ichthyosis.com
Ichthyosis Information: Portal for the Ichthyosis CommunityA portal for ichthyosis information, including bulletin boards, chat room, and tips from patients.
http://www.ichthyosis.com/
A portal for ichthyosis information, including bulletin boards, chat room, and tips from patients.
http://www.ichthyosis.com/
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View this contact
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Ichthyosis Information: Portal for the Ichthyosis Community | ichthyosis.com Reviews
https://ichthyosis.com
A portal for ichthyosis information, including bulletin boards, chat room, and tips from patients.
ichthyosis.com
Matt's Message
http://www.ichthyosis.com/matt.htm
Last updated August 7, 2008. Matt's Message for Kids. Hi My name is Matt. I am 8 years old and in the second grade. I have one mom, one dad, one brother, one sister, two dogs, and three cats. My favorite things to do are skate board, skating and drawing. Me and my brother are going to build a skateboard ramp. My favorite food is pizza. My best friends are Andrew, Daniel, and Josh. This is me on the day I got out of the hospital. I was just 10 days old. Mom's Notes on Bathing and Lotions. I take a shower.
Chatroom
http://www.ichthyosis.com/Chatroom.htm
Last updated January 1, 2013. We're currently evaluating whether it's still worthwhile for us to host a chatroom here. We obviously have not yet renewed the license that expired late in 2012 for the chatroom that was here. If you have an opinion (yes or no, would appreciate hearing either view), please share it on the relevant thread on our bulletin board. Wednesdays at 9:00pm US Eastern (21:00 US Eastern). Saturdays at 11:00am US Eastern (11:00 US Eastern). Try this Time Zone Converter.
Show N Tell
http://www.ichthyosis.com/Show_n_Tell.htm
Last updated January 1, 2013. More Info and Pictures. FIRST's disease information pages. Are a good source of information about the different types of ichthyosis. The Dermatology Atlas online. Has quite a few pictures- use the menu on the left-hand side of the page to find the disease type in which you are interested. Do a search on www.emedicine.com. They've got some good information pages on ichthyosis, and they include some good pictures. For example, here's their page on lamellar ichthyosis. Darier’s...
Site Map
http://www.ichthyosis.com/site_map.htm
Last updated August 7, 2008. Make Use of This Site. We hope that you'll take time to explore this site and everything that it has to offer. Looking for something in particular, but you're having trouble finding it? Send us an email and we'll try to help you find it. Bath and Shower Hints. Hair and Scalp Hints. Hair and Scalp Products. Bath and Shower Products. Notes from Matt's Mom. How You Can Help.
Matt's Mom
http://www.ichthyosis.com/mattsmom.htm
Last updated August 7, 2008. Notes from Matt's Mom. Bathing and Skin Lotions. Hair and Scalp Care. Emotional and Social Issues. Bathing and Skin Lotions. In some ways, Matt cares greatly about his appearance, but in others, he is a typical boy when it comes to personal hygiene and needs lots of reminders. Immediately following Matt’s bath or shower, while he is still moist, he applies his lotions. He uses Aquaphor. Matt also uses a topical gel called Tazorac. Or another base cream. Back to Matt's Message.
TOTAL PAGES IN THIS WEBSITE
5
He, She & Wemdu Pea
http://wemdupea.blogspot.com/2011/11/stylin-bugs-super-cute-new-outfit.html
Friday, November 11, 2011. Bug's super cute new outfit. I had to take the picture on the run because she wouldn't let me get a good one. Cute boots too. :). Crazy Hair Day at school. He got a ton of laughs. :). Now he's bald. :). Subscribe to: Post Comments (Atom). Mom of two cute kids, sister, friend, and school counselor. View my complete profile. Foundation for Ichthyosis and Related Skin Types. C Jane, Enjoy It. Just Before I Vote. Our so called life. The rest of Aug and Sept 2013. My Day in Numbers.
