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HOME | Georgia PKU Connect

YOUR DIET QUESTIONS AND IDEAS. Welcome to Georgia PKU Connect, Inc. We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives. New Medical Nutrition Equity Act Coalition. March 6, 2018. The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Announcing New Diet Information Section.

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YOUR DIET QUESTIONS AND IDEAS. Welcome to Georgia PKU Connect, Inc. We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives. New Medical Nutrition Equity Act Coalition. March 6, 2018. The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Announcing New Diet Information Section.
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HOME | Georgia PKU Connect | georgiapku.org Reviews

https://georgiapku.org

YOUR DIET QUESTIONS AND IDEAS. Welcome to Georgia PKU Connect, Inc. We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives. New Medical Nutrition Equity Act Coalition. March 6, 2018. The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Announcing New Diet Information Section.

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Georgia PKU Connect :: About Us

http://georgiapku.org/AboutUs.html

About Georgia PKU Connect. Georgia PKU Connect was founded in 2008 by three mothers, each with a child born with Phenylketonuria (PKU). Support for the organization was cultivated through an online, Georgia focused PKU Yahoo Group and the inspirational spirit of Emory University’s Metabolic Nutrition Team. The successful launch of Georgia PKU Connect can also be attributed to the positive energy and contributions of local families and adults with PKU! Kristen Vanags, President, Advocacy. Atlanta, GA 31141.

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Georgia PKU Connect :: Get Involved

http://georgiapku.org/GetInvolved.html

Click above to donate online. With your help, we can connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives! Make donations payable to. Georgia PKU Connect and mail to:. Atlanta, GA 31141. How We Support Our Mission. National Research for a Cure. Community Support Treatment Management Tools (gram scales, food lists, and cookbooks for those in need), Camp Connect. Check out News and Events. Become a Member, It's Free.

3

Georgia PKU Connect :: News & Events

http://georgiapku.org/NewsEvents.html

News About Georgia PKU Connect. Will be held August 26 - 28 in Winder, Georgia! For registration and volunteer information, please contact Camp Director Adele Hunt at. If you or your child has a genetic metabolic condition, you don’t have to walk this journey alone. Get connected and feel supported! Fill out our Get Connected Form. Georgia PKU Connect donates $10,000. More news about Georgia PKU Connect. Georgia PKU Connect Events. August 26 28, 2016. Registration closes August 11th! Donate to the Cause.

4

Georgia PKU Connect :: Resources

http://georgiapku.org/Resources.html

Contact Information for the PKU Clinic in Georgia. Emory Clinic Department of Human Genetics. 2165 North Decatur Road. Decatur, GA 30033. PKU Medical and Dietary Guidelines. Information and Tools for Managing PKU in School. Insurance Coverage News and Advocacy Tools. Comprehensive manual on effectively managing PKU on a daily basis). Web-based PKU diet management tool). PKU Georgia Online Support Group has gone social! Have you joined the NPKUA? Medical Food (Formula) and Low-Protein Food Companies.

5

Georgia PKU Connect :: Advocacy

http://georgiapku.org/Advocacy.html

The Georgia Governor’s Office of Budget and Planning and the Georgia Department of Public Health are currently reviewing a potential solution to improve access to medical foods (formula and modified low protein foods). Georgia PKU Connect is hopeful a fully funded program to assist children and adults with no medical food coverage or financial hardships will be put in place no later than January 2016. We always enjoy hearing from our members and welcome your ideas and suggestions! Thank you to Georgia’s ...

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pkuparlor.com pkuparlor.com

PKU-friendly Soups | PKU Parlor

https://pkuparlor.com/tag/pku-friendly-soups

Maternal PKU Knowledge Test. Tag Archives: PKU-friendly Soups. October 11, 2014 · 9:22 am. Roasted Butternut Squash and Sweet Potato Bisque Soup. Fall has arrived and lately I’ve been craving butternut squash. To satisfy that craving, I tried my hand at a new soup this past weekend that incorporated both a hearty butternut squash and a couple sweet potatoes. Combined, the two vegetables make a high-vitamin, fiber-dense dish that’s also very tasty! 1 large butternut squash (1,050 gm. cooked weight*).

pkuparlor.com pkuparlor.com

Uncategorized | PKU Parlor

https://pkuparlor.com/category/uncategorized

Maternal PKU Knowledge Test. October 24, 2014 · 10:24 pm. Meet Madison Grace Merrifield. On October 19, 2014, Brandon and I welcomed our daughter Madison Grace into our lives. Referred to many times over by our nursing team as “nothing but a peanut,” Miss Maddie weighed 5 pounds, 9 ounces and measured 18 1/2 inches when she was born at 4:41 pm. March 10, 2014 · 2:01 pm. This recipe from The Wooden Spoon sounds absolutely delicious! Can’t wait to give it a try. 2 tbsp Kingsmill egg replacer. Home Blood Ph...

medicalfood.com medicalfood.com

http://www.medicalfood.com/learning-center/community--events

To optimize your experience on our website, please tell us which of the following best describes you:. Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Healthcare Professionals ›. Sign Up for Email Updates ›. Our Products Formula and Low Protein Foods. Learning Center Education and Resources. Low Pro Living Blog. Venue...

