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eurohsp.eu

Euro-HSP

Past events and meetings. WELCOME TO OUR NEW WEBSITE! EURO HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! 1st Global SP Group Leader Meeting. Walk´n Roll 2014 - video. 8th CEF workshop in Paris 28-29 October 2015. 8th European Conference on Rare Diseases and Orphan Products 26-28 May 2016.

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Euro-HSP | eurohsp.eu Reviews
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Past events and meetings. WELCOME TO OUR NEW WEBSITE! EURO HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! 1st Global SP Group Leader Meeting. Walk´n Roll 2014 - video. 8th CEF workshop in Paris 28-29 October 2015. 8th European Conference on Rare Diseases and Orphan Products 26-28 May 2016.
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2 about euro hsp
3 history
4 who we are
5 statutes
6 bylaws
7 scientific breakthroughs
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10 events and meetings
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Euro-HSP | eurohsp.eu Reviews

https://eurohsp.eu

Past events and meetings. WELCOME TO OUR NEW WEBSITE! EURO HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! 1st Global SP Group Leader Meeting. Walk´n Roll 2014 - video. 8th CEF workshop in Paris 28-29 October 2015. 8th European Conference on Rare Diseases and Orphan Products 26-28 May 2016.

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eurohsp.eu eurohsp.eu
1

Euro-HSP

http://www.eurohsp.eu/about-euro-hsp/statutes.aspx

Past events and meetings. NAME - OBJECTIVES - ADDRESS. The European Federation of Hereditary Spastic Paraplegia (HSP), referred to hereinafter as EURO-HSP or the Federation, is made up of national groups from varying countries, and will operate according to the French Law of 1 July 1901. HSP is also known as Familial Spastic Paraparesis or Strümpell-Lorrain Syndrome. Its objectives are to:. Better all social, political and cultural matters connected with the welfare of people affected by HSP,. Federation...

2

Euro-HSP

http://www.eurohsp.eu/events-meetings.aspx

Past events and meetings. 26-05-2016 - 8th European Conference on Rare Diseases and Orphan Products 26-28 May 2016. 4th Nordic Conference on Rare Diseases 2016. 1st Global SP Group Leader Meeting. Walk´n Roll 2014 - video.

3

Euro-HSP

http://www.eurohsp.eu/about-euro-hsp/bylaws.aspx

Past events and meetings. As stated in Art. 5 of the Statutes, these by-laws contain additional details for the regulation and activities of Euro-HSP. They must not contain any provisions contrary to French law nor the Euro-HSP Statutes and are to be respected by all Federation member organizations and their delegates. While respecting utmost the Laws of France, the working language of the association is English. Creation was published at the Journal Officiel de la République Française. Investigating soc...

4

Euro-HSP

http://www.eurohsp.eu/membership.aspx

Past events and meetings. Name of your organization:. Name of your organization: (in your national language). Acronym:(e.g. NASPA). When was your organization founded? If your membership is accepted, can we add your website and logo to the Euro-HSP website? Telephone number: (with country code). Organization chairperson / president:. How many people are in your organization? Can you estimate the number of people living with HSP in your country? Details of your Euro-HSP Representative:.

5

Euro-HSP

http://www.eurohsp.eu/events-meetings/past-events-meetings.aspx

Past events and meetings. Past events and meetings. Past events and meetings. Here you can find various documention of past meetings and events. June 2016 - Paris, France. Euro-HSP 6th GA and annual meeting. June 2016 - Paris, France. Jean, Hermien, Martin and Dorthe participate in SPATAX conference. May 2016 - Rome, Italy. Marina and Giorgia arrange the 1st Italian awareness event "Potato Pants". May 2016 - Edinburgh, UK. February 2016 - Paris, France. February 2016 - Copenhagen, Denmark. Jean participa...

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LINKS TO THIS WEBSITE

vipsonlus.it vipsonlus.it

Partnership - Associazione Italiana Vivere la Paraparesi Spastica Onlus

http://www.vipsonlus.it/partnership

AI ViP.S. Onlus. Alcuni partecipanti al Progetto Freewhite 2015 hanno voluto condividere la lora esperienza scrivendo le proprie impressioni. Nel Giugno 2012 nasce in Valle d'Aosta, in seno ad Antenne Handicap. Il Centro di Ricerca Pietro Bass. Ne è partner fondatore. Il Centro si prefigge di studiare i benefici della pratica sportiva per le persone con disabilità. Nel Marzo 2012 AI ViPS. Entra a far parte di Antenne Handicap. Per condividere progetti comuni. Antenne Handicap Valle d’Aosta ONLUS. Per met...

sca-hsp.dk sca-hsp.dk

Foreningen for ATAKSI / HSP

http://www.sca-hsp.dk/links/links.html

Nyttige links og adresser. Andre europæiske links:. Eurordis værktøj. Center for specialundervisning for voksne. Logopæd/talepædagog Diana Holm. Uvildig konsulentordning til Handicapområdet. Indgang til det offentlige Danmark. Ministeriet for sundhed og forebyggelse. Disse links viser diverse hjælpemidler, som kan gøre hverdagen nemmere:. Trehjulede cykler m.v. Frederiksborggade 15, 2.sal 1360 København K. Tlf: (man-fre 10-14): 33 38 95 00. Fax: 33 38 95 99.

aepef.org aepef.org

Integración en otras entidades de la asociación AEPEF

http://aepef.org/integracion-en-otras-entidades

Asociación Española de Paraparesia Espástica Familiar. Asociación Española de Paraparesia Espástica Familiar. Código ético: Principios y valores. Integración en otras entidades. AEPEF en las redes sociales. Para comprender mejor la PEF. 2000 I Simposium internacional PEF. 2004 Jornada sobre Avances en la Espasticidad. 2007 I Jornadas sobre PEF. 2010 Curso Nacional sobre estrategias y manejo rehabilitador de la espasticidad. 2012 III congreso de PEF Actualidad en el Estudio y tratamiento de la espasticidad.

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Euro-HSP

Past events and meetings. WELCOME TO OUR NEW WEBSITE! EURO HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! 1st Global SP Group Leader Meeting. Walk´n Roll 2014 - video. 8th CEF workshop in Paris 28-29 October 2015. 8th European Conference on Rare Diseases and Orphan Products 26-28 May 2016.

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