canavanfoundation.org
Websites | Canavan Foundation
http://www.canavanfoundation.org/websites
The Cause of Canavan Disease. How Canavan Disease is Inherited. Carrier Screening for Canavan Disease. Am I At Risk? Talking to your Doctor. How is Screening Done? Where is Screening Done? Who Should be Screened? When is the Best Time to be Screened? Screening for Other Genetic Diseases. Resources and Support for Affected Families. Rabbis and Other Clergy. Brochures and Other Downloads. Where is Screening Done? Jewish Heritage and Identity in the U.S. Resources and Support for Affected Families. Dedicate...
msgrcc.org
Mountain States Genetics Regional Collaborative Center
http://www.msgrcc.org/resources/resources.html
Moutain State Genetic Regional. Information on Public Health. Monthly Message from the Project Director. American Academy of Family Physicians (AAFP). American Academy of Pediatrics (AAP). Genetics in Primary Care Institute. National Center for Medical Home Implementation (NCMHI). American College of Medical Genetics (ACMG). Association of Public Health Laboratories (APHL). Newborn Screening Technical assistance and Evaluation Program (NewSTEPs). Association of University Centers on Disabilities.
geneticsinwisconsin.wisc.edu
Internet Resources | Genetics In Wisconsin * Genetic Disease and Public Health Awareness
http://www.geneticsinwisconsin.wisc.edu/resources-for-families-internet-genetics-resources-for-families.htm
University of Wisconsin – Madison. Primary and Specialty Care Providers. Indications for Genetics Evaluation. Wisconsin Cancer Risk Program Network (WICRPN). Find a Genetics Provider. Genetic Testing and Insurance. The Affordable Care Act (ACA). Genetics Policy and Law. General Genetics Resources and Organizations. This is an excellent resource for all who wish to advocate on behalf of individuals with genetic conditions, and for those who wish to be self-advocates. From Genetic Alliance. Genes in Life i...
inspire.com
Rare Disease and Genetic Conditions Support Group & Community - Inspire
https://www.inspire.com/groups/rare-disease-and-genetic-conditions
Rare disease and genetic conditions support group and discussion community. Inspire has 857,562. Members, 23,401. Of whom are part of this community. By posting in this community, you are also joining this community. Start a journal entry. Join now to create a new post. How my disease has changed my life. My child and school. My disease has no treatment. Medicare, medicaid and medical insurance. Posts I replied to. Posts by my friends. By posting, you will automatically become a member of this community.
cancer1.chwtraining.info
Genetics | Cancer1Source.org
http://cancer1.chwtraining.info/genetics
Boston Prostate Cancer Walk. One source for free, customized cancer resources. By Cancer Resource Foundation, Inc. One source for cancer help. Does It Run In the Family? The Does It Run In the Family? How Do I Talk to My Family About My Genetic Condition? Is a place to learn about all the ways genetics is a part of your life. On this site you will learn how genetics affects you and your family, why you should talk to your healthcare providers about genetics, how to get involved in genetics research, ...
familyheart.stanford.edu
Genetic Testing - Clinics - Stanford Center for Inherited Cardiovascular Disease - Stanford University School of Medicine
http://familyheart.stanford.edu/clinics/genetictesting1.html
Stanford Center for Inherited Cardiovascular Disease –. Genetic testing allows us to look at your DNA to identify any differences that could predispose you to developing certain health problems. We recommend genetic counseling. Before genetic tests are ordered to discuss the implications of the testing for you and your family. When results are available our team will make recommendations about follow up for both you and your family, based on the results. Patient Resource: http:/ genesinlife.org.
geneticalliance.org
Advocacy, Education & Empowerment | GeneticAlliance.org
http://geneticalliance.org/x839801
Advocacy, Education and Empowerment. Patient Navigation: Care Coordination Meets Peer Support. Did you miss our webinar on Patient Navigation? Watch the recording today! Genetic Alliance is Hiring! Now hiring: Program Assistant, Expecting Health; Network Coordinator, PCORnet. Click the image to read the job descriptions and apply today! Sharon Terry to Speak at TEDMED 2016. Sharon Terry will speak at TEDMED 2016 this upcoming November! Social Entrepreneurship and Innovation. With better health as the goa...
inspire.com
Rare Disease and Genetic Conditions Support Group & Community - Inspire
https://www.inspire.com/inspire/group/rare-disease
Rare disease and genetic conditions support group and discussion community. Inspire has 857,663. Members, 23,403. Of whom are part of this community. By posting in this community, you are also joining this community. Start a journal entry. Join now to create a new post. How my disease has changed my life. My child and school. My disease has no treatment. Medicare, medicaid and medical insurance. Posts I replied to. Posts by my friends. By posting, you will automatically become a member of this community.
geneticalliance.org
Support Genetic Alliance: Donate | GeneticAlliance.org
http://www.geneticalliance.org/donate
Support Genetic Alliance: Donate. Genetic Alliance's mission is to improve health by engaging communities and individuals. Your gifts to Genetic Alliance help support and promote our programs, and are essential to our continued success. In the last several years we have:. For passage of the Genetic Information Nondiscrimination Act. The cross condition cooperative registry and biobank. The customizable Family Health History Guide. The nation's newborn screening clearinghouse. Except where otherwise noted...
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