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Kay's Daddy's Leukemia BlogA parent's view of their child's leukemia treatment.
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A parent's view of their child's leukemia treatment.
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Kay's Daddy's Leukemia Blog | daddysleukemiablog.blogspot.com Reviews
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A parent's view of their child's leukemia treatment.
daddysleukemiablog.blogspot.com
Kay's Daddy's Leukemia Blog: A Dream...
http://daddysleukemiablog.blogspot.com/2013/03/a-dream.html
Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Sunday, 17 March 2013. I was walking through a crowded department store, holding a four year old Kay's hand. For some reason we were hurrying to meet Leonie. Kay said something to me, which I didn't quite catch. So I looked down at her and said, "What did you say, Kay? She looked up at me in that concerned way that she has and said, "Are you happy, Daddy? No, Kay, I'm not happy at all. 17 March 2013 at 12:52. This is a way ...
Kay's Daddy's Leukemia Blog: November 2011
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Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Sunday, 27 November 2011. Man, This is Hard. Why on earth have we not been allowed to see how she would grow up, what she would do with her life? Tuesday, 15 November 2011. That said in the last days the ache has resumed. I have been missing her so much again, longing to feel her lightweight frame snuggled up against me, longing to hear her laugh or her shouts of outrage when something wasn't going her way. Man, This is Hard.
Kay's Daddy's Leukemia Blog: September 2013
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Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Thursday, 19 September 2013. Looking back over the years I still have the sense that somewhere along the way I've somehow triggered fate's immune system. What other explanation can there be for all that we have suffered and lost? For the pain that we continue to experience? When did it become so hostile? Sometimes I wish that we treated each other like that everyday. What else? I'm so very, very tired.
Kay's Daddy's Leukemia Blog: August 2012
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Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Thursday, 2 August 2012. Happy Birthday, Kay XXXXXXXXXXXX. I miss you so incredibly much. I could feel you snuggling with us in bed, this morning. But it's no substitute for the real thing, the sound of your laugh, the warmth of your body, the smell of your hair. I love you so very very much, my beautiful girl. Happy Birthday from your Daddy. Subscribe to: Posts (Atom). Happy Birthday, Kay XXXXXXXXXXXX.
Kay's Daddy's Leukemia Blog: The Fear of Fear Itself
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Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Wednesday, 11 July 2012. The Fear of Fear Itself. I continue to be surprised and shocked by the depth and breadth and sheer insidiousness of the consequences of Kay's death and the profound effect that her loss has had on my very nature. I've been saying for quite sometime now that I would like to live a simpler and quieter life. I think that I've just understood a significant component of that desire. 11 July 2012 at 22:43.
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kaysmamasleukemiablog.blogspot.com
Kay's Mama's Leukemia Blog: oktober 2010
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Kay's Mama's Leukemia Blog. A collection of Kay's Mama's emails to friends and family. Zondag 31 oktober 2010. Back home en terug naar de realiteit. Vrijdag 8 oktober 2010. Wat is er te zeggen . Abonneren op: Berichten (Atom). Back home en terug naar de realiteit. Wat is er te zeggen .
Kay's Leukemia Blog: DNR Status Revised Downwards
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Saturday, 18 September 2010. DNR Status Revised Downwards. Kay was already dnr for some situations. The rules have now been formally changed so that she's dnr for more situations. You can read something into that I think. She has been put back on a controlled breathing program. Her blood gases have stabilised at more acceptable levels. But she's back to needing high ventilation pressures. Thus the risk of blowing a lung, thus the change in dnr status to "do nothing if she blows a lung". Hopefully the tid...
kaysmamasleukemiablog.blogspot.com
Kay's Mama's Leukemia Blog: juni 2010
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Kay's Mama's Leukemia Blog. A collection of Kay's Mama's emails to friends and family. Dinsdag 29 juni 2010. Dag 67 - Wat een opluchting. Maandag 28 juni 2010. Dag 63 tm 66. Woensdag 23 juni 2010. Dag 61 – Niet zo’n positief nieuws. Donderdag 17 juni 2010. Dag 55 - Een langzaam herstel maar veel duidelijkheid. Maandag 14 juni 2010. Kay is er redelijk positief over en klaagt alleen dat Anette in de nacht haar hele bed heeft natgespoten? Heeft gegeten. Yeeeeeeeeeeeeeeeeeeees! Zondag 13 juni 2010. Okidoki b...
Kay's Leukemia Blog: Bedtime Thought
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Saturday, 18 September 2010. The number of candles burning around the world for Kay means that we'll soon have to apply for a carbon emissions license and buy in quota from some green minded power plant. This could get expensive. Subscribe to: Post Comments (Atom). Kay Eleanor Howe: 2/8/2000 - 19/9/2010. Pattern of the Days. DNR Status Revised Downwards. Not Better, Not Worse, Just Different. Interesting News Not of Immediate Importance. Little acts of kindness. Knife pressed against thread. A bit to add.
Kay's Leukemia Blog: Results of Briefing
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Thursday, 16 September 2010. We've had another briefing session with the doctors this morning. Again it was emphasized that everything is maxed out, no more tricks in the cupboard. But Kay is just holding in there. Her O2 saturation is hovering around 93%, but her CO2 levels are too high. Also they are using very high pressures to ventilate her which increases the risk of exploding a lung, a terminal event. 16 September 2010 at 14:10. Hang in there Rob,. 16 September 2010 at 14:45. We have heard from aun...
