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Home - Welcome to gopi3ksA support group for people with the PIK gene mutation & other overgrowth conditions
http://www.gopi3ks.com/
A support group for people with the PIK gene mutation & other overgrowth conditions
http://www.gopi3ks.com/
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Mandy Sellars
Mandy Sellars
8 Bol●●●●●venue
Acc●●●ton , Lancashire, BB5 6HN
GB
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Mandy Sellars
Mandy Sellars
8 Bol●●●●●venue
Acc●●●ton , Lancashire, BB5 6HN
GB
View this contact
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Home - Welcome to gopi3ks | gopi3ks.com Reviews
https://gopi3ks.com
A support group for people with the PIK gene mutation & other overgrowth conditions
gopi3ks.com
Links - Welcome to gopi3ks
http://www.gopi3ks.com/links
Your browser version is outdated. We recommend that you update your browser to the latest version. Patient Stories and Experiences. Patient Stories and Experiences. The following are links to various websites and groups that support those. Living with or affected by different types of overgrowth conditions:. For those living with and/or supporting those with the AKT1 mutation. Proteus Syndrome UK Facebook page: www.facebook.com/groups/178991428879404/. Http:/ www.proteus-syndrome.org. Or follow them on T...
Segmental Overgrowth Syndromes - Welcome to gopi3ks
http://www.gopi3ks.com/segmental-overgrowth-syndromes
Your browser version is outdated. We recommend that you update your browser to the latest version. Patient Stories and Experiences. Patient Stories and Experiences. Segmental overgrowth describes a condition where there is an excess of growth in different parts of the body, but normal growth elsewhere. Examples of segmental overgrowth conditions include:. PIK3CA related overgrowth spectrum (PROS). Congenital lipomatous overgrowth, vascular malformations, epidermal naevi and skeletal abnormalities (CLOVES).
Patient Stories & Experiences - Welcome to gopi3ks
http://www.gopi3ks.com/patient-stories-experiences
Your browser version is outdated. We recommend that you update your browser to the latest version. Patient Stories and Experiences. Patient Stories and Experiences. Patient Stories and Experiences. My name is Mand. Y Powell I am 49 years of age,. Growing up with this condition affected me greatly, physically it was hard as my arm was growing at a rapid rate and nobody knew why, it was however the emotional battle that was harder, my clothes needed to be specially made in order to fit me. I found out I wa...
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Home - Welcome to gopi3ks
Your browser version is outdated. We recommend that you update your browser to the latest version. Patient Stories and Experiences. Patient Stories and Experiences. Are a support group for patients and the families of patients with a Segmental overgrowth in the PIK gene. Our aim is to provide information, advice and support, and to share our own experiences. So please feel free to take a look around our site and if you have any questions then you can contact our chairperson Mandy on the contact us page.
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