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Journey With Nathan: 37%...

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Monday, March 18, 2013. I talked to Dr. Williams tonight and Nathan's gastric emptying test showed that Nathan's stomach is emptying 37% in 90 minutes. A normal individual's stomach should empty at the rate of 50% in 90 minutes. So yes, he has gastroparesis. :o(. Unfortunately, there aren't many options other than taking medicines to treat gastroparesis. So Nathan will begin taking Erythromycin (a low dose antibiotic, grr! Subscribe to: Post Comments (Atom). What Is an Eosinophilic Disorder? Eosinophilic...

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Journey With Nathan: August 2011

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Wednesday, August 17, 2011. Nathan had his third scope with biopsies done today and also go this PEG tube switched out to the AMT Mini One Balloon Button. He did great! Thanks to the many prayers being sent our way today! Dr Williams said that his esophagus looked good, so we are hopeful that the biopsies will second that. This will be excellent news which may mean that avoiding the top 8 allergens will allow Nathan to be symptom free! We are so excited about the AMT button! Subscribe to: Posts (Atom).

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Journey With Nathan: February 2012

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Tuesday, February 21, 2012. Just wanted to share the recipes I used to make Nathan's safe birthday cake and cookies this year! They're free of all the top 8 allergens and were pretty good! I might try switching up some of the "flours" in the future to see if I can make it even better! The sugar cookie recipe was a hit and everyone loved them! So thankful to have alternative options for baking for our sweet boy who deserves a yummy treat like these from time to time! Test cookie was a success! 4) Bake at ...

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Journey With Nathan: June 2011

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Thursday, June 30, 2011. We found it at Target Pharmacy. it's OTC. But you have to ask the pharmacy for it! This morning his tummy look beautiful! The GT is not completely gone, but I can tell that it is going away and hopefully will stay that way! We will keep using the Calmoseptine and pray that it will keep it from re-occurring. Today is kind of a big day for Nathan in way of his food trials. he is trialing CHICKEN! I am so thankful to finally be able to offer him a complete meal! Biopsy Results Are In.

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Journey With Nathan: October 2011

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Friday, October 28, 2011. Alright, so in the world of EoE as we have always known, things can change and they can change quickly. We were blessed to have such a smooth couple of months in a row with Nathan. They all evaluated Nathan together and individually so that they could put their minds together on the best approach to help Nathan. Nathan working on his chewing exercises. We are headed to Mark's parent's church annual Trunk or Treat tonight, Nathan will be going as Mickey Mouse! Eosinophilic gastor...

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Journey With Nathan: September 2013

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Thursday, September 19, 2013. Headed Down A New Road. It's been nearly 4 weeks since Nathan's scope, which by the way was not good. His EOS counts were high again indicating that the foods we were trialling (potato, chicken, rice) were hurting him. Mark and I have given tons of thought to our options and weighed all the pros and cons of each over these past 4 weeks. We aren't 100% comfortable with any of the options. Our two options are:. The lesser of two evils that's what we're going with. Nathan's die...

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Journey With Nathan: March 2013

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Monday, March 18, 2013. I talked to Dr. Williams tonight and Nathan's gastric emptying test showed that Nathan's stomach is emptying 37% in 90 minutes. A normal individual's stomach should empty at the rate of 50% in 90 minutes. So yes, he has gastroparesis. :o(. Unfortunately, there aren't many options other than taking medicines to treat gastroparesis. So Nathan will begin taking Erythromycin (a low dose antibiotic, grr! Sunday, March 17, 2013. Scope #5 and Gastric Emptying Study. The highest eosinophi...

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Journey With Nathan: August 2013

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Sunday, August 18, 2013. Past 6 Months Update. Priceless and oh so heartbreaking all at once. The vomiting stopped after that 3rd week, but around the beginning of June Nathan began refusing to eat chicken. At first I thought he was just being a typical picky 3 year old, but after about a week of him refusing and choosing his EleCare over chicken and complaining of it hurting his tummy we decided to stop pushing it. In all your ways submit to him,. And he will make your paths. Subscribe to: Posts (Atom).

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Journey With Nathan: February 2013

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Monday, February 18, 2013. Appt With Dr. Williams. So the results showed 30-35 eosinophils in all areas biopsied, which means his EoE is active and not under control. His esophagus also showed furrowing which is a sign of damage to the esophagus caused by the elevated eosinophils. When Nathan was first diagnosed in March of 2011, his counts were 75 and he didn't. Have furrowing of his esophagus, just another way this crazy disease makes no sense at all. No wonder it's so hard to treat. Ugh. Funky Food- F...