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2 Pirates and a Princess: April 2014
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Wednesday, April 9, 2014. First do homework, then climb the walls. It's one of those "mommy" phrases you never expect to hear yourself saying. And yet you say it. And it works! Sofia gets homework packets from the sub-sep teacher each week. And each week, Sofia and I argue about doing her homework. At the end of each week, I stack yet another un-touched homework packet on the counter. So I decided we needed to find an out-of-the-house place that would be The Homework Place. In other news, we had a WILDLY...
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2 Pirates and a Princess: July 2014
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Monday, July 14, 2014. DS Convention, and Inspiration Porn. There were a few less-nice things, though. 1 Sofia is just not all that social. This one took me a bit by surprise. But only a bit. On Friday, we went to lunch with friends. We had seen Amy and her daughter Emma this past summer, and I had been talking to Sofia about how excited we were. Emma was also excited to see Sofia. And we have not seen Michelle and her daughter Kayla since the Boston convention 5 years ago. The kids ran around while the ...
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2 Pirates and a Princess: March 2014
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Wednesday, March 19, 2014. 321 A Day In The Life. Uh, no. Happy, not always. Friendly, only when she feels like it. Sweet, not when she's screaming at her brother because she's "ANGRY YOU! But as part of a 3-21 A Day In The Life Blog Hop by Downsyndromeblogs.org. Here's my Day In The Life of Sofia:. I get up, shower, and then have to get Sofia and Micah ready for school. Micah wakes up fine. Sofia often has to be dragged out of bed these days. Especially if it's my bed. (I don't get it...Then comes th...
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2 Pirates and a Princess: Been kinda busy!
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Thursday, December 18, 2014. Well, November was a whirlwind, prepping for (and then recovering from) Micah's Bar Mitzvah on November 15. He totally rocked it. My cheeks hurt from smiling so much. It was a really lovely wonderful weekend. Adam and Jenny slept over our house, so after we all went home, it was nice to visit a bit with them. Formal portrait on Thursday evening. Exhaustion after that, and clean-up. Now Micah is still working on Thank You notes - it'll take a while. Then gear up because this p...
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2 Pirates and a Princess: June 2014
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Monday, June 16, 2014. To Break, To Train, or To Guide. I started this reflection a few weeks ago, and finally have some time to get back to it. My daughter is strong willed. Very strong willed. She has Down syndrome, and people with that extra 21st chromosome are often known for their stubbornness. But Sofia takes it to new heights. A family history of OCD (my side), inflexibility (dad’s side) and all-out strong personality (both sides) have given her extra strength. She’s already perfect! What I want f...
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2 Pirates and a Princess: 31 for 21: Soul Sisters (October 22)
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Friday, October 24, 2014. 31 for 21: Soul Sisters (October 22). This one is about the people - mostly moms, but a few dads and grandparents, too - I am privileged to call Soul Sisters. I would never have met these people without Sofia. Some of them I have never met in person ("IRL" = "In Real Life"), yet I am often more connected to them than to my neighbors. Some I have had the great joy to meet, once, twice or even more. In Real Life, or just via the Internet, we have shared so much. Together, we paren...
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2 Pirates and a Princess: Oct. 20 - Princess?
http://fbfrothkopf.blogspot.com/2014/10/oct-20-princess.html
Thursday, October 23, 2014. Oct 20 - Princess? First, an article, originally found here: http:/ www.huffingtonpost.com/suzie-skougard/a-disney-princess-with-down-syndrome b 6006964.html. A Disney Princess with Down Syndrome. Could It Work? 10/20/2014 8:13 pm EDT. 10/20/2014 8:59 pm EDT. There is a petition sweeping the Internet asking Disney to incorporate a protagonist with Down syndrome, but there is a backlash brewing even within the special needs community asking, is it necessary? Ok, this will be my...
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2 Pirates and a Princess: January 2014
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Tuesday, January 14, 2014. Day three of a cluster migraine. I hate the barometer in January. Today I had to have help running Mazal Tots, the preschool program at school, because I couldn't see well enough to read them a book. Ugh. So I came home early (had to anyway, because I had to pick up Sam early, since he could leave school after his midterm) and relaxed.until Sofia's school called to say she'd thrown up all over the hallway. Poor Micah has to skip Debate club today so he can get a ride home.
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2 Pirates and a Princess: Ending a month of Down Syndrome Awareness posts
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Friday, October 31, 2014. Ending a month of Down Syndrome Awareness posts. October 28 - 31 for 21: That Gap next to the big toe. There are a bunch of common physical characteristics in people with Down syndrome. Some of the most common are:. Those beautiful slanted eyes. A flat nasal bridge. A single crease across the palm of the hand (transverse palmar crease). Excessive space between big toe and second toe. Brushfield spots in the iris of the eye. October 29 - 31 for 21: Processing. First, there is her...