kenanwitczak.blogspot.com

Kenan Spencer Witczak

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Sunday, May 26, 2013. If You're Happy and You Know It. In typical Target fashion, they have a charming commercial out calle d. Wednesday, May 8, 2013. Say, "Hi Kenan! We all want a friend. I can easily imagine his loneliness. As Kenan grows so do his social needs. Friday, May 3, 2013. A "Hurray" Worth Championing. Today in physical therapy, with his AFO's and knee immobilizers on, Kenan stood freeform for five whole minutes. N the op...

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Kenan Spencer Witczak | kenanwitczak.blogspot.com Reviews

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A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Sunday, May 26, 2013. If You're Happy and You Know It. In typical Target fashion, they have a charming commercial out calle d. Wednesday, May 8, 2013. Say, Hi Kenan! We all want a friend. I can easily imagine his loneliness. As Kenan grows so do his social needs. Friday, May 3, 2013. A Hurray Worth Championing. Today in physical therapy, with his AFO's and knee immobilizers on, Kenan stood freeform for five whole minutes. N the op...

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Kenan Spencer Witczak | kenanwitczak.blogspot.com Reviews

https://kenanwitczak.blogspot.com

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Sunday, May 26, 2013. If You're Happy and You Know It. In typical Target fashion, they have a charming commercial out calle d. Wednesday, May 8, 2013. Say, "Hi Kenan! We all want a friend. I can easily imagine his loneliness. As Kenan grows so do his social needs. Friday, May 3, 2013. A "Hurray" Worth Championing. Today in physical therapy, with his AFO's and knee immobilizers on, Kenan stood freeform for five whole minutes. N the op...

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kenanwitczak.blogspot.com

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Kenan Spencer Witczak: The Smaller is to the Greater

http://kenanwitczak.blogspot.com/2013/02/the-smaller-is-to-greater.html

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Thursday, February 21, 2013. The Smaller is to the Greater. The beginning of 2013 has been difficult. Nine children died in my. Of Leukodystrophy friends, four in one week's time including Jo-Jo Garcia, a member of our band. Http:/ www.huntershope.org/site/PageServer? Subscribe to: Post Comments (Atom). Rare Disease Day 2013. Report from Pittsburgh: In the Eye of the Storm. On a Plane to Pittsburgh. The Smaller is to the Greater.

2

Kenan Spencer Witczak: April 2013

http://kenanwitczak.blogspot.com/2013_04_01_archive.html

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Tuesday, April 9, 2013. The Things They Carried". O'Brien mixes the weight of the physical and emotional leaving you questioning which is heavier. I read this book in graduate school but find myself thinking about it now as I toil with the day-to-day load of Kenan's equipment. Two counterintuitive points: The On/Off switch is recessed further back. Than any other nob on the devise and you push it up rather than down to.

3

Kenan Spencer Witczak: On a Plane to Pittsburgh

http://kenanwitczak.blogspot.com/2013/02/in-january-kenan-and-i-made-our-second.html

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Friday, February 22, 2013. On a Plane to Pittsburgh. In January, Kenan and I made our second annual trip to participate in the. Program for the Study of Neurodevelopement in Rare Disorders. Resource for how we approach Kenan medically and provide him with the best care. Second but equal, we are grateful to contribute to research. The NCV (Nerve Conduction Velocity) where an electrical impulse is measured as it is transmitted. For Ken...

4

Kenan Spencer Witczak: December 2012

http://kenanwitczak.blogspot.com/2012_12_01_archive.html

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Thursday, December 20, 2012. I Sing the Body Electric. Saturday, December 8, 2012. I had a small rubber ball sitting in the palm of Kenan’s hand when a clonus jerk of the arm (involuntary retraction of muscle) caused him to throw it, a fair distance considering. For a split second the illusion in my heart of what he could and should be doing “ if only” was set free: MY BOY HAD JUST THOWN A BALL! Part IV: The Wishbone and Sibling-hood.

5

Kenan Spencer Witczak: "The Things They Carried"

http://kenanwitczak.blogspot.com/2013/04/the-things-they-carried.html

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Tuesday, April 9, 2013. The Things They Carried". O'Brien mixes the weight of the physical and emotional leaving you questioning which is heavier. I read this book in graduate school but find myself thinking about it now as I toil with the day-to-day load of Kenan's equipment. Two counterintuitive points: The On/Off switch is recessed further back. Than any other nob on the devise and you push it up rather than down to.

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judsonslegacy.com

Krabbe Heroes - Judson's Legacy

http://www.judsonslegacy.com/krabbe-kids

Faith and Hope in Suffering. Judson & Krabbe Disease. Faith & Hope. Find Hope In Suffering. How Do I Help the Hurting? Blog: Heartache & Hope. Speaking & Media. Book: Eyes that See. Film: Judson’s Eyes. What is Krabbe Disease? Let your heart be moved by the lives of these Krabbe Heroes (scroll over for their names/dates and click to view their web page)…. If you have a child with Krabbe disease, we would be honored to include them here. Please send us an email. What is Krabbe Disease? May 7, 2010. Tenley...

peaceloveandtrevor.com

Trevor’s Friends | The Peace Love and Trevor Foundation

http://peaceloveandtrevor.com/trevors-friends

8220;How’s Trevor”. Mission & Core Values. Apply for Financial Aid. Trevor and our family have made many amazing friends over the last few years. Below are pictures and links to some of Trevor’s closest friends and links to their individual websites. Our hope is that you will be further inspired by their stories. Marshall and Michael Wilson. Kyle’s Caring Bridge. Murrietta, CA 92562. Web design by www.casalicreative.com. Peace, Love and Trevor 2010-2014. Sign Up Today for PLT Updates.

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Skip to primary content. Skip to secondary content. My Journey to Business School. May 25, 2013. Notice how the title reads journey to, not journey through business school. I feel as though I should have chronicled my experience up until this point because it was filled with ups and downs, challenges, and victories. I’ll do my best to recount the highlights of the past year to give you a taste of my journey. Masters in public policy. Digital Jobs Africa Launches. May 16, 2013. Digital Jobs Africa Launches.

kenanwitczak.blogspot.com

Kenan Spencer Witczak

A Journey Through Krabbe Leukodystrophy. Follow Kenan's Story by Email. Sunday, May 26, 2013. If You're Happy and You Know It. In typical Target fashion, they have a charming commercial out calle d. Wednesday, May 8, 2013. Say, "Hi Kenan! We all want a friend. I can easily imagine his loneliness. As Kenan grows so do his social needs. Friday, May 3, 2013. A "Hurray" Worth Championing. Today in physical therapy, with his AFO's and knee immobilizers on, Kenan stood freeform for five whole minutes. N the op...

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