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Gabrielle LaVerde Fighting Niemann-Pick Type C

This is a place for me, Gabrielle's Mother, to share my thoughts, current and previous, about the ordeal we experienced while trying to find a diagnosis. The purpose of this diary is to educate and create awareness for parents who are lost in their search for finding a diagnosis and a cure for their children, who may have Niemann-Pick Type C. For more information, visit us on Gabrielle's website, http://www.GabrielleLaVerde.com

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Gabrielle LaVerde Fighting Niemann-Pick Type C | gabriellelaverde.blogspot.com Reviews

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This is a place for me, Gabrielle's Mother, to share my thoughts, current and previous, about the ordeal we experienced while trying to find a diagnosis. The purpose of this diary is to educate and create awareness for parents who are lost in their search for finding a diagnosis and a cure for their children, who may have Niemann-Pick Type C. For more information, visit us on Gabrielle's website, http://www.GabrielleLaVerde.com

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6 save gabi

7 labels press releases

8 amen

9 ashley

10 hope

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Gabrielle LaVerde Fighting Niemann-Pick Type C | gabriellelaverde.blogspot.com Reviews

https://gabriellelaverde.blogspot.com

This is a place for me, Gabrielle's Mother, to share my thoughts, current and previous, about the ordeal we experienced while trying to find a diagnosis. The purpose of this diary is to educate and create awareness for parents who are lost in their search for finding a diagnosis and a cure for their children, who may have Niemann-Pick Type C. For more information, visit us on Gabrielle's website, http://www.GabrielleLaVerde.com

INTERNAL PAGES

gabriellelaverde.blogspot.com

1

Gabrielle LaVerde Fighting Niemann-Pick Type C: Addi and Cassi on ABC's Good Morning America

http://gabriellelaverde.blogspot.com/2008/05/addi-and-cassi-on-abcs-good-morning.html

Gabrielle LaVerde Fighting Niemann-Pick Type C. Friday, May 2, 2008. Addi and Cassi on ABC's Good Morning America. Watch this spectacular coverage on two young twins who suffer from Niemann-Pick Type C. Http:/ abcnews.go.com/GMA/OnCall/Story? Labels: Other Parents of Children with Niemann-Pick. Subscribe to: Post Comments (Atom). All of Gabrielle's Videos. The Big Give for Gabrielle Continues. Other Parents of Children with Niemann-Pick. FOX 35 Covers Gabrielle's Big Give. View my complete profile. Http:...

2

Gabrielle LaVerde Fighting Niemann-Pick Type C: Mother of Niemann-Pick Type A writes to me

http://gabriellelaverde.blogspot.com/2008/05/mother-of-niemann-pick-type-writes-to.html

Gabrielle LaVerde Fighting Niemann-Pick Type C. Wednesday, May 14, 2008. Mother of Niemann-Pick Type A writes to me. This parent, after seeing Gabrielle on Fox 35, sent me the following email. Her daughter lost her fight against Niemann-Pick Type A. Labels: Other Parents of Children with Niemann-Pick. Subscribe to: Post Comments (Atom). All of Gabrielle's Videos. The Big Give for Gabrielle Continues. Other Parents of Children with Niemann-Pick. FOX 35 Covers Gabrielle's Big Give. View my complete profile.

3

Gabrielle LaVerde Fighting Niemann-Pick Type C: Press Release, Deltona, Florida - May 9, 2008

http://gabriellelaverde.blogspot.com/2008/05/press-release-deltona-florida-may-9.html

Gabrielle LaVerde Fighting Niemann-Pick Type C. Friday, May 9, 2008. Press Release, Deltona, Florida - May 9, 2008. Central Florida Unites to Save Dying Child. DELTONA, FL/May 9, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588. 8221; Ryan's question caught Gisele, his mom, off guard, but she replied, “Of course! Friends of Gabrielle have asked me to help take the fund raising to the next level. I'm challenging Central Florida to come together as a family and rally around the LaVerde family...

4

Gabrielle LaVerde Fighting Niemann-Pick Type C: A Poem of Hope for Gabrielle

http://gabriellelaverde.blogspot.com/2008/05/poem-of-hope-for-gabrielle.html

Gabrielle LaVerde Fighting Niemann-Pick Type C. Tuesday, May 6, 2008. A Poem of Hope for Gabrielle. Hope comes in many colors, many reasons. It can come as a tiny spark of light in darkness. It can come softly as the falling rain. It can come when we are not even aware. Hope is a necessity of life for each of us. It is what we hold onto when the rope breaks. It is the cry of a sick child on a dark night. It is a mother's prayer for her family. Hope can be fragile or strong and unmoving. Send your kind Do...

5

Gabrielle LaVerde Fighting Niemann-Pick Type C: One Year Later, by Danielle LaVerde

http://gabriellelaverde.blogspot.com/2008/12/one-year-later-by-danielle-laverde.html

Gabrielle LaVerde Fighting Niemann-Pick Type C. Thursday, December 11, 2008. One Year Later, by Danielle LaVerde. One Year Later …. Even though the diagnostic process was exhausting, I always felt that we would eventually find the answer and there would be a magic pill that would make her better. I just knew that God would not allow the anguish to continue. So when the diagnosis was confirmed, I was so angry. I spent months asking “why”. Why my child? Why a disease so devastating? 8220;When we cannot tra...

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Gabrielle LaVerde Fighting Niemann-Pick Type C

Gabrielle LaVerde Fighting Niemann-Pick Type C. Monday, September 19, 2011. Almost Four Years Ago. This was the first video published for Gabi, February 12th, 2008. Hard to believe it will be four years soon. We have not updated anyone, because there is no good news to report. Gabi's health is declining. We appreciate all of the support and prayers. Links to this post. Thursday, December 11, 2008. One Year Later, by Danielle LaVerde. One Year Later …. Why a disease so devastating? I began to look at Gabr...

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