He, She & Wemdu Pea
http://wemdupea.blogspot.com/2011/11/trick-or-treat-2011-no-princesses-or.html
Wednesday, November 2, 2011. No princesses or police man for our family. Megan wanted to be Bellatrix LeStrange from Harry Potter and Michael is a Scary Knight. :). They had a good time. Michael was sick, but made it an hour. Megan went with gusto until bedtime at 8:30. Mom was sick too and did not enjoy the festivities this year. Boo! I love when they get to the age where Trick-or-Treating is a SPORT! November 8, 2011 at 2:42 PM. Subscribe to: Post Comments (Atom). View my complete profile.
He, She & Wemdu Pea
http://wemdupea.blogspot.com/2011/11/artsy-fartsy-this-is-collage-of.html
Tuesday, November 1, 2011. This is a collage of the pictures Megan took of her rug. She isolated each pattern in a rug with no rhyme or reason. I thought it was kind of neat. :). Subscribe to: Post Comments (Atom). Mom of two cute kids, sister, friend, and school counselor. View my complete profile. Foundation for Ichthyosis and Related Skin Types. C Jane, Enjoy It. Just Before I Vote. Our so called life. The rest of Aug and Sept 2013. Our Santa Day Adventures. Mindy Gledhill Musings and Music.
De pagina van Ansa Qureshi - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/AnsaQureshi
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. 0 leden vinden dit leuk. Apps van Ansa Qureshi. Vind ik leuk van Ansa Qureshi. Ansa Qureshi heeft nog geen cadeaus ontvangen. De pagina van Ansa Qureshi. Je moet lid zijn van Global Ichthyosis Syndrome Network om reacties te kunnen toevoegen! Wordt lid van Global Ichthyosis Syndrome Network. Op 4 Januari 2015 om 12.11 zei. Welkom op dit forum! We willen met elkaar een netwerk bouwen voor mensen met Ichthyosis en familieleden.
De pagina van Theo Frentrop - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/TheoFrentrop
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. Breda N. Brabant. 0 leden vinden dit leuk. Apps van Theo Frentrop. Vind ik leuk van Theo Frentrop. Theo Frentrop heeft nog geen cadeaus ontvangen. De pagina van Theo Frentrop. Is nu lid van Global Ichthyosis Syndrome Network. Je moet lid zijn van Global Ichthyosis Syndrome Network om reacties te kunnen toevoegen! Wordt lid van Global Ichthyosis Syndrome Network. Global Ichthyosis Syndrome Network. Of Meld je aan.
De pagina van Shirhaan - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/Shirhaan
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. 0 leden vinden dit leuk. Vind ik leuk van Shirhaan. De vrienden van Shirhaan. Is deze discussie begonnen. Laatste reactie. Van Karin Veldman 15 Mei 2015. 4 Antwoorden. Ik ben Shirie, moeder van 2 kinderen waarvan de jongste baby van 8 maanden nu lamellaire Ichthyosis heef. Graag kom ik in contact met ouders/ mensen die deze vorm hebben die mij hun ervaring willen Doorgaan. Shirhaan heeft nog geen cadeaus ontvangen. Ik ben Sh...
De pagina van Arni - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/Arni
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. 0 leden vinden dit leuk. Vind ik leuk van Arni. Arni heeft nog geen cadeaus ontvangen. De pagina van Arni. Welkom Arni, Wil je iets over jezelf vertellen? Welcome Arni, Could you tell us something more about your self? Is nu lid van Global Ichthyosis Syndrome Network. Je moet lid zijn van Global Ichthyosis Syndrome Network om reacties te kunnen toevoegen! Wordt lid van Global Ichthyosis Syndrome Network. Of Meld je aan.
De pagina van hadi mohamed - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/hadimohamed
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. 0 leden vinden dit leuk. Apps van hadi mohamed. Vind ik leuk van hadi mohamed. Hadi mohamed heeft nog geen cadeaus ontvangen. De pagina van hadi mohamed. Is nu lid van Global Ichthyosis Syndrome Network. Je moet lid zijn van Global Ichthyosis Syndrome Network om reacties te kunnen toevoegen! Wordt lid van Global Ichthyosis Syndrome Network. Global Ichthyosis Syndrome Network. Of Meld je aan. Or sign in with:.
