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Life with Lily

adventures of a medically complex child

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Life with Lily | lilsmom.blogspot.com Reviews
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adventures of a medically complex child
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1 life with lily
2 pages
3 diagnosis
4 today was the
5 good poker face
6 the paperwork
7 and here
8 and an additional
9 i've been accused
10 every
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life with lily,pages,diagnosis,today was the,good poker face,the paperwork,and here,and an additional,i've been accused,every,single,time,don't,can't,choose joy,every single day,mommy mommy,and i am,frozen,nurse,stranger,strangers,like today,and walk away
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Life with Lily | lilsmom.blogspot.com Reviews

https://lilsmom.blogspot.com

adventures of a medically complex child

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1

Life with Lily: A 3 day stay turned into 10....

http://lilsmom.blogspot.com/2012/06/3-day-stay-turned-into-10.html

Adventures of a medically complex child. Common abreviations/terms I use. Tuesday, June 5, 2012. A 3 day stay turned into 10. So what was supposed to be a short 3 day stay turned into 10 days. She was admitted for TOTAL gut rest meaning they were going do TPN. So we got there and OF COURSE they didn't have the TPN ready yet. So we waited and got comfortable in our room for about ten hours. Until the TPN was ready. She LOVES to play with foam tape to pass the time. And what kid doesn't LOVE stickers?

2

Life with Lily: Hope Kids and more happy things!

http://lilsmom.blogspot.com/2013/01/hope-kids-and-more-happy-things.html

Adventures of a medically complex child. Common abreviations/terms I use. Monday, January 21, 2013. Hope Kids and more happy things! I have been wanting to do a post about all of the Fun Lily has been having outside of the HOSPITAL! Lily was accepted in to HopeKids this past summer. Hopekids is a non-profit organization for families of children with life threatening illnesses. Hopekids provides weekly activities to give affected families something to look forward to. We saw The Trans-Siberian Orchestra.

3

Life with Lily: Time

http://lilsmom.blogspot.com/2015/04/time.html

Adventures of a medically complex child. Common abreviations/terms I use. Monday, April 13, 2015. Time does funny things,. And yet nothing goes untouched. Time used to terrify me. When Lily came home on TPN and with a trach. I actually took down all the clocks in our little apartment. Because the sound of the ticking would haunt me every night. The greedy second hand was a background in all my dreams. It was completely out of my control, and i knew that,. Or according to the Dr's). And time dragged on.

4

Life with Lily: April 2015

http://lilsmom.blogspot.com/2015_04_01_archive.html

Adventures of a medically complex child. Common abreviations/terms I use. Monday, April 13, 2015. Time does funny things,. And yet nothing goes untouched. Time used to terrify me. When Lily came home on TPN and with a trach. I actually took down all the clocks in our little apartment. Because the sound of the ticking would haunt me every night. The greedy second hand was a background in all my dreams. It was completely out of my control, and i knew that,. Or according to the Dr's). And time dragged on.

5

Life with Lily: Lily is two!!!

http://lilsmom.blogspot.com/2013/01/lily-is-two.html

Adventures of a medically complex child. Common abreviations/terms I use. Monday, January 21, 2013. Lily turned two on Jan 20th! My baby girl isn't a baby anymore! She had an Elmo themed birthday party. Her cake was done by Cup'n Cakes through Icing smiles. Icing smiles is an amazing non-profit organization that donates birthday cakes for medically complex kids. This cake was amazing! The lady donated her time and resources so lily could have such an awesome cake. My Elmo fruit platter. The night before ...

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thewilkfam.blogspot.com thewilkfam.blogspot.com

The Wilkinsons: Edibly cute at 4 months

http://thewilkfam.blogspot.com/2012/10/edibly-cute-at-4-months.html

Saturday, October 6, 2012. Edibly cute at 4 months. This chubby girl gets eaten and eaten and eaten around here! And she loves every minute of it. She can't get enough of just being loved and kissed and snuggled. We can't get enough of this happy little one. We fondly refer to her as "the happiest baby in the world! Can't believe she's already 4 months! Im seriously going to stop checking yours and Bekies blogs. It makes me too sad. But I love you both so dont be offended. October 10, 2012 at 4:21 PM.

mamapikesez.blogspot.com mamapikesez.blogspot.com

Mama Pike Sez: February 2011

http://mamapikesez.blogspot.com/2011_02_01_archive.html

Cogitations, Contemplations, and Pratterings on life, liberty, and the pursuit of the bottom of the laundry pile.inspired by chocolate, of course! Monday, February 21, 2011. My New Friend.Chia! Oh well. It turned out well, and we had a great time visiting with family. Chia lowers bad cholesterol and triglycerides and slows down the conversion of carbohydrates into sugars.thus stabilizing blood sugar levels. I'll figure it out! Links to this post. Wednesday, February 16, 2011. On the Path to Better Health.

