Living with Hemophilia is not a normal life. It is even more frustrating when you have to care for children with hemophila. This site provides useful hemophilia information for you and your loved ones
http://www.hemophilia-information.com/
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Welcome to the Hemophilia Information site | hemophilia-information.com Reviews
https://hemophilia-information.com
Living with Hemophilia is not a normal life. It is even more frustrating when you have to care for children with hemophila. This site provides useful hemophilia information for you and your loved ones
hemophilia-information.com
National Hemophilia Organizations
http://www.hemophilia-information.com/national-hemophilia-organizations.html
116 West 32nd Street , 11th Floor. New York, NY 10001. Phone: 1 212 328-3700. Fax: 1 212 328-3777. Information Resource Center : 1 800 42-HANDI. HANDI Fax: 1 212 328-3799. HANDI E-mail: handi@hemophilia.org. Hemophilia Federation of America. 1405 West Pinhook, Suite 101. Lafayette, LA 70503. Phone: 1 337 261-9787 or 1 800 230-9797. Fax: 1 337 261-1787. Susan Swindle, Administrative Director. The Committee of Ten Thousand. 236 Massachusetts Avenue NE, Suite 609. Washington , DC 20002. Phone: 1 800 488-2688.
Von Willebrand's Disease
http://www.hemophilia-information.com/Von-Willebrands-Disease.html
Von Willebrand's Disease (VWD) is a bleeding disease similar to Hemophilia that affects both males and females equally. Von Willebrand Factor is a protein discovered by Dr. Von Willebrand. It circulates attached to Factor VIII. It is necessary to form a clot. Type 1 (VWD) is widely undiagnosed and may affect up to 2% of the population. Bleeding from the gums when baby teeth fall out or after tooth extractions. Heavy bleeding during menstruation (menorrhagia). Bleeding into the stomach or intestine (gut).
Hemophilia Medication
http://www.hemophilia-information.com/hemophilia-medication.html
All hemophilia medication used to be derived from human plasma, which was dangerous for people with hemophilia. In the 1980s many people, as many as 80% of people with hemophilia, contracted the HIV virus. However, with the approval of recombinant DNA technology to produce factor using other animal cells, infusing with factor has become much safer. There are several large pharmaceutical companies that manufacture blood coagulation factor. These are a few of the brand name factors out there:.
Cure for Hemophilia
http://www.hemophilia-information.com/Cure-for-hemophilia.html
The cure for hemophilia is my favorite thing to talk about! Isn't that what we are all waiting, hoping and praying for? Most of the research for the cure for hemophilia has been centered around Gene Therapy. Hemophilia gene therapy is simply amazing. I have heard many doctors speak with a lot of hope for the future. To explain gene therapy I need to first explain a little about hemophilia. Basically, hemophilia gene therapy should work like this. Scientist remove cells from a person with hemophilia&#...
Hemophilia Support Services
http://www.hemophilia-information.com/hemophilia-support.html
I know what you are thinking. "How can a family that lives clear across the country in Southern California provide my family hemophilia support? That is the beauty of the internet. You can learn all you need to know from our site, from anywhere in the country. We can overnight any and all hemophilia supplies you need anywhere in the country. We also have access to a network of service providers across the country that can help you with any questions or problems. Assistance with Medical Coverage issues.
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"Данко" - фонд помощи больным гемофилией
Особенности Нового времени заставляют человека искать пути адаптации к новым условиям жизни. Смена эпох и перемены в социальной жизни серьезным образом отражаются на детях и подростках. Для нынешнего российского общества характерно быстрое изменение внешних и внутренних параметров. Эта ситуация присуща всем динамично развивающимся обществам переходного типа. Она порождает весьма специфический круг экономических, политических, культурных и […]. Всероссийский фонд малообеспеченных и безработных.
Гемофилия в России
Форум "Гемофилия в России". Социальные льготы и пенсии. Медицинская помощь, лекарственное обеспечение, реабилитация. Клинические рекомендации и стандарты лечения. Гемофилия. Качество жизни. Перспективы лечения гемофилии в России. 17 апреля. Пресс-конференция о перспективах лечения гемофилии в России. Всемирный день гемофилии 2018. В этом году Всемирной федерацией гемофилии первоочередной темой Всемирного дня гемофилии выбран обмен знаниями и опытом. Гемофилия. Качество жизни. Всемирный день гемофилии 2018.
Welcome to the Hemophilia Information site
That Can Change Your Life. There are no two ways about it. Living with Hemophilia can be difficult at times. We know how you feel. We've been there. In fact, you could say we are there now, and have been since 1992. Our sons, Tanner and Connor, have severe hemophilia. We knew that something was different the day Tanner was born. The nurse pricked his heel for a test and it just wouldn't stop bleeding. Little did we know how far that tiny pinprick was going to take us. Top Row Left to Right). Then we bega...
HOME | ヘモフィリアねっと
Webマガジン パルフェ Parfait 第７号発行のお知らせ. Webマガジン パルフェ Parfait 第７号発行のお知らせ. いまさら輸注記録 内の、 輸注記録ツールのご紹介 に新しいツールが追加されています。 Webマガジン パルフェ Parfait 第６号発行のお知らせ. Webマガジン パルフェ Parfait 第６号発行のお知らせ. Webマガジン パルフェ Parfait 第５号発行のお知らせ. Webマガジン パルフェ Parfait 第５号発行のお知らせ. 大阪HIV訴訟原告団による 薬害エイズ資料館 きみの歩いた道 が公開されました。 ヘモフィリアひろばとは、各地区で活動しているヘモフィリア患者会 友の会 の会員 患者 家族はもちろん、ヘモフィリア患者会 友の会 に加入していない患者 家族でも自由に参加することができる新しいコミュニティ ソーシャル ネットワーキング サービス です。 2016,powered by Lifepalette.
血友病家系女性・保因者のための情報サイト
血友病家系女性 保因者のための情報サイト 生きる力を育てましょう Learning your mission in life.
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SITE LAST UPDATED ON:. Sunday, April 02, 2006. HEMOPHILIA SOCIETY MUMBAI (CHAPTER). Stress Free, Pain Free Hemophilia! CHILDREN FREE OF PAIN. We all have important values and ideas, things we care about and want to share. Sometimes we feel our ideas can even change the world, and we want to let other people know how they can join in and make all our lives better. On this home page, we introduce our cause and our message. We also include a picture or two that represents the kind of work we do.
Hemophilia of North Carolina
Since 1977, serving the people. Affected by bleeding disorders. 260 Town Hall Dr., Suite A, Morrisville, NC 27560. HNC tiene un número de teléfono gratuito para el grupo HNC Unión Latina y los miembros que hablan español:. En español solamente / sin cargo). HNC has a toll-free number for the HNC Latin Union group and Spanish speaking members. Follow us on Facebook! Hemophilia of North Carolina. Medical Advisory #423 – CSL Behring Discontinues Production and Distribution of Monoclate-P. Health Reform Upda...
