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Lawrence's Roundabout Well Appeal

Lawrence’s Roundabout Well Appeal is a UK based charity which raises money to buy PlaypumpTM water pumping systems for Africa. The charity was set up in memory of a young boy who died from the genetic degenerative condition Adrenoleukodystrophy (ALD)

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Lawrence's Roundabout Well Appeal | lrwa.co.uk Reviews
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Lawrence’s Roundabout Well Appeal is a UK based charity which raises money to buy PlaypumpTM water pumping systems for Africa. The charity was set up in memory of a young boy who died from the genetic degenerative condition Adrenoleukodystrophy (ALD)
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1 Lawrence
2 Prifti
3 Adrenoleukodystrophy
4 ALD
5 Degenerative
6 Roundabout Well
7 PlaypumpTM
8 PlaypumpTM Water Pumping systems
9 Addisons’s Disease
10 Make a Wish
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Lawrence's Roundabout Well Appeal | lrwa.co.uk Reviews

https://lrwa.co.uk

Lawrence’s Roundabout Well Appeal is a UK based charity which raises money to buy PlaypumpTM water pumping systems for Africa. The charity was set up in memory of a young boy who died from the genetic degenerative condition Adrenoleukodystrophy (ALD)

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1

Adrenoleukodystrophy (ALD)

http://lrwa.co.uk/Adrenoleukodystrophy_ALD.html

Adrenoleukodystrophy (ALD) is a rare genetically inherited degenerative condition. ALD is one of a group of disorders called the leukodystrophies where the fatty covering of the nerve fibres (myelin sheath) breaks down which prevents the nerves from working as they should. There are various forms of ALD, but the two most common ones are childhood and. Not all boys who test positive for ALD go on to develop the symptoms described above and some will lead full and normal lives.

2

Facts About Water

http://lrwa.co.uk/FACTS_ABOUT_WATER.html

Nearly half the world's population has no access to clean water. 2 million people die each year from preventable water related diseases. One child dies every 15 seconds from these diseases. A typical South African child has to walk 3km to get fresh water and will have to carry a 25 litre drum of water back home every day. Fetching water can take up to four hours of a child's day. 40 billion hours are lost annually to hauling water – woman and girls are the primary water carriers. Have to use in a day.

3

LAWRENCE’S STORY (written by Virginia Prifti)

http://lrwa.co.uk/LAWRENCES_STORY.html

On the 3rd of December Lawrence developed a sickness bug and became very ill. He was taken into hospital and seemed to have made a full recovery the next morning – after fish fingers and chips for lunch (! By the beginning of March Lawrence was needing quite a bit of help in feeding himself. He was also incontinent. Lawrence was still very aware of his surroundings but seemed to accept the situation he was in and never questioned it. In the middle of March Lawrence caught another sickness bug which affec...

4

Lawrence's Roundabout Well Appeal

http://lrwa.co.uk/index.html

Lawrence was a normal, bright, happy and healthy boy who had a wicked sense of humour and was mad about football. When Lawrence was six he started to have difficulties with his hearing. These problems got worse over the next few months and in October 2004 a brain scan revealed that Lawrence was suffering from an extremely rare degenerative condition called Adrenoleukodystrophy (ALD). Within six months of the diagnosis Lawrence was unable to move,. Could no longer talk and had to be fed by tube.

5

Donations to Lawrence's Roundabout Well Appeal

http://lrwa.co.uk/DONATIONS.html

You can make a donation to us directly by clicking on the justgiving button below:. Deduct 5% VAT on all donations. Please send a cheque made payable to Lawrence’s Roundabout Well Appeal. Lawrence’s Roundabout Well Appeal. Hillside, Cheriton,. Llanmadoc, SWANSEA SA3 1BY. If you are a UK tax payer we can get another 28p back for every £1 you give us through Gift Aid. If you would like to gift aid your donation please print out our form. And send it to us with your cheque. Leaflet and Website designed by:.

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Lawrence's Roundabout Well Appeal

Lawrence was a normal, bright, happy and healthy boy who had a wicked sense of humour and was mad about football. When Lawrence was six he started to have difficulties with his hearing. These problems got worse over the next few months and in October 2004 a brain scan revealed that Lawrence was suffering from an extremely rare degenerative condition called Adrenoleukodystrophy (ALD). Within six months of the diagnosis Lawrence was unable to move,. Could no longer talk and had to be fed by tube.

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