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Mama Pike Sez: December 2010

http://mamapikesez.blogspot.com/2010_12_01_archive.html

Cogitations, Contemplations, and Pratterings on life, liberty, and the pursuit of the bottom of the laundry pile.inspired by chocolate, of course! Sunday, December 19, 2010. Lex de Azevedo has been one of my favorite composers for many years. Besides that, I wanted to support Randy and all the hard work the choirs had put into preparing the music. Choir members who heard the news early in the morning tried desperately to contact Brother de Azevedo. When they finally got in touch, like everyone else, ...

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Mama Pike Sez: October 2010

http://mamapikesez.blogspot.com/2010_10_01_archive.html

Cogitations, Contemplations, and Pratterings on life, liberty, and the pursuit of the bottom of the laundry pile.inspired by chocolate, of course! Thursday, October 28, 2010. Where Does Time Go? The concept of time has been on my mind a great deal lately, the biggest reason probably being because I have been blessed with so many choices. We all have the same 24 hours. We all choose to do something different with those 24 hours. What do I choose? Links to this post. Subscribe to: Posts (Atom).

thefugefamily.blogspot.com thefugefamily.blogspot.com

The Fuge Family: May 2008

http://thefugefamily.blogspot.com/2008_05_01_archive.html

Sunday, May 4, 2008. Less than 2 weeks. Well, we're under 2 weeks, Liz and I got our recommends today and she goes through the temple on saturday! She has one last bridal shower that my mom is throwing her this friday, and then the temple saturday and we leave for california on wednesday! Liz loves the new apartment and my sister annie has been staying with her just to keep her company. its super rad too, we'll have to snap some pictures and put them up! Subscribe to: Posts (Atom). Less than 2 weeks.

thefugefamily.blogspot.com thefugefamily.blogspot.com

The Fuge Family: April 2008

http://thefugefamily.blogspot.com/2008_04_01_archive.html

Thursday, April 24, 2008. 22 days until we get married. And liz made cookies from scratch that were amazing! Friday, April 4, 2008. Less than one and a half months until we get married! Subscribe to: Posts (Atom). 22 days until we get married. Picture Window template. Template images by molotovcoketail.

thefugefamily.blogspot.com thefugefamily.blogspot.com

The Fuge Family: The Princess Ball

http://thefugefamily.blogspot.com/2012/09/the-princess-ball.html

Monday, September 24, 2012. The Stake we are in does a Princess Ball every year for girl 3-11. Lexi was so excited to go when we told her And that Daddy was going to be her prince for the night! It was at the church building and they did everything like a wedding was taking place there! They danced all night and had some cookie treats and got their picture taken together. She came home so tired but had to tell me all her favorite parts, which was all of it! She make this dress for Lexi in one week!

thefugefamily.blogspot.com thefugefamily.blogspot.com

The Fuge Family: Princess Ball 2

http://thefugefamily.blogspot.com/2012/10/princess-ball-2.html

Tuesday, October 9, 2012. At the princess ball, they had a photographer there and they finally posted the pictures! The backdrops were so cute! They really went all out on the decorations too! They also got a picture of the two of them dancing! This is so adorable! She looks like a little princess. :). October 9, 2012 at 8:40 PM. November 7, 2012 at 9:13 PM. All these blog posts I somehow missed! These photos are so cute! I love the one of them in the boat :). May 31, 2013 at 12:40 PM.

thefugefamily.blogspot.com thefugefamily.blogspot.com

The Fuge Family: March 2008

http://thefugefamily.blogspot.com/2008_03_01_archive.html

Monday, March 17, 2008. So liz and i went to party for rock and roll the other night with some of my work friends, so we decided to go 80's. it was awesome. nana helped us pick out some good stuff at goodwill, and here are the pictures. Subscribe to: Posts (Atom). So liz and i went to party for rock and roll the o. Picture Window template. Template images by molotovcoketail.

thewilkfam.blogspot.com thewilkfam.blogspot.com

The Wilkinsons: Maple Canyon

http://thewilkfam.blogspot.com/2012/09/maple-canyon.html

Wednesday, September 26, 2012. Anyone who knows us very well would not be shocked to know that the 1st weekend we were in Utah we took the kids to Maple Canyon. Our favorite place in the world. We fell in love there. The kids had a blast climbing and we had so much fun watching them learn something we love so much. Dirty face = fun day! Subscribe to: Post Comments (Atom). Pictured here with #3 - due June 2012). My quote to live by. Find Healthy and Budgeted Recipes in. Friends from B's home.

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Life with Lily

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