livinglfs.org livinglfs.org

livinglfs.org

Living LFS – Li-Fraumeni Syndrome | TP53 Gene

Clinical Trials & Studies. Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. Learn from our blog contributors. Personal stories, latest research, and mutant humor! It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community. Photo Courtesy of Wallin Photography. Shared The George Pantziarka TP53 Trust. Shared The George Pantziarka TP53 Trust. Thank you to Bonita Kline for her generous donation to our Friends of Living LFS Campaign!

http://www.livinglfs.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR LIVINGLFS.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

August

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Friday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 4.2 out of 5 with 13 reviews
5 star
9
4 star
2
3 star
0
2 star
0
1 star
2

Hey there! Start your review of livinglfs.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

0.5 seconds

FAVICON PREVIEW

  • livinglfs.org

    16x16

  • livinglfs.org

    32x32

  • livinglfs.org

    64x64

  • livinglfs.org

    128x128

CONTACTS AT LIVINGLFS.ORG

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

CONTENT

SCORE

6.2

PAGE TITLE
Living LFS – Li-Fraumeni Syndrome | TP53 Gene | livinglfs.org Reviews
<META>
DESCRIPTION
Clinical Trials & Studies. Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. Learn from our blog contributors. Personal stories, latest research, and mutant humor! It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community. Photo Courtesy of Wallin Photography. Shared The George Pantziarka TP53 Trust. Shared The George Pantziarka TP53 Trust. Thank you to Bonita Kline for her generous donation to our Friends of Living LFS Campaign!
<META>
KEYWORDS
1 menu
2 about us
3 mission statement
4 core values
5 board of directors
6 care
7 resources
8 about lfs
9 screening
10 online resources
CONTENT
Page content here
KEYWORDS ON
PAGE
menu,about us,mission statement,core values,board of directors,care,resources,about lfs,screening,online resources,blog,friends of llfs,donate now,li fraumeni syndrome,educate,explore posts,community,find support,load more,follow on instagram,living lfs
SERVER
Apache/2.4.18 (Unix) OpenSSL/1.0.1e-fips mod_bwlimited/1.4 mod_fcgid/2.3.9
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

Living LFS – Li-Fraumeni Syndrome | TP53 Gene | livinglfs.org Reviews

https://livinglfs.org

Clinical Trials & Studies. Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. Learn from our blog contributors. Personal stories, latest research, and mutant humor! It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community. Photo Courtesy of Wallin Photography. Shared The George Pantziarka TP53 Trust. Shared The George Pantziarka TP53 Trust. Thank you to Bonita Kline for her generous donation to our Friends of Living LFS Campaign!

INTERNAL PAGES

livinglfs.org livinglfs.org
1

Blog – Living LFS

http://www.livinglfs.org/blog

Clinical Trials & Studies. Beauty in an Unlikely Place- Fannie Remembers Her Mother’s Breast Cancer Journey. October 22, 2016. Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS. Thank you Fannie for sharing your memories of your mother and her strength with us. My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. Kerry...

2

About Us – Living LFS

http://www.livinglfs.org/about-us

Clinical Trials & Studies. LIVING LFS MISSION STATEMENT. We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS. LIVING LFS CORE VALUES. Jen Mallory, President, Founder. Contact Jen at; JenMallory@LivingLFS.org. Trishia Shelly-Stephens, Vice President, Founding Member. Contact Trish at; Trish@LivingLFS.org. RD Mooney, Secretary and Treasurer, Founding Member. Contact DeAnn at; deann@LivingLFS.org. As a young girl, I...

3

Support – Living LFS

http://www.livinglfs.org/support

Clinical Trials & Studies. Facebook Page and Support Groups. Families who have this condition are rare and special. Facebook gives us the power to network, share stories, ask for advice, and make friends around the world. If you are not a member of Facebook, we highly recommend that you join – if only to connect with our Facebook Page or Closed Groups! Li-Fraumeni Syndrome Support Group. Li-Fraumeni Syndrome Family And Friends. SLF – Síndrome de Li – Fraumeni Brasil. Other Online Support Groups. 8211; Se...

4

Using Family Loss to Sing Awareness of LFS for Mo and Kerry – Living LFS

http://www.livinglfs.org/using-family-loss-to-sing-awareness-of-lfs-for-mo-and-kerry

Clinical Trials & Studies. Using Family Loss to Sing Awareness of LFS for Mo and Kerry. October 12, 2016. My name is Kathy Higgins. I have lost 4 family members to LFS. In 2002, our second daughter Maureen who was 18 years old at the time, developed a stage 4 adrenocortical carcinoma before we even knew she was sick. At this time, doctors decided it was time to look further into our family history. Maureen had surgery and chemo, but did not respond well to chemo. We lost her within 4 months.