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Resources - Cook for LoveCook for Love

http://cookforlove.org/resources-2

Low protein recipes for the PKU community. You might not love to cook,. But sometimes you need to cook for love. Soups, Salads and Such. 8212; an amazing new resource by Virginia Schuett that allows you to look up the phe content of all of the foods listed in her book on any computer or handheld device. A must for everyone. Low Protein Food List for PKU. US Dept. of Agriculture ( USDA. 8211; the USDA database provides Standard References for the nutrients (including phe) of thousands of foods. One of a s...

pkuconnect.com pkuconnect.com

http://www.pkuconnect.com/learning-center/community--events

To optimize your experience on our website, please tell us which of the following best describes you:. Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Healthcare Professionals ›. Sign Up for Email Updates ›. Our Products Formula and Low Protein Foods. Learning Center Education and Resources. Low Pro Living Blog. Venue...

pkuparlor.com pkuparlor.com

Maternal PKU Knowledge Test | PKU Parlor

https://pkuparlor.com/maternal-pku-knowledge-test

Maternal PKU Knowledge Test. Maternal PKU Knowledge Test. Knowledge is power, right? That appears to be the approach that PKU-related research has taken over the past two decades. Childbearing age women with PKU: Assessment of care needs and preferences. Acknowledged that while awareness is an important component, perhaps education alone is not enough to improve pregnancy success rates among adult PKU women. A a blood disease. B an enzyme deficiency. C a kidney disorder. D a protein deficiency. E none of...

pkuparlor.com pkuparlor.com

Six things to know when selecting a new PKU clinic | PKU Parlor

https://pkuparlor.com/2013/11/06/six-things-to-know-when-selecting-a-new-pku-clinic

Maternal PKU Knowledge Test. Low-protein stuffing →. November 6, 2013 · 8:44 am. Six things to know when selecting a new PKU clinic. Perhaps no one has better illustrated the importance of a solid physician-patient relationship than Jessie Gruman, the founder and president of the Center for Advancing Health. When she served as a guest blogger for KevinMD.com. In the post, she writes:. With that in mind, here are six things to know when selecting a new PKU clinic:. The federal law known as HIPAA, short fo...

pkuparlor.com pkuparlor.com

Roasted Butternut Squash and Sweet Potato Bisque Soup | PKU Parlor

https://pkuparlor.com/2014/10/11/roasted-butternut-squash-and-sweet-potato-bisque-soup

Maternal PKU Knowledge Test. Home Blood Phe Monitor: A PKU Pregger’s Dream. Meet Madison Grace Merrifield →. October 11, 2014 · 9:22 am. Roasted Butternut Squash and Sweet Potato Bisque Soup. 1 large butternut squash (1,050 gm. cooked weight*). 146 gm. yellow onion, chopped. 9 gm (1 tsp.) of minced garlic. 2 tbs of butter. 709 gm. sweet potatoes/yams, peeled and cut into chunks. 907 gm. (32 oz.) Swanson’s Certified Organic Chicken Broth. 1 tsp ground nutmeg. Preheat oven at 375. Bake squash for 60 minutes.

pkuparlor.com pkuparlor.com

PKU Definitions | PKU Parlor

https://pkuparlor.com/pku-definitions

Maternal PKU Knowledge Test. Phenylketonuria (FEN-nil-KEE-toh-NOO-ree-ah) or PKU is a genetically inherited disorder that prevents the full breakdown of phenylalanine (FEN-nil-ALA-neen), an amino acid found in many foods that are high in protein. PKU is treatable by following a strict diet consisting of a specially formulated protein drink made up of the essential and non-essential amino acids (minus phenylalanine) and low-protein foods. Here are some other PKU-related terms you may need to know:. Short ...

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HOME | Georgia PKU Connect

YOUR DIET QUESTIONS AND IDEAS. Welcome to Georgia PKU Connect, Inc. We are dedicated to Georgia's Phenylketonuria (PKU) community. Our mission is to connect PKU families and individuals with the support and resources they need to manage PKU and live healthy, productive lives. New Medical Nutrition Equity Act Coalition. March 6, 2018. The National PKU Alliance has teamed up with 29 other organizations to pass the Medical Nutrition Equity Act (MNEA) by 2018! Announcing New Diet Information Section.

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