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Embracing ALS - Home

Two years ago, Abbie Rosenberg from CSRC had asked me if I would be interested in speaking at this conference. I would like to thank her for this opportunity. I have ALS ( Amyotrophic Lateral...

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Embracing ALS - Home | embracingals.com Reviews
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Two years ago, Abbie Rosenberg from CSRC had asked me if I would be interested in speaking at this conference. I would like to thank her for this opportunity. I have ALS ( Amyotrophic Lateral...
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2 respiratory care
3 airline travel
4 wheelchair power
5 on the road
6 hydration
7 links
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9 the diagnosis
10 living with als
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Embracing ALS - Home | embracingals.com Reviews

https://embracingals.com

Two years ago, Abbie Rosenberg from CSRC had asked me if I would be interested in speaking at this conference. I would like to thank her for this opportunity. I have ALS ( Amyotrophic Lateral...

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embracingals.com embracingals.com
1

Aids to Daily Living - Embracing ALS

http://www.embracingals.com/aids-to-daily-living.html

Aids to Daily Living. Automatic sensor faucets make it easier to wash your hands, brush your teeth, etc. They help you conserve energy, and they save you the effort of having to reach over to twist a knob or lift a lever. Some models, like the one pictured here (iTouchless EZ Faucet PRO). Attach to the end of the spout, making it easy to install, although they sometimes leak if the seal isn't perfect. They are inexpensive, however, and don't require much in the way of installation. Yes, for some people t...

2

Links - Embracing ALS

http://www.embracingals.com/links.html

Aids to Daily Living. Http:/ awareness.als.mda.org/anyones-life-story/kameda. Http:/ www.mercurynews.com/bay-area-news/ci 20383251/riding-fall-alss-thelma-and-louise-go-skydiving. Http:/ photos.mercurynews.com/2012/04/16/two-women-parachute-from-airplane-to-raise-awareness-about-als/. Http:/ www.contracostatimes.com/contra-costa-times/ci 20382470/deborah-petersen-als-sufferer-will-soar-while-she. Http:/ www.youtube.com/watch? Http:/ www.youtube.com/watch? Http:/ www.youtube.com/watch?

3

Hydration - Embracing ALS

http://www.embracingals.com/hydration.html

Aids to Daily Living. Fixed Water Access System for ALS Patients. This is a flexible tubing system that uses a Camelbak brand of water tubing with water reservoir. As you can see in Picture 1 below, the blue Camelbak brand of tube (Product A) is secured by a narrower plastic-covered bendable wire (Product B), bundled side by side with a couple of cable ties (Product C). Here are references to Amazon pages for each of the products:. 1) Camelbak HyderoBak 50 oz Hydration Pack. These water packs come with t...

4

On The Road - Embracing ALS

http://www.embracingals.com/on-the-road.html

Aids to Daily Living. For anything that plugs into a 110 outlet, you can try a 12V inverter that plugs into a cigarette lighter socket and converts it to 110 AC. HOWEVER, it is probably wise to only run one device at a time on the inverter, unless they all use a small amount of W (for example, charging your cell phone and your laptop at the same time doesn't use much power). Some models, like from DeVilbiss, have power cables that let you plug into a cigarette lighter socket, so you won't need an inverter.

5

Wheelchair Power - Embracing ALS

http://www.embracingals.com/wheelchair-power.html

Aids to Daily Living. I will describe how I made the modifications. I take no responsibility if others attempt the same or similar steps. Please do not contact me if you have questions or encounter problems. Please make sure you have ready access (preferably in the same room with you) to someone skilled and knowledgeable in electronics and wiring before you attempt any modifications. I used the following components:. Proudly powered by Weebly.

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LINKS TO THIS WEBSITE

alsohana.org alsohana.org

Helpful Links | ALSOHANA

http://www.alsohana.org/what-is-als/helpful-links-2

Our Board of Directors. Caregiver of pALS Support Group. Home Visits and Phone/email follow ups. Financial assistance with Respite Care. Caregivers of Persons with ALS Support Group. Our Board of Directors. Caregiver of pALS Support Group. Home Visits and Phone/email follow ups. Financial assistance with Respite Care. Caregivers of Persons with ALS Support Group. Below are Helpful Links:. Violet’s Web: Vi Jones-Medusky’s Blog. Our virtual bulletin board for Vi’s friends, family, and caregivers. THEIR MIS...

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Embracing ALS - Home

Aids to Daily Living. Hello, my name is Juri Kameda. Two years ago, Abbie Rosenberg from CSRC had asked me if I would be interested in speaking at this conference. I would like to thank her for this opportunity. I have ALS ( Amyotrophic Lateral Sclerosis. I’ve had MANY careers in my life - raising my two boys (three if you count my husband! How I became a Respiratory Therapist (which helps me live better today). Noticing Slow but Appreciative Changes. Giving a face to ALS. My visit with Gerry. Kristina m...

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