5

Beauty in an Unlikely Place- Fannie Remembers Her Mother’s Breast Cancer Journey – Living LFS

http://www.livinglfs.org/beauty-in-an-unlikely-place-fannie-remembers-her-mothers-breast-cancer-journey

Clinical Trials & Studies. Beauty in an Unlikely Place- Fannie Remembers Her Mother’s Breast Cancer Journey. October 22, 2016. Fannie learned some very powerful lessons from her mother through her breast cancer battles. She learned about self awareness, how to advocate and how she chooses to live despite living with LFS. Thank you Fannie for sharing your memories of your mother and her strength with us. My mom never knew she had Li-Fraumeni Syndrome. I was the first one to get genetic testing done. Alter...

UPGRADE TO PREMIUM TO VIEW 4 MORE

TOTAL PAGES IN THIS WEBSITE

9

LINKS TO THIS WEBSITE

en.wikipedia.org en.wikipedia.org

Li–Fraumeni syndrome - Wikipedia, the free encyclopedia

https://en.wikipedia.org/wiki/Li-Fraumeni_syndrome

From Wikipedia, the free encyclopedia. Redirected from Li-Fraumeni syndrome. Classification and external resources. Is a rare cancer predisposition hereditary disorder. Characterized as autosomal dominant. It was named after two American physicians, Frederick Pei Li. And Joseph F. Fraumeni, Jr. Who first recognized the syndrome after reviewing the medical records and death certificates of 648 childhood rhabdomyosarcoma. The syndrome is linked to germline mutations. Or in one of the parent's germ cells.

lfsassociation.org lfsassociation.org

LFS Patient Support & Advocacy | Bringing Families, Researchers & Clinicians Together to Better Understand LFS | Li-Fraumeni Syndrome Association

http://www.lfsassociation.org/patient-support

Who should be tested for LFS. Is there screening or prevention for LFS. Is there treatment for LFS. What are the reproductive issues? Dr Frederick Pei Li Obituary. Clinical Trials, Patient Studies, and Surveillance Programs. TitanTough21 Foundation Launch Event. Immunology, Oncolysis, and Targeting Genes. Nutrition and Cancer with Dr. Walter Willett. 2nd Annual “Living with LFS. 8221; Webinar Conference. Talk with Dr. Judy E. Garber. Recent Findings and Future Directions. 2nd Annual “Living with LFS.

UPGRADE TO PREMIUM TO VIEW 2 MORE

TOTAL LINKS TO THIS WEBSITE

4

SOCIAL ENGAGEMENT



OTHER SITES

livingleving.blogspot.com livingleving.blogspot.com

Living Leving~Style

And so the journey begins. Saturday, August 17, 2013. So proud of our little guy. Reuben earned his brown belt in Taekwondo. I am amazed at all of the information he has to retain and the skills that he has to perform to accomplish this task. Black belt or BUST! New skill for this test - Staff. He loves it! He loves Mrs.Vasquez. She is the best! Thursday, July 4, 2013. Celebrating Independence Day is always fun! These sparks are flying. Saturday, April 20, 2013. He is 49 inches tall in the 75th percentile.

livinglewes.com livinglewes.com

Living Lewes | An Insider's Guide | Living Lewes

An Insider's Guide. Lewes has so far resisted touristy kitsch, somehow retaining its easy charm and friendly mid-Atlantic vibe, complete with long vowels, rustling corn fields and a dreamy slow pace. THE NEW YORK TIMES. Lewes, Delaware is the East Coast’s great ‘undiscovered’ seaside treasure. With miles of unspoiled bay and ocean beaches, and rolling wetlands that offer refuge for both human paddlers and exotic birds, Lewes is far-removed from your standard cotton-candy boardwalk beach town. Washington,...

livinglexingtonky.com livinglexingtonky.com

Paul's Blog

A place to learn about Lexington Kentucky and to discover "the New World of Real Estate in Central Kentucky. Paul is passionate building strong, life long relationships. His goal is to make his clients so pleased with his help they will want to introduce him to others they care about. Paul works By Referral Only. This is a safe place to question, discuss and share life authentically. Add a new Widget. Type your city to get started:. Paul Campbell Realtor Lexington. Rector Hayden, Lexington, Ky. Rose Para...

