I am a twenty-something girl, trying to figure life out since being diagnosed with a chronic autoimmune disease called Antisynthetase syndrome. I married my soul mate in the summer of 2008, and got diagnosed with my autoimmune disease that fall. This blog is about me trying to figure life out and to help others understand the ins and outs of a chronically ill person.
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Her Diamonds, Her Life | maggieandchrishatch.blogspot.com Reviews
https://maggieandchrishatch.blogspot.com
I am a twenty-something girl, trying to figure life out since being diagnosed with a chronic autoimmune disease called Antisynthetase syndrome. I married my soul mate in the summer of 2008, and got diagnosed with my autoimmune disease that fall. This blog is about me trying to figure life out and to help others understand the ins and outs of a chronically ill person.
maggieandchrishatch.blogspot.com
Her Diamonds, Her Life: The Basics of My Disease
http://maggieandchrishatch.blogspot.com/p/basics-of-my-disease.html
The Basics of My Disease. What are autoimmune diseases? Http:/ www.youtube.com/watch? Is a chronic autoimmune disease of unknown cause. It is a subgroup of the idiopathic (unknown cause) inflammatory muscle diseases and is characterized by myositis, interstitial lung disease, arthritis, and Raynaud's phenomenon. Interstitial (in-tur-STISH-ul) lung disease. Signs and symptoms of the wide variety of disorders classified as interstitial lung disease may include:. Breathlessness and a dry cough are often the...
Her Diamonds, Her Life