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Life with Beals

A blog to explore the rare genetic disorder Beals Syndrome

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Life with Beals | lifewithbeals.blogspot.com Reviews
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A blog to explore the rare genetic disorder Beals Syndrome
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heading home,posted by,louise,1 comment,email this,blogthis,share to twitter,share to facebook,share to pinterest,labels beals syndrome,growing rods,magec,pressure sores,scoliosis,xray,dr min mehta,labels casting,mehta casting,no comments,surgery,recovery
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Life with Beals | lifewithbeals.blogspot.com Reviews

https://lifewithbeals.blogspot.com

A blog to explore the rare genetic disorder Beals Syndrome

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1

Life with Beals: March 2014

http://lifewithbeals.blogspot.com/2014_03_01_archive.html

A blog to explore the rare genetic disorder Beals Syndrome. Monday, 10 March 2014. Evelyne started school last month and she is loving it! She is attending our local public school (same school as Samuel) which is only a short walk from our house. Incidently it is also the same school I started Kindergarten in almost 20 yrs ago. She is in a standard Kindergarten class with a part-time aide and some extra equipment to help her. A peanut cushion for sitting on the floor, to avoid. Subscribe to: Posts (Atom).

2

Life with Beals: The time is drawing near

http://lifewithbeals.blogspot.com/2015/01/the-time-is-drawing-near.html

A blog to explore the rare genetic disorder Beals Syndrome. Friday, 9 January 2015. The time is drawing near. With the underlying question being "is she old enough for growing rods yet? This time was no different, however, I think I knew that now Evie is aged 6 we are getting closer. Evie, brace free, with her cousin Lydia. One positive is that it looks like she is eligible for Magec. Over 3 years ago when I heard of it, hoping it may be an option for Evie. I am nervous for what the future holds, but I t...

3

Life with Beals: Another winter, another cast

http://lifewithbeals.blogspot.com/2014/05/another-winter-another-cast.html

A blog to explore the rare genetic disorder Beals Syndrome. Sunday, 11 May 2014. Another winter, another cast. Last Friday Evelyne had another spinal cast applied in Sydney. She was her normal happy, positive self before (as you can see from the photo). We again decorated her cast in her choice of print, and her doll Milly (now renamed Annabelle) again shared the same design. 12 May 2014 at 09:18. 14 June 2014 at 20:37. We pray for lovely Evie , god bless her. 23 July 2014 at 17:37. 28 July 2014 at 12:38.

4

Life with Beals: August 2013

http://lifewithbeals.blogspot.com/2013_08_01_archive.html

A blog to explore the rare genetic disorder Beals Syndrome. Saturday, 31 August 2013. Busyness and daily struggles. I'm not sure how to avoid this busyness. Sometimes I don't know how long I can continue the relentless appointments and treatment. I have wondered at times if Evelyne really 'needs' to see all those people. Or if I should work on one thing at a time. But unfortunately the nature of Beals is it affects so many different parts of the body. Connective tissue is everywhere!

5

Life with Beals: Wheels for Evie

http://lifewithbeals.blogspot.com/2014/11/wheels-for-evie.html

A blog to explore the rare genetic disorder Beals Syndrome. Sunday, 9 November 2014. Some of my mum's gorgeous clothes. My mum made a huge amount of clothes to sell, and various people donated clothes for a facebook sale site. On top of this, we have been blown away with the generosity of people within our church, school, family and local community, as well as some people we have never met. Wheels for Evie facebook site. 1 December 2014 at 08:40. Thank you for sharing your familys story for others! Love ...

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bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: April 2012

http://bathurstec.blogspot.com/2012_04_01_archive.html

Sunday, April 8, 2012. Top Ten Myths About The Resurrection. Did the resurrection of Jesus really happen? This should be a question that everyone and especially every Christian, should ponder. If it isn't, Christianity is meaningless because this teaching is the lynchpin of the whole story. Has made ten little videos. In which he dispells some of the myths that people believe about the resurrection. These are the topics that Dr Licona discusses in his series of ten videos:. Myth 3: The Fraud Theory.

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: May 2012

http://bathurstec.blogspot.com/2012_05_01_archive.html

Thursday, May 31, 2012. Website has been remade and looks good. Simple, but effective. They're also letting us know they are around on facebook. And Twitter. Kevin Reid is the webservant. I like his personal website, too which is called Grace Transforms. He has quite a few thought-provoking articles on his site. It is enriching to be partners with people and churches like these folk. Monday, May 7, 2012. What should church be like? Do you think that this video portrays church as it should be?