Kay's Leukemia Blog: Tiny tiny wee bit of light
http://kaysleukemiablog.blogspot.com/2010/09/tiny-tiny-wee-bit-of-light.html
Wednesday, 15 September 2010. Tiny tiny wee bit of light. Kay's latest blood gas analysis shows that her 02 is very good and her CO2 has decreased. This indicates a tiny improvement in her breathing and creates a little bit of room w.r.t. ventilation. Also, the doctors have optimized the concentration of anti-fungal medication in her system to achieve maximum effect. They are pretty pleased with this result. Maybe, maybe there's a little less tension on the thread? Don't hold your breath. Wij hopen dat d...
Kay's Leukemia Blog: Knife pressed against thread
http://kaysleukemiablog.blogspot.com/2010/09/knife-pressed-against-thread.html
Thursday, 16 September 2010. Knife pressed against thread. I just went up to hear how things have gone over night. The good news is that her CRP infection indicator has dropped dramatically. But bad news is that her O2 saturation has been at the bottom end of acceptable all night and that they have been fighting to keep it stable. This is going to be another very long and agonizing day. And I hate waking up to another dose of terror/panic attack. 16 September 2010 at 08:25. With loads of love and hugs.
Kay's Leukemia Blog: Interesting News Not of Immediate Importance
http://kaysleukemiablog.blogspot.com/2010/09/interesting-news-not-of-immediate.html
Friday, 17 September 2010. Interesting News Not of Immediate Importance. Again, I'm bowled over by how things work in these circumstances. We just heard that not only has the donor agreement to give more bone marrow for a boost, but that this will happen on MONDAY. In principle Kay will get the boost on Wednesday, if I'm correct about the timing. It will take weeks for the boost to have an effect, but still. As a result her CMV medication is being changed to something less toxic. Hang on there, keep watc...
Kay's Leukemia Blog: Back to Yesterday
http://kaysleukemiablog.blogspot.com/2010/09/back-to-yesterday.html
Saturday, 18 September 2010. Kay's state seems to have stabilised at around the same level as yesterday afternoon, before she was switched onto self-triggered ventilation. The last blood gas showed that O2 was good but CO2 still too high. Next blood gas at 6pm. I forgot to mention that her CRP this morning was about 15% worse than yesterday and still high. Her chest xray was no better than yesterday. How's it going, fish? 18 September 2010 at 18:24. The fish here are still pushing! With you in spirit all...
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Daddy thinks Bruiser is pretty tough sh! T You have to be to hang with Daddy during playtime! Are you as tough as Bruiser? We'll soon see. Bruiser will be featured on all of Daddy's gear. T-shirt's, Work Shirts, Jocks, Patches and, of course, all of Daddy's leather gear! Daddy's Leather Shop isn't quite ready to show our full range of products. Check back soon! Get on Daddy's List. Wanna know when Daddy has all of his naughty stuff ready for you to browse, use and abuse? Send Daddy an email.
Daddy's Leather Shop
Daddy thinks Bruiser is pretty tough sh! T You have to be to hang with Daddy during playtime! Are you as tough as Bruiser? We'll soon see. Bruiser will be featured on all of Daddy's gear. T-shirt's, Work Shirts, Jocks, Patches and, of course, all of Daddy's leather gear! Daddy's Leather Shop isn't quite ready to show our full range of products. Check back soon! Get on Daddy's List. Wanna know when Daddy has all of his naughty stuff ready for you to browse, use and abuse? Send Daddy an email.
Daddy's Leather Shop
Daddy thinks Bruiser is pretty tough sh! T You have to be to hang with Daddy during playtime! Are you as tough as Bruiser? We'll soon see. Bruiser will be featured on all of Daddy's gear. T-shirt's, Work Shirts, Jocks, Patches and, of course, all of Daddy's leather gear! Daddy's Leather Shop isn't quite ready to show our full range of products. Check back soon! Get on Daddy's List. Wanna know when Daddy has all of his naughty stuff ready for you to browse, use and abuse? Send Daddy an email.
Daddys Lemonade – Wisdom I Learned from my Father
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Kay's Daddy's Leukemia Blog
Kay's Daddy's Leukemia Blog. A parent's view of their child's leukemia treatment. Thursday, 2 October 2014. Four years and counting. I wonder where she is? The reason I ask is that I feel her presence less often and less strongly as time goes by. I wonder if she's subject to time? Does she feel the minutes tick by as I do? Is she waiting to be with me, as I am with her? Or is she moving on? Rotating with on wheel of life? Is our world less relevant to her? Does she see across all time? I dreamt about her...
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Inside Conical Slide 'reverse style'. Double Conical Slides 'reverse style'. Dave Goodman's special slide. Homesick Mac's 'Barry Slide'. Dr Slide special slide. Adax Dörsam special slide. Pascal Mesnier special bullet. Andy Martin special slide. More like a feeling. The best combination of tone and handling. Great tone when you need it. There is an idea. We are a small family manufacturer for guitar slides:. We manually produce individual and custom made slides and steels using selected material.
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