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Embrace Life - Emma

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. Monday, August 17, 2015. Update on Infantile Spasms. Good news and bad news.Today we had another blood pressure check and it is still looking great! Here she is relaxing watching Doc McStuffins. Her sister Ava has taught her well. Here is another one I just love her ❤️❤️. She starts aquatic therapy in sept. And we are super excited about it thanks to our amazing PT. Jaclyn, Brandon, Ava and Emma. Friday, August 14, 2015. Well thi...

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Embrace Life - Emma | embracelifeemma.blogspot.com Reviews
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Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. Monday, August 17, 2015. Update on Infantile Spasms. Good news and bad news.Today we had another blood pressure check and it is still looking great! Here she is relaxing watching Doc McStuffins. Her sister Ava has taught her well. Here is another one I just love her ❤️❤️. She starts aquatic therapy in sept. And we are super excited about it thanks to our amazing PT. Jaclyn, Brandon, Ava and Emma. Friday, August 14, 2015. Well thi...
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Embrace Life - Emma | embracelifeemma.blogspot.com Reviews

https://embracelifeemma.blogspot.com

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. Monday, August 17, 2015. Update on Infantile Spasms. Good news and bad news.Today we had another blood pressure check and it is still looking great! Here she is relaxing watching Doc McStuffins. Her sister Ava has taught her well. Here is another one I just love her ❤️❤️. She starts aquatic therapy in sept. And we are super excited about it thanks to our amazing PT. Jaclyn, Brandon, Ava and Emma. Friday, August 14, 2015. Well thi...

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Embrace Life - Emma: May 2015

http://www.embracelifeemma.blogspot.com/2015_05_01_archive.html

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. 1 in 100,000. Facebook Page: Embrace Life Emma. Thanks to the amazing Noah Coughlan for dedicating a day to our sweet little Emma. Please follow his journey and give him the support he deserves. Follow him and read more about his run across America at https:/ www.run4rare.org. Here is his wonderful tribute to our baby girl: https:/ www.facebook.com/noahontherun? Jaclyn, Brandon, Ava and Emma. I Still Would Have Chosen You! When y...

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Embrace Life - Emma: Update on Infantile Spasms

http://www.embracelifeemma.blogspot.com/2015/08/update-on-infantile-spasms.html

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. 1 in 100,000. Facebook Page: Embrace Life Emma. Update on Infantile Spasms. Good news and bad news.Today we had another blood pressure check and it is still looking great! Here she is relaxing watching Doc McStuffins. Her sister Ava has taught her well. Here is another one I just love her ❤️❤️. She starts aquatic therapy in sept. And we are super excited about it thanks to our amazing PT. Jaclyn, Brandon, Ava and Emma. IFSPWhat d...

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Embrace Life - Emma: June 2015

http://www.embracelifeemma.blogspot.com/2015_06_01_archive.html

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. 1 in 100,000. Facebook Page: Embrace Life Emma. 3 Months and Seizure Update. Today our little bug is 3 months old! We love her so much and are so blessed to have her in our lives. At 3 months old these are the things she loves:. Eats 4 oz every 3 hours sometimes 2 hours. Playing with Ava (they talk like crazy). Weighs 11 pounds 4 ounces. Sleeps about 5 hours at night. Wears 3-6 months clothes. Loves to splash in the bathtub.

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Embrace Life - Emma: Fundraiser Yardsale was Amazing

http://www.embracelifeemma.blogspot.com/2015/07/fundraiser-yardsale-was-amazing.html

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. 1 in 100,000. Facebook Page: Embrace Life Emma. Fundraiser Yardsale was Amazing. Last Saturday was our fundraiser yardsale and it was an absolute hit! Jaclyn, Brandon, Ava and Emma. Subscribe to: Post Comments (Atom). Sisters by Chance, Friends by Choice. Emma was born on March 20, 2015 via c-section (planned-a repeat) after a healthy and normal pregnancy. She seemed to be a perfectly healthy . IFSPWhat does that mean? Dont Stop ...

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Embrace Life - Emma: April 2015

http://www.embracelifeemma.blogspot.com/2015_04_01_archive.html

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. 1 in 100,000. Facebook Page: Embrace Life Emma. Emma has brought such joy into our lives and we couldn't be more blessed to have her! She loves to eat! She is eating about 4 oz every 2-3 hours which makes us very happy because the doctors were concerned she would have Failure to Thrive (not want to eat) but nope she is eating like a champ! Watching cartoons and snuggling. Jaclyn, Brandon, Ava and Emma. There are a lot of other we...

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Utah Kids Foundation: August 2015

http://utahkidsfoundation.blogspot.com/2015_08_01_archive.html

Utah Kids Foundation is a non profit organization with its focus on special needs families. We have the largest online support group for parents of children who live in Utah or are seen at hospitals in Utah. We have a community calendar of all special needs events and so much more! Follow us and see where we might go! Visit us at www.utahkidsfoundation.com. Saturday, August 15, 2015. August Spotlight - KBG Testing. What does that mean? The medical world knows so much about KBG; the first written literatu...

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Utah Kids Foundation: Meet Emma - Our August Kid of the Month

http://utahkidsfoundation.blogspot.com/2015/08/meet-emma-our-august-kid-of-month.html

Utah Kids Foundation is a non profit organization with its focus on special needs families. We have the largest online support group for parents of children who live in Utah or are seen at hospitals in Utah. We have a community calendar of all special needs events and so much more! Follow us and see where we might go! Visit us at www.utahkidsfoundation.com. Saturday, August 1, 2015. Meet Emma - Our August Kid of the Month. Embrace Life" every second you can. Here is a link to her blog.

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Embrace Life - Emma

Embrace Life - Emma. Emma has a rare genetic disorder called Lissencephaly. Monday, August 17, 2015. Update on Infantile Spasms. Good news and bad news.Today we had another blood pressure check and it is still looking great! Here she is relaxing watching Doc McStuffins. Her sister Ava has taught her well. Here is another one I just love her ❤️❤️. She starts aquatic therapy in sept. And we are super excited about it thanks to our amazing PT. Jaclyn, Brandon, Ava and Emma. Friday, August 14, 2015. Well thi...

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