headsaga.blogspot.com headsaga.blogspot.com

headsaga.blogspot.com

headsaga

Saga of a lifelong battle with Chiari Malformation and Ehlers-Danlos Syndrome.

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headsaga | headsaga.blogspot.com Reviews
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Saga of a lifelong battle with Chiari Malformation and Ehlers-Danlos Syndrome.
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1 trailer
2 posted by
3 no comments
4 labels trailer
5 1 comment
6 labels chiari
7 tethered cord
8 today i
9 ordered new glasses
10 had blood work
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trailer,posted by,no comments,labels trailer,1 comment,labels chiari,tethered cord,today i,ordered new glasses,had blood work,3 comments,do's and don'ts,new job,this week alone,double ugh ugh,father died,i was tagged,when y,2 comments,i'm baaaaack,october
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headsaga | headsaga.blogspot.com Reviews

https://headsaga.blogspot.com

Saga of a lifelong battle with Chiari Malformation and Ehlers-Danlos Syndrome.

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1

headsaga: February 2008

http://headsaga.blogspot.com/2008_02_01_archive.html

Tuesday, February 5, 2008. Ou are "Tagged" you are suppose to write seven random things about yourself. It's taken a while for my response, but Dear Husband (DH) "Tagged" me some time back. So here goes:. 1) It would appear from my blog that pink is my favorite color. It is really. 3) I worked as the office manger for the Victim Assistance Unit of a large police department for 12 years. 4) I was on the dean's list 2 semesters in a row while I attended the University of Northern Colorado. Same type of ong...

2

headsaga: Tethered cord no more.?.?.?

http://headsaga.blogspot.com/2008/05/tethered-cord-no-more.html

Friday, May 30, 2008. Tethered cord no more? Posted by Bobby, the husband at 1:42 am Denver time. Ps, thank you so much aunti Do for the ride, and to mom, dad, Katie, and my sister for being there. Love you all. Thank you to the greater Chiarian Family. We love you all as well. Sharon (aka Sitting Porcupine). Sharon.Get well soon. My thoughts and prayers are with you throughout your recovery. May 30, 2008 at 6:11 PM. Subscribe to: Post Comments (Atom). Today Sitting Porcupine is feeling. On a typical Nov...

3

headsaga: Surgery - Round 3

http://headsaga.blogspot.com/2008/05/surgery-round-3.html

Tuesday, May 13, 2008. Surgery - Round 3. So I saw world famous Dr. O yesterday. My brain has shifted into the space made last year basically absorbing all the room created to allow free fluid flow. Doc says this is not too much to worry about in itself as there is less brain compression. After my 1st flow study and 12th or so MRI, the word is more surgery. This time for Tethered Cord. It has been a very long day so that is all for now, but I will try and post more in the next few days. To leave a commen...

4

headsaga: Working World Ready for my Return ?

http://headsaga.blogspot.com/2008/03/going-back-to-work.html

Saturday, March 8, 2008. Working World Ready for my Return? Probably not. Because I'm not. It's looking like I won't be ready soon, if ever. New pain (considered going to the ER this week), new nausea, all sorts of new weird things. Started a symptom list for an appointment with a new neurologist. Refer Dear Husband's (DH) blog - Billy Bob's Wild Ride Neuro. Post dated February 28, 2008). Thought I could then just type it here as well. The complete list. Is a full 3 pages long. Since these things occurre...

5

headsaga: Do I dare be hopeful ?

http://headsaga.blogspot.com/2008/05/do-i-dare-be-hopeful.html

Saturday, May 31, 2008. Do I dare be hopeful? So far the long headache is in check. We are both afraid to declare victory, and Dr Oro said I lost a significant amount of CSF and expected me to have a CSF headache, but so far the headache itself is way down and though we dont want more disappointment, so far so good. I can probably go home tomorrow. TTYS. Sharon. Sent via BlackBerry from T-Mobile. Sharon (aka Sitting Porcupine). Subscribe to: Post Comments (Atom). Today Sitting Porcupine is feeling. On a ...

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billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: The PET scan results are in... and the winner is...

http://billybobswildride.blogspot.com/2014/08/the-pet-scan-results-are-in-and-winner.html

Thursday, August 28, 2014. The PET scan results are in. and the winner is. There is good news and there is not so good news. First the good news. Myeloma cells throughout the body were NOT found. It would have been a gi-normous surprise if they were, given the negative bone marrow biopsy report, blood tests, and urine electrophoresis. That was the good news and it is indeed very very good. But Life is not always cherries. (Cherry season is over in Colorado.) :-(. Damn these lytic lesions. The area where ...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: Fee Fi Fo Fum, I'll Grind yer Bones...

http://billybobswildride.blogspot.com/2014/08/fee-fi-fo-fum-ill-grind-yer-bones.html

