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ebhelp.org

Support & Donate To EB Families | EBHelp.org

EBHelp.org is here to make it easy to read about & support individuals struggling with Epidermolysis Bullosa and donate DIRECTLY to them!

http://www.ebhelp.org/

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CONTACTS AT EBHELP.ORG

Kegan VanSickle

131Ne●●●●● Cir.

Ol●●he , Kansas, 66061

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1.91●●●●2353
ke●●●●@keganv.com

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Kegan VanSickle

131Ne●●●●● Cir.

Ol●●he , Kansas, 66061

US

1.91●●●●2353
ke●●●●@keganv.com

View this contact

Kegan VanSickle

131Ne●●●●● Cir.

Ol●●he , Kansas, 66061

US

1.91●●●●2353
ke●●●●@keganv.com

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Support & Donate To EB Families | EBHelp.org | ebhelp.org Reviews
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EBHelp.org is here to make it easy to read about & support individuals struggling with Epidermolysis Bullosa and donate DIRECTLY to them!
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1 keep in touch
2 help a fighter
3 shamila jayne alolon
4 lisa bagrova
5 euan khristoff villanis
6 kiba guzman cedeno
7 stevie marie hislop
8 lane salter
9 jayden elijah georges
10 paul martinez
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keep in touch,help a fighter,shamila jayne alolon,lisa bagrova,euan khristoff villanis,kiba guzman cedeno,stevie marie hislop,lane salter,jayden elijah georges,paul martinez,shea fell,teagyn grant,raul stan,derra sabo,samuel diaz,jackson baldwin,resources
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Support & Donate To EB Families | EBHelp.org | ebhelp.org Reviews

https://ebhelp.org

EBHelp.org is here to make it easy to read about & support individuals struggling with Epidermolysis Bullosa and donate DIRECTLY to them!

INTERNAL PAGES

ebhelp.org ebhelp.org
1

Jonathon Connolly - EB Help

http://www.ebhelp.org/jonathon-connolly

Ldquo;.fingers are scarring badly and he is always in pain. Jonathon is a 14 year old young man who loves hockey, football, and anything to do with firefighters. He has a lot of dreams but knows that some will be impossible because of his EB. He tries to not let EB get in his way and is not afraid to try new things. When Jonathon was born, he was perfect! Jonathon Needs Your Help. To Jonathon, please use the button below. View Jonathon's Amazon Wish List. Like Jonathon's Facebook Page. 83 Kenoza Ave #3.

2

Teagyn Grant - EB Help

http://www.ebhelp.org/teagyn-grant

Ldquo;.born with no skin on her feet and. Blood coming from her mouth. Teagyn was born on Sept. 19th, 2013 at 4:04pm. We immediately knew something was wrong when the doctor didn’t place my baby on my chest after I had delivered. It was the scariest moment of my life. After nine days of being in the NICU, we finally got to take our baby girl home. We were told that the diagnosis wouldn’t be confirmed for a few weeks but the doctors were 99% sure Teagyn has Epidermolysis Bullosa. Teagyn Needs Your Help.

3

Derra Sabo - EB Help

http://www.ebhelp.org/derra-sabo

Ldquo;Derra requests all donations be made to the charity. Via her donate buttons! My name is Derra Nicole and I was born with E.B. Life with EB is like a road trip. Sure, sometimes you run into a pot hole, get a flat tire or get lost once or twice, but for the most part it’s an awesome adventure! So i say crank up tunes, take lots of pics and enjoy the beautiful ride! You call me different and to that i say, “You bet! I tried being normal, it was boring! Live big, laugh hard & love passionately.

4

Shea Fell - EB Help

http://www.ebhelp.org/shea-fell

Ldquo;.there was no skin. On his right leg, and on both hands.”. Shea Frederick Fell was born in the late hours of the night on December 9, 2013 to ecstatic new parents Bryn and Christy Fell! However, the joyous homecoming that was expected was going to need to wait. Shea continues to surprise those closest to him. He is calm yet focused and takes in the world around him with great interest. His piercing blue eyes speak to your soul. His greatest accomplishment to date is melting the hearts o...He’s real...

5

John Hudson Dilgen - EB Help

http://www.ebhelp.org/john-hudson-dilgen

Donate To John Hudson. Ldquo;.asking to be included in the experimental procedures. Meet John Hudson Dilgen. John Hudson Dilgen is a wonderful boy who was born with a rare, genetic skin disease called Recessive Dystrophic Epidermolysis Bullosa (referred to as EB ). Only daily extensive bandaging, medication, and specialized medical and nursing care. John Hudson Needs Your Help. Donate To John Hudson. To John Hudson, please use the button below. Like John Hudson's Facebook Page. Send John Hudson A Gift.

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keganv.com keganv.com

Portfolio Archives - Kegan V

http://www.keganv.com/category/portfolio

February 10th, 2013. Auto Theme is a theme I developed for an automotive based Magento eCommerce website. The theme features a fully responsive design. Check out AutoTheme. February 5th, 2013. This is a personal project still currently in production to assist the children and their families suffering from Epidermolysis Bullosa. July 15th, 2010. June 21st, 2010. This website was built for Magner Construction, an excellent builder and remodeling company in the greater Boston area. Magner Construction n...

keganv.com keganv.com

Portfolio Archives - Kegan V

http://www.keganv.com/portfolio

February 10th, 2013. Auto Theme is a theme I developed for an automotive based Magento eCommerce website. The theme features a fully responsive design. Check out AutoTheme. February 5th, 2013. This is a personal project still currently in production to assist the children and their families suffering from Epidermolysis Bullosa. July 15th, 2010. June 21st, 2010. This website was built for Magner Construction, an excellent builder and remodeling company in the greater Boston area. Magner Construction n...

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Support & Donate To EB Families | EBHelp.org

Ldquo;Epidermolysis Bullosa. the worst disease. You've never heard of. These Are The Faces OF EB Fighters. Shamila Jayne Baby Zhamie Alolon is a pretty and happy little that you can’t help but be enamored by her sweet smile. With her cheery attitude and her sweet smile, you would wonder how she could …. It all started about week after Lane was born. He started getting blisters around his mouth and as he got older, they progressed to different parts of his body. The doctors weren’t sure what...Jayden was ...

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