livinglexistyle.blogspot.com livinglexistyle.blogspot.com

Living Life Like Lexi

Living Life Like Lexi. Sunday, August 19, 2012. They all wanted to do a photo shoot but Hayden didn't end up liking it very much. Hannah would not stop doing cartwheels. I love this picture 3. Over the past three weeks my aunt and h So er three girls, Hannah, Hayden, and Brooklyn came to visit us. We saw them off and on throughout their visit, but we were lucky enough to spend their last day here with them! We went to cowabunga bay and spent literally the whole day there! Saturday, July 21, 2012. Me and ...

livinglexxi.blogspot.com livinglexxi.blogspot.com

Living by Lexxi

Måndag 20 januari 2014. Hur står det i matchen mot det kaoset? Om jag kopplar bort omvärlden och bara tittar in i min bubbla, så kämpar jag ett krig mot hjärntumören samtidigt som jag brottas med panikångest och utmattningsdepression. Detta är den största anledningen till min frånvaro. Det är oerhört tufft för mig att skriva detta då jag försökt att hålla detta för mig själv. Börjar inse att ensam inte alltid är stark. Kanske kan jag övervinna mina demoner genom att berätta. Länkar till det här inlägget.

livinglfs.org livinglfs.org

Living LFS – Li-Fraumeni Syndrome | TP53 Gene

Clinical Trials & Studies. Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. Learn from our blog contributors. Personal stories, latest research, and mutant humor! It's very difficult and sometimes lonely to face a rare syndrome. Meet the Living LFS community. Photo Courtesy of Wallin Photography. Shared The George Pantziarka TP53 Trust. Shared The George Pantziarka TP53 Trust. Thank you to Bonita Kline for her generous donation to our Friends of Living LFS Campaign!

livinglg.com livinglg.com

www.livinglg.com

livingliam.blogspot.com livingliam.blogspot.com

Living Liam

September 17, 2012. For the new 'do. What do you think? I know. I know. I wasn't sure about the length at first either. BUT I had been growing it out for nine long months now.the ladies were loving it, all was well, but I have to admit, I was starting to get a tad self conscious in pictures. I couldn't even look at the camera. I tell you what,. With these new locks, I couldn't be happier. I know, I look 10 months older don't I? Big shout out to my stylist Autumn. Keep it real,. August 16, 2012. Side note...

livinglib.voiceoftv.ru livinglib.voiceoftv.ru

Жизнь библиотечная

Детский клуб "Маячок" Захаровской СБ Селижаровской МЦБ. Зубцовская МЦБС в 2011 году. Из цикла Литературный подиум. Итоги конкурса "Лучший уголок охраны книжного фонда" среди библиотек Торжокской ЦБС. Книга В. Пояркова "Великая Отечественная на Селижаровской земле". Конкурс профессионального мастерства в Краснохолмской МЦБ. Литературное объединение "Дыхание Верхневолжья". О Сонковской межпоселенческой библиотеке. Отчёт о реализации проекта Торопецкой ДБ. Отчёт о реализации проекта Торопецкой ЦБ. Фонд "Уро...

livinglibations.com livinglibations.com

Home; About. About Nadine & Ron; Links; Libation Adulation; Products. Renegade Beauty Care. Beauty Solutions; Beauty Care: The Whole Being; Body Ablutions; Essential Oils: Essential Kits: Eyes to Imbibe: Grace the Face: Happy Hands and Feet: Healthy Ha

Explore New Libations Creations. Shop in US and International. You have no items in your shopping cart. SHOP BY SKIN CONCERN. Acne Cleansers, Blemish Prone, Plugged Pores, Spots. Exposed to Environmental Elements. Acne Washes, Redness, Imperfections. Melasma, Age Spots, Uneven Tone. Redness, Puffiness Sensitive. Exposed to Environmental Elements. Diminish Appearance of Scars Spots. SHOP BY SKIN RESULTS. BIRTH, BABIES and CHILDREN. ESSENTIAL OILS, CARRIERS and ELIXIRS. Essential Oil Carrying Cases. Gifts ...

livinglibationscoupon.com livinglibationscoupon.com

Living Libations coupon code 2014

We offer you the best Living Libations Coupons for 2014. Sign up for our newsletter or just click this button underneath to visit living libations site. Click Here to visit Living Libations. At last, a shampoo pure enough to ordain our mane. Living Libations Seabuckthorn Shampoo brings out the best in all hair types without the chemical suds! Filled with a bounty of nature's botanical essences and herbs, our shampoo will nourish and harmonize your hair without weighing down your mane. Happy Hands and Feet.