Wednesday, August 13, 2014. Fee Fi Fo Fum, I'll Grind yer Bones. To obtain the necessary diagnostic information. AS ALLWAYS, PLEASE CLICK ON IMAGES FOR FULL SIZE AND EFFECT. PLEASE CLICK ON IMAGES FOR FULL SIZE AND EFFECT. Notbillybob was at the "U" for the dreaded bone marrow biopsy yesterday. PLEASE CLICK ON IMAGES FOR FULL SIZE AND EFFECT. He didn't publish this post then because of an exquisite little inconvenience known as. STINKFOOT! SCRATCH THAT, SCRATCH THAT! But it's all done. Wow. There...Lets ...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: April 2012

http://billybobswildride.blogspot.com/2012_04_01_archive.html

Saturday, April 14, 2012. Educational video describing the condition known as De Quervain's Syndrome. Subscribe to: Posts (Atom). Angel of death by Kristoffer Frisk (c). Solitary plasmacytoma is a large solitary focus of plasma cell proliferation. This tumor has a median patient age of approximately 10 years younger than multiple myeloma. Complete Information on this Tumor. This tumor has a median patient age of approximately 10 years younger than multiple myeloma, and affects men more than women. Most a...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: February 2011

http://billybobswildride.blogspot.com/2011_02_01_archive.html

Thursday, February 10, 2011. CELLS GONE WILD-diagnosing liver cancer. Here is a pretty good article about diagnosing Hepato Cellular Carcinoma, also known as LIVER CANCER, or Primary Liver Cancer, as apposed to secondary Liver Cancer aka liver metastases. It seems to this liver that the techneque to diagnose these CELLS GONE WILD is as much art as it is science, and even maybe a small dose of VOODOO thrown in for good/bad measure. Here is what the radiologist said about it-copied in shortened version:.

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: November 2014

http://billybobswildride.blogspot.com/2014_11_01_archive.html

Wednesday, November 19, 2014. One down, twenty four to go. Hello, Facebook group for Billybobs wildride! This is Billybob, the worlds wackiest liver reporting the latest on the bone tumor aka Lester Diamond. Yesterday was Notbillybob's first radiation treatment at the CU cancer center. 25 in total have been planned, one down,twenty four to go.Once a day, every day through Christmas. This years' Christmas present from Sharon, a 1965 vintage Soviet NBC warfare watch. Molinja 3602, made in USSR. To date, no...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: September 2012

http://billybobswildride.blogspot.com/2012_09_01_archive.html

Saturday, September 15, 2012. AA Birthday Number 6 and "The Taste", revisited. Welcome to Billybob's Wildride! Or any other alcohol). So, to celebrate number 6, we are going to repost one way back from AA birthday number 2. Happy birthday, you big ol' lunker, and many more to come! Love, Billybob , the Lung brothers, mister HEART, the Gutz family, Mr. Spleen Mcqueen, Kidney one and Kidney two, "the Zombie monster" rib tumor, De Quervains pains, and all the Piggies who went to market! About the "DT's" or ...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: Today, a PET scan at UCHSC,aka the "U"

http://billybobswildride.blogspot.com/2014/08/today-pet-scan-at-uchscaka-u.html

Monday, August 25, 2014. Today, a PET scan at UCHSC,aka the "U". Today our Notbillybob as I call him is on his way with Sharon to the "U" for a PET scan, or Positron emission tomography. They will inject radioactive SUGAR. This sugar is supposed to stick to any cancer cells. This will make GLOWWWWWW. If there are more Lester Diamond the plasmacytoma from HELL copies, they will be found. We think. This is supposed to find clumps. As usual, click the images! More on this later. This tumor has a median pati...

billybobswildride.blogspot.com billybobswildride.blogspot.com

Billy Bob's Wild Ride: Graduation Day Celebration January 1, 2015

http://billybobswildride.blogspot.com/2015/01/graduation-day-celebration-january-1.html

Friday, January 2, 2015. Graduation Day Celebration January 1, 2015. You'd think that 25 treatments wouldn't amount to much of anything. It doesn't sound like a lot. What about the tumor on the outside? The one the surgeon left alone). What about the tumor in the pelvis? Other side of the ribcage? Then the pain. Notbillybob feeling like a roasted ham most days. Kind of like a sun burn inside your guts. He made a big mistake in eating jalapenos one night. Ooh, the burn. So, they asked ...The pain was acco...

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Tuesday, June 3, 2008. Sharon (aka Sitting Porcupine). Links to this post. Saturday, May 31, 2008. Do I dare be hopeful? So far the long headache is in check. We are both afraid to declare victory, and Dr Oro said I lost a significant amount of CSF and expected me to have a CSF headache, but so far the headache itself is way down and though we dont want more disappointment, so far so good. I can probably go home tomorrow. TTYS. Sharon. Sent via BlackBerry from T-Mobile. Sharon (aka Sitting Porcupine).

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