De pagina van acpporarbi - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/acpporarbi
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. 0 leden vinden dit leuk. Vind ik leuk van acpporarbi. Acpporarbi heeft nog geen cadeaus ontvangen. De pagina van acpporarbi. Is nu lid van Global Ichthyosis Syndrome Network. Je moet lid zijn van Global Ichthyosis Syndrome Network om reacties te kunnen toevoegen! Wordt lid van Global Ichthyosis Syndrome Network. Op 10 Mei 2013 om 17.30 zei. Have a nice day. Global Ichthyosis Syndrome Network. Of Meld je aan. Or sign in with:.
De pagina van Mr James baidoo - Global Ichthyosis Syndrome Network
http://www.globalichthyosis.net/profile/MrJamesbaidoo
Global Ichthyosis Syndrome Network. Powerd by the Netherton-NL Syndrome Network. De pagina van Mr James baidoo. Dit profiel is privé. U moet bevriend zijn met Mr James baidoo om deze pagina te kunnen bekijken. Wordt lid van Global Ichthyosis Syndrome Network. Global Ichthyosis Syndrome Network. Of Meld je aan. Or sign in with:. WAT DOET HET HUIDHUIS (NL). The Girl Behind The Face (AU). Er zijn vandaag geen verjaardagen. FACEBOOK Ichthyosis Info…. Ichthyosis België v.z.w.
TOTAL LINKS TO THIS WEBSITE
56
VIS | Vereinigung Ichthyose Schweiz
VIS Vereinigung Ichthyose Schweiz. AIS Association Ichtyose Suisse. USI Unione Svizzera Ittiosi. VIS Vereinigung Ichthyose Schweiz. Es ist Samstag, halb elf Uhr morgens und es regnet Bindfäden. Zwei Familien haben sich schon für den Morgen abgemeldet. Eigentlich einen perfekter Anfang für einen schönen Tag Im Freilichtmuseum Ballenberg. Jahrestreffen 2015 Vereinigung Ichthyose Schweiz. Auch dieses Jahr soll wieder ein Treffen in der Schweiz stattfinden! Jahrestreffen 2015 Vereinigung Ichthyose Schweiz.
ichthyose.com
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Willkommen bei der Selbsthilfe Ichthyose
Der Selbsthilfe Ichthyose e.V. ist die einzige Selbsthilfegruppe für diese sehr seltene, genetisch bedingte Hauterkrankung in Deutschland.
European Network for Ichthyosis e. V.
European Network for Ichthyosis. The European Network for Ichthyosis. Is an international patients network run by national European patients associations. Eni is a common voice for ichthyosis patients and a partner for authorities on a European level. Our work on joint activities is enabled by a mailing list permitting discussions, the exchange of experiences and ideas. Asociación Española de Ictiosis ASIC. ASPORI Associação Portuguesa De Portadores De Ictiose. Association Ichtyose France - AIF.
Ichthyosis Information: Portal for the Ichthyosis Community
Last updated January 21, 2013. We're glad that you found us! This website is brought to you by Chris and Laura Phillips. This site is funded exclusively from the authors' private means as a public service to the ichthyosis community; no advertising of any kind is accepted. We comply with the HONcode standard for health trust. Worthy information: verify here. Although the Bulletin Board. Are perennial favorites for users of this site, we hope that you'll take time to explore all of what's here. We hope th...
ichthyosis.info
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ichthyosis.net - This domain may be for sale!
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Ichthyosis Support Group – People who care about ichthyosis
Apply For ISG/MyISG Membership. ISG Go Karting Challenge, London, April 2018. Walk for Ichthyosis 2017. ISG launches a new MyISG Online platform. Female XLI carrier wanted for short survey. Book your place at our Family Day 2018! Book your place at our Family Day 2018. Book your place at our Family Day. National conference, fundays and fundraising events. Donations are the life blood of our organisation. Your donation will contribute to the support offered by the ISG. Apply for ISG Membership. The Ichthy...
Chickens for Change Farm
It all started with a small child’s questions, How are birds born? How do they come out of an egg? From there, we built an incubator for a hands-on learning opportunity. We watched our own birds come into the world one slow peck at a time and then grow into beautiful, friendly adults. That same child wanted to start selling eggs to raise money for FIRST (. Http:/ www.firstskinfoundation.org. Welcome to our farm! Chicken eggs in a rainbow of colors (eating/hatching). Other things our farm has to offer:.
