emmalinsjourney.blogspot.com emmalinsjourney.blogspot.com

emmalinsjourney.blogspot.com

Emmalin's Journey

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story...

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Emmalin's Journey | emmalinsjourney.blogspot.com Reviews
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This blog is about Emmalin&#39;s struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin&#39;s parents! This is our story...
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Emmalin's Journey | emmalinsjourney.blogspot.com Reviews

https://emmalinsjourney.blogspot.com

This blog is about Emmalin&#39;s struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin&#39;s parents! This is our story...

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emmalinsjourney.blogspot.com emmalinsjourney.blogspot.com
1

Emmalin's Journey: October 2013

http://emmalinsjourney.blogspot.com/2013_10_01_archive.html

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Wednesday, October 16, 2013. 4th Annual Journey of Hope Benefit. We can't put into words how grateful we are for everyone being so generous with their time and donations! Back Up and Running.

2

Emmalin's Journey: GI Issues - Hospital Admission

http://emmalinsjourney.blogspot.com/2015/03/gi-issues-hospital-admission.html

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Monday, March 9, 2015. GI Issues - Hospital Admission. Oh, one last thing I want to mention is that my family is amazing! Posted using BlogPress from my iPad. Journey of Hope Benefit Video (C...

3

Emmalin's Journey: December 2014

http://emmalinsjourney.blogspot.com/2014_12_01_archive.html

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Tuesday, December 9, 2014. A House Visit From Santa. Today Emmalin had a house visit from Santa! It was a good night :). Posted using BlogPress from my iPhone. Happy 96th Birthday Grandma Ruth.

4

Emmalin's Journey: A House Visit From Santa

http://emmalinsjourney.blogspot.com/2014/12/a-house-visit-from-santa.html

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Tuesday, December 9, 2014. A House Visit From Santa. Today Emmalin had a house visit from Santa! Subscribe to: Post Comments (Atom). Puppy Piano from Enabiling Devices. Play games on her IPad.

5

Emmalin's Journey: Day 4 (Tuesday) of the hospital admission

http://emmalinsjourney.blogspot.com/2015/03/day-4-tuesday-of-hospital-admission.html

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Tuesday, March 10, 2015. Day 4 (Tuesday) of the hospital admission. We will be doing some biopsies tomorrow around 10 / 10:30. They also are going to checking closer on if her felbatol (w...

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Emmalin's Journey

This blog is about Emmalin's struggles and triumphs living with the CDKL5 gene deficiency, early infantile epileptic encephalopathy. We will also blog a little about what challenges and joys we have had as her parents. God is SO good and we feel so blessed that He chose us to be Emmalin's parents! This is our story. Emmalin Age: 7.5. Tuesday, October 11, 2016. All in all, it was a great day! I'm hoping for no seizures during therapy tomorrow! Emmalin on the bike after she was done riding it). Here we are...

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