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lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Rainy Day Rant

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Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Tuesday, May 17, 2011. Someday I'd like to believe I won't have to apologize for the length of time between posts. (Absence makes the heart grow fonder? I wrote an entire post about my ankle fusion. Which went off without a hitch on April 28. And go for: “Dear EDS, Fuck You.”. Why, then, can't I just look forward to the nicely-fused, cast-free future (i.e. May 31. 9 am, not that anyone's keeping track)?

defygravity321.blogspot.com

Defying Gravity: December 2013

http://defygravity321.blogspot.com/2013_12_01_archive.html

My Journey with Dysautonomia. Dec 11, 2013. 2013 Year In Review. This year brought a lot of major life changes and new beginnings for me. Mostly positive ones. I moved to a new home in a different location and am now (finally! Wednesday, December 11, 2013. Dec 8, 2013. I am honored to have been nominated for a Liebster Award by one of my favorite new bloggers and fellow potsy Brittany at Fabulously Faint. Admittedly I don't know much about the award except for the following:. CM at Life Unknown. 2) I am ...

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: A Birthday

http://lifeisalittletwisted.blogspot.com/2011/08/birthday.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, August 11, 2011. But as time has passed, the days, even the birthdays, aren’t as sad. Sometimes the grief still swallows me, overpowers me, but today I just enjoyed the sunshine. Still…I wish you were here, buddy. I miss your sweet face. August 11, 2011 at 2:08 AM. Im sure Atiyyah made today sunny, just for his family. Sending love and juju xx. Subscribe to: Post Comments (Atom).

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: November 2010

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Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Wednesday, November 3, 2010. There have been about a million things that I've wanted to blog about in the past few weeks, but by the time everyone is taken care of, fed, changed, medicated, and in bed, my fingers are just too tired. Big news for today: my Social Security Disability was approved! First time. No re-application, no appeal, no court, no fighting. What a relief! Links to this post.

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: September 2010

http://lifeisalittletwisted.blogspot.com/2010_09_01_archive.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Wednesday, September 29, 2010. Surgery tomorrow. The overly friendly caller informed me that I should arrive at the hospital at 6 am, having had nothing to eat or drink after midnight. Bring nothing valuable. I've been through this many, many times. I've been through this exact surgery before, save the iliac crest harvesting. Links to this post. Tuesday, September 28, 2010. Wheels for One of Us. I used to ...

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Nuvigil Update

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Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, September 15, 2011. Wow Was this really all I’d needed for so long? Things have settled down. I’m awake-ish. I’m sure the Nuvigil has some benefit, as I haven’t had those scary falling asleep driving moments. I’m hoping to get more info from the MSLT on October 1. And fine tune the meds. So all in all, Nuvigil is no panacea, but it ain’t half bad. I hope you’re all well. It’s a compilation ...

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: January 2011

http://lifeisalittletwisted.blogspot.com/2011_01_01_archive.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Friday, January 21, 2011. Good Bones, Bad Bones and My Beef with Winter. If only things could ever go as planned. For now I'm back in a walking boot with a rocker sole, so at least the audible clunking and associated waves of nausea have subsided. My fear of requiring emergency surgery, at least, was allayed. The boot allows me to walk and keep up with life, a privilege I don't take lightly. People who kno...

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Me, My Fam & Livin' The Twisted Life

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Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Me, My Fam and Livin' The Twisted Life. So it turns out, I'm far from alone in this world. My partner "Cam" and I have been together for 12 years and during that time we were able to adopt 4 amazing children. Sadly, our oldest child, Atiyyah,. Passed away in 2008. In 2009, Cam gave birth to "The Poodle," so we now have 4 young children at home and one in our hearts and minds. 65279; . Our fiercely indepen...

lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Wake Up Call

http://lifeisalittletwisted.blogspot.com/2011/08/normal-0-false-false-false.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, August 11, 2011. I have come to expect to wait two months to see my daughter’s motility specialist, one of two in the entire country. But I’ve rarely had to wait two weeks, much less two months for any type of study at this hospital, which touts itself as being ranked #1 in the state in Patient Satisfaction for {Some Number of Years} Running! For a few days, I was almost ok with that. After a...