livelifethengivelife.blogspot.com
Live Life Then Give Life: Tor's Plea
http://livelifethengivelife.blogspot.com/2011/07/tors-plea.html
Saturday, 9 July 2011. 8220;Every day is a struggle and it gets harder just to survive each day. Statistically I shouldn’t even be alive now. Everyday I face the possibility my chance at life may never come and am constantly scared about my uncertain future. At 24 I shouldn’t have to worry about living to 25.”. Our ambassador Tor has now been waiting for a lung transplant for exactly 4 years today. She was only given 2 years left to live when listed, so she is well and truly on borrowed time. Subscribe t...
livelifethengivelife.blogspot.com
Live Life Then Give Life: August 2010
http://livelifethengivelife.blogspot.com/2010_08_01_archive.html
Sunday, 1 August 2010. There has been a huge break in me updating you all about the tremendous trustees so my sincere apologies but we had lots to shout about in the mean time such as, the new t-shirt designs (coming soon, just waiting for stock! Important business on our stance as presumed consent and our inspirational life stories during National Transplant Week. I just want to take this opportunity to thank our supporters, without whom we wouldn’t be able to continue the work that we do. When you̵...
livelifethengivelife.blogspot.com
Live Life Then Give Life: July 2011
http://livelifethengivelife.blogspot.com/2011_07_01_archive.html
Saturday, 9 July 2011. 8220;Every day is a struggle and it gets harder just to survive each day. Statistically I shouldn’t even be alive now. Everyday I face the possibility my chance at life may never come and am constantly scared about my uncertain future. At 24 I shouldn’t have to worry about living to 25.”. Our ambassador Tor has now been waiting for a lung transplant for exactly 4 years today. She was only given 2 years left to live when listed, so she is well and truly on borrowed time. Promoting t...
livelifethengivelife.blogspot.com
Live Life Then Give Life: LAM Awareness Day.
http://livelifethengivelife.blogspot.com/2011/06/lam-awareness-day.html
Wednesday, 1 June 2011. Today is Worldwide LAM awareness day. LAM stands for Lymphangioleiomyomatosis, and is an extremely rare disease which only affects women, and usually shows itself in women of child-bearing age. This is an extract from a piece written by LAM patient Gill Hollis, in 2010:. The disease progressed through slow attrition; I grew increasingly breathless, and required more surgery after further lung collapses. It was in 1995, before another operation, that the possibility of a transp...
livelifethengivelife.blogspot.com
Live Life Then Give Life: May 2011
http://livelifethengivelife.blogspot.com/2011_05_01_archive.html
Friday, 20 May 2011. Thank you to those who participated - this stage of the research is now finished so they no longer require new participants.*. We have had a request for volunteers from an ESRC funded PhD researcher from Durham University. Read on for more details. Understanding family organ donation consent. Call for volunteers to participate in this study. Any help would be hugely appreciated. The study is being fully supervised by Dr. Mike Nicholson and Dr. Sarah Xiao. Wednesday, 18 May 2011.
livelifethengivelife.blogspot.com
Live Life Then Give Life: Tor's Christmas Wish - campaign update
http://livelifethengivelife.blogspot.com/2010/12/tors-christmas-wish-campaign-update.html
Monday, 20 December 2010. Tor's Christmas Wish - campaign update. It's been just 7 days since we launched our Tor's Christmas Wish. Campaign, and it has already been attracting a huge amount of attention! People all over facebook have been sharing her story and urging others to do the same. Upon reading her story, Niall Murphy set up this facebook page. And donated some advertising space to raise the profile even further - thank you Niall! TV presenters Philip Schofield. Loose woman Zoe Tyler. I have jus...
livelifethengivelife.blogspot.com
Live Life Then Give Life: Emily
http://livelifethengivelife.blogspot.com/2011/05/emily.html
Thursday, 12 May 2011. I thought that I should really finish off this week's blogs myself, since my own need for a transplant was due to Cystic Fibrosis. I had a happy and healthy childhood. I don't remember feeling that different from my friends; even though I had the daily regime of physiotherapy, nebulisers, antibiotics and inhalers to fit in, my parents never treated me any differently. And please, sign the organ donor register. Subscribe to: Post Comments (Atom). Sign The Organ Donor Register. This ...
livelifethengivelife.blogspot.com
Live Life Then Give Life: April 2011
http://livelifethengivelife.blogspot.com/2011_04_01_archive.html
Wednesday, 20 April 2011. Recently we've been talking about fundraising, another way to donate is through our JustGiving page that we set up to collect money specifically for our Robyn's Rainbows. It's simple. By raising money and raising awareness! Here are a few examples of Robyn's Rainbows that we have sent:. Tuesday, 19 April 2011. Linking to our last blog about raising awarness, one of the easiest ways to do this is by wearing one of our Live Life Then Give Life T-shirts! Live Life Then Give Life be...
livelifethengivelife.blogspot.com
Live Life Then Give Life: Call to Action
http://livelifethengivelife.blogspot.com/2011/05/call-to-action.html
Friday, 20 May 2011. Thank you to those who participated - this stage of the research is now finished so they no longer require new participants.*. We have had a request for volunteers from an ESRC funded PhD researcher from Durham University. Read on for more details. Understanding family organ donation consent. Call for volunteers to participate in this study. Any help would be hugely appreciated. The study is being fully supervised by Dr. Mike Nicholson and Dr. Sarah Xiao. Sign The Organ Donor Register.
livelifethengivelife.blogspot.com
Live Life Then Give Life: Speakers project training session: 11th June
http://livelifethengivelife.blogspot.com/2011/05/speakers-project-training-session-11th.html
Wednesday, 18 May 2011. Speakers project training session: 11th June. We have just booked a training session for our Speakers Project. Which will take place in the morning of Saturday 11th June in Richmond, Surrey. Over the years, we have discovered that one method of raising awareness triumphs above all others; telling a real life story. Facts and figures are definitely useful, but to really make people sit up and listen, we need your help. If you are interested in attending on the 11th June in Richmond...