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: Worth Chewing Over

http://bathurstec.blogspot.com/2012/07/worth-chewing-over.html

Wednesday, July 4, 2012. How good is it that Phillip Jensen, who has been called "a once in a lifetime preacher" should put together his thoughts on preaching so that others may benefit? You get Phillip Jensen's ideas, skilfully organised by Paul Grimmond, one of Jensen's admirers and followers. Grimmond is well-placed to do this, because he has listened to Jensen speak for more than 20 years and has put his principles into practice in his own speaking ministry. Through the rest of the book, Jensen expla...

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: May 2011

http://bathurstec.blogspot.com/2011_05_01_archive.html

Thursday, May 12, 2011. By Thabiti Anyabwile is well worth reading. I love the cartoon, and what he says and cites about altar calls is very close to my own experience. I think that this great African American pastor's first name is pronounced. And am guessing his second name is. An ya BWY lee. But I'm grateful for any help from someone who knows. Thabiti cites Pastor Ryan Kelly's reasons for not using the altar call method. 1 The altar call is simply and completely absent from the pages of the N.T.

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog

http://bathurstec.blogspot.com/2012/05/what-should-church-be-like-do-you-think.html

Monday, May 7, 2012. What should church be like? Do you think that this video portrays church as it should be? Could our church be a church like this [with an Australian accent]? Subscribe to: Post Comments (Atom). Bathurst, NSW, Australia. Presenting Christ to everyone Presenting everyone mature in Christ. View my complete profile. Lookup a word or passage in the Bible. Two Ways To Live. Getting more deeply into your Bible. Maitland Evangelical Church website has been remad. What should church be like?

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: Genuinely free book

http://bathurstec.blogspot.com/2012/02/genuinely-free-book.html

Sunday, February 12, 2012. So often free book offers turn out to be less than free. And, all-too-frequently, in fine print, near the end of the offer is a line which says. Available to US residents only. Which really cheeses off this Aussie! S offer is genuine. I received my copy a few days ago. George wants to get as many people as possible to read Fred Heeren's Show Me God. The book's subtitle is What the Message from Space Is Telling Us About God. To order a copy, head to George's own webpage. Lookup ...

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: July 2012

http://bathurstec.blogspot.com/2012_07_01_archive.html

Wednesday, July 4, 2012. How good is it that Phillip Jensen, who has been called "a once in a lifetime preacher" should put together his thoughts on preaching so that others may benefit? You get Phillip Jensen's ideas, skilfully organised by Paul Grimmond, one of Jensen's admirers and followers. Grimmond is well-placed to do this, because he has listened to Jensen speak for more than 20 years and has put his principles into practice in his own speaking ministry. Through the rest of the book, Jensen expla...

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: February 2011

http://bathurstec.blogspot.com/2011_02_01_archive.html

Thursday, February 24, 2011. When is it too early for a Christmas song? I hope it's never to early to ponder the wonder of God becoming Man. I love the words of this song, discovered today (and the music). Wednesday, February 23, 2011. A Few Helpful Christian Resources. Have you discovered the wealth of great Christian resources available on the internet? There is a search facility and link to Bible Gateway on the right of this page. What is Christianity About? Is a site with answers to many questions pe...

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: February 2012

http://bathurstec.blogspot.com/2012_02_01_archive.html

Sunday, February 12, 2012. So often free book offers turn out to be less than free. And, all-too-frequently, in fine print, near the end of the offer is a line which says. Available to US residents only. Which really cheeses off this Aussie! S offer is genuine. I received my copy a few days ago. George wants to get as many people as possible to read Fred Heeren's Show Me God. The book's subtitle is What the Message from Space Is Telling Us About God. To order a copy, head to George's own webpage. Insofar...

bathurstec.blogspot.com bathurstec.blogspot.com

BEC blog: January 2012

http://bathurstec.blogspot.com/2012_01_01_archive.html

Tuesday, January 31, 2012. Underneath and undergirding the many books of the one Bible is the motif of God's grace: his favour and love to the undeserving says Dane Ortlund. In his blog with the intriguing title of Strawberry-Rhubarb Theology. His article The Grace of God in the Bible. Shows how grace is the grand subject of all 63* books of the Bible. His list has been carefully thought-out, and is a convincing summary of each book's teaching on grace. Labels: Bathurst Evangelical Church. Christopher As...

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