one of the panelists for the 2015 Joint Decisions. I will be speaking in the third web chat on September 24: "Creating a Strong Foundation: How to Build Your Care Team and Enlist Supporters in Your RA Journey." Mark your calendars now - and I'll be sure to share more information about my chat later! Before that, an exciting announcement about the first Joint Decisions. To register for the chat. Pain ...

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: My Seventh RA Anniversary

http://www.fromthispointforward.com/2015/06/my-seventh-ra-anniversary.html

Friday, June 5, 2015. My Seventh RA Anniversary. I was diagnosed with RA in June of 2008. It's so hard to believe, but seven years. Have passed since then! This year, the most important thing that happened was that I survived my second pregnancy. And gave birth to my beautiful second son, CZL. It has been a whirlwind adjusting to being a mom of two little boys! For the first time in four years. Eventually I realized that the Enbrel wasn't working as well as it used to, so I tried Orencia. My little guys ...

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: Facing Forward: Jen

http://www.fromthispointforward.com/2015/07/facing-forward-jen.html

Monday, July 20, 2015. Is a series that shares the lives of people living with arthritis and other invisible illnesses. The goal of the series is to see how we are similar and how we are different – and to remind us to keep moving forward because we aren’t alone! Juvenile idiopathic arthritis, uveitis, Ankylosking spondylitis, Sjögren's syndrome and raynauds syndrome. How are you currently treating your condition/conditions? What are the biggest challenges you have faced since your diagnosis? Pain in the...

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: Rituxan, Round 2

http://www.fromthispointforward.com/2015/04/rituxan-round-2.html

Tuesday, April 14, 2015. Rituxan, Round 2. Two weeks ago, I had my first infusion of Rituxan. It took more than six hours. I had some nausea and general flu-like malaise for a few days afterwards, but luckily I didn't have any major side effects. Those of you who follow me on Facebook. I hope it works. April 14, 2015 at 6:31 PM. Hey did you rituxanab end up working? My doctor gave me a choice of that one,but I chose actemra instead. July 30, 2015 at 1:15 AM. I think things are going pretty well with the ...

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: No, Seriously, I Can't Make This Stuff Up

http://www.fromthispointforward.com/2015/06/no-seriously-i-cant-make-this-stuff-up.html

Monday, June 15, 2015. No, Seriously, I Can't Make This Stuff Up. The bill for $6,044.81 for my first Rituxan infusion is still sitting on my desk. After an unbelievably ridiculous. Amount of effort last Tuesday. I was finally able to ascertain the fax number that I needed to send in my Explanation of Benefits. (NOTE: If you are a Rituxan patient and need to fax your EOBs before you can use your co-pay card, let me save you several hours of your life: the number is 888-332-9864.). I'm sorry.what now?

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: I Can't Make This Stuff Up, You Guys

http://www.fromthispointforward.com/2015/06/i-cant-make-this-stuff-up-you-guys.html

Tuesday, June 9, 2015. I Can't Make This Stuff Up, You Guys. Yesterday, I opened my mail to find this treasure: the bill from my first Rituxan infusion. The actual chemotherapy medication I received is listed as costing $10,237.40. There are also $628.15 in various materials and administration fees. Luckily (hahahahah! I'm only responsible for $6,044.81. Let's all just cry a little bit over that number. That's completely insane. To find out where to submit the paperwork. I'm a Rituxan patient" I click.

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From This Point. Forward.: Conferences

http://www.fromthispointforward.com/p/conferences.html

This page contains a list of the health-related conferences, summits, meetings, and web events I have attended or participated in, with my most recent one at the top. Arthritis Foundation Juvenile Arthritis Conference East. Attended and spoke at conference for children and youth living with JA in Philadelphia, Pennsylvania. Arthritis Foundation Juvenile Arthritis Conference West. Attended and spoke at conference for children and youth living with JA in Phoenix, Arizona. Joint Decisions Empowerment Summit.

fromthispointforward.com fromthispointforward.com

From This Point. Forward.: When Your Partner Is Sick

http://www.fromthispointforward.com/2015/06/when-your-partner-is-sick.html

Friday, June 19, 2015. When Your Partner Is Sick. When you live with a chronic illness, it can be really hard to smother feelings of frustration and unfairness when your partner is sick with a temporary one. Read more at RheumatoidArthritis.net. June 20, 2015 at 12:27 PM. Subscribe to: Post Comments (Atom). HOW TO FOLLOW ME. HOW TO CONTACT ME. If you are a mom (or want to become one! Living with a chronic illness, come join our support community on Facebook! Click the image above and request to join!

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From This Point. Forward.: New York Times: Specialty Pharmacies Proliferate, Along With Questions

http://www.fromthispointforward.com/2015/07/new-york-times-specialty-pharmacies.html

Monday, July 20, 2015. New York Times: Specialty Pharmacies Proliferate, Along With Questions. Read the article here. February 25, 2016 at 4:19 AM. Subscribe to: Post Comments (Atom). HOW TO FOLLOW ME. HOW TO CONTACT ME. If you are a mom (or want to become one! Living with a chronic illness, come join our support community on Facebook! Click the image above and request to join! Laughter is the Best Medicine. My Amazing Little Family. Pain in the Back. Pain in the Feet. Pain in the Hand. Pain in the Hip.

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Tuesday, January 24, 2017. Saturday, September 17, 2016. My husband surprised me and bought me a new Chromebook so I can get back to writing again! Now my son can officially take over my iPad, my daughter can nap and I can blog in peace. Well try to anyways. heehee. We started the entire IVF process with the fear that we might not even be able to have one child but our hopes were lifted when we found out we had 13 embryos. One child seemed possible again, why not 3! Tuesday, April 26, 2016. She's smart, ...

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