hypermobilitycampaign.blogspot.com

livingbendy.blogspot.com

Living Bendy: June 2010

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A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Monday, 14 June 2010. Coronation Street gets Bendy! Disabled Actress Cherylee Houston is Coronation Streets first ever full time disabled actress. Cherylee has EDS/HMS and fibromyalgia (like alot of people with eds/hms). And it seems the condition is finally going to be getting more recognised in the mainstream as Cherylee's character 'Izzy' also has the condition! Its a degenerative thing, its genetic'. Some people from the bendy ...

livingbendy.blogspot.com

Living Bendy: April 2011

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A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Wednesday, 13 April 2011. The Drama of EDS - The TV Freakshow. Last night's episode of House sparked a flurry of complaints and discussion on social network sites just weeks before May becomes EDS Awareness month in many American States. The hoarding caused the woman and her husband to become ill from a disease caused by raccoon droppings. The husband quickly recovered while the wife was suddenly struck down with a heart attack...

livingbendy.blogspot.com

Living Bendy: December 2010

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A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Sunday, 26 December 2010. End of 2010, where I'm at. Its been quite a year bendy-wise. I thought I'd do a quick recap just to see how far I'v come in just one year. Xrays and Mri of spine show curvature of spine and degeneration of SI joints :(. Assessed for my 1st wheelchair - sad times. Start investingations for Crohns Disease - come back clear - Yey! GI dr and EDS dr discover my Gastointestinal system is now affected by EDS.

livingbendy.blogspot.com

Living Bendy: October 2010

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A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Thursday, 7 October 2010. Time for a catch-up. It has been quite some time since I last blogged about living a bendy life. Alot of things have happened in the few months that have gone by. Some very positive, some not so positive. First of all some non-bendy news. I love the village and spend alot of time there at my boyfriend's home so it is perfect. However because life is never that simple it has caused a few issues. Like any bi...

hypermobilityhope.blogspot.com

Hypermobility Hope: Resources

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Below you will find links to resources that can help you, your doctors, family and friends to better understand HMS so that you can better treat it. I hope these resources will help you as much as they have helped me and will serve as a stepping-stone to a more healthy, pain-free, and fulfilling life. Enjoy! Joint Hypermobility Handbook - A Guide for the Issues and Management of Ehlers-Danlos Syndrome Hypermobility Type and the Joint Hypermobility Syndrome. By Dr Brad Tinkle. Link: http:/ www.amazon&...

livingbendy.blogspot.com

Living Bendy: April 2012

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A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Saturday, 7 April 2012. Keeping Vocal - Speech and vocal problems in EDS and how to manage them. Thankfully as I got older I got more confident with speaking and eventually it was hard to shut me up LOL. However, now with EDS affecting me more than ever, speech and vocal problems are common parts of my day. Looking after the EDS voice. Thankfully as a trained singer I am very aware of how the voice works, problems that can develop,...

livingbendy.blogspot.com

Living Bendy: Keeping Vocal - Speech and vocal problems in EDS and how to manage them

http://livingbendy.blogspot.com/2012/04/keeping-vocal-speech-and-vocal-problems.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Saturday, 7 April 2012. Keeping Vocal - Speech and vocal problems in EDS and how to manage them. Thankfully as I got older I got more confident with speaking and eventually it was hard to shut me up LOL. However, now with EDS affecting me more than ever, speech and vocal problems are common parts of my day. Looking after the EDS voice. Thankfully as a trained singer I am very aware of how the voice works, problems that can develop,...

livingbendy.blogspot.com

Living Bendy: April Showers and Springtime Sun

http://livingbendy.blogspot.com/2011/04/april-showers-and-springtime-sun.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Wednesday, 13 April 2011. April Showers and Springtime Sun. We are a quarter of the way through 2011 and for people with EDS a lot can happen in 3 months. Last time I posted things weren’t great and I was in abit of limbo-land waiting to see new drs and move on with new areas of my condition. Since then there have been some new issues to deal with as well as increased hope in other areas. I have now been referred to a specialist fu...

livingbendy.blogspot.com

Living Bendy: GI Joe!...the unrelentless gastric EDS soldier

http://livingbendy.blogspot.com/2011/01/gi-joethe-unrelentless-gastric-eds.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Sunday, 9 January 2011. The unrelentless gastric EDS soldier. Gastroenterology is a word that many with EDS become fluent in rolling off their tongues. Secondary to joint instability, the digestive system can be the most problematic system in the EDS body for some. In an EDS affected digestive tract the muscles loose their tightness as the collagen breaks down. When they do squeeze they don't do so enough to push the food along...

livingbendy.blogspot.com

Living Bendy: The Drama of EDS - The TV Freakshow

http://livingbendy.blogspot.com/2011/04/drama-of-eds-tv-freakshow.html

A personal experience of daily life with Ehlers Danlos Syndrome and POTS. Wednesday, 13 April 2011. The Drama of EDS - The TV Freakshow. Last night's episode of House sparked a flurry of complaints and discussion on social network sites just weeks before May becomes EDS Awareness month in many American States. The hoarding caused the woman and her husband to become ill from a disease caused by raccoon droppings. The husband quickly recovered while the wife was suddenly struck down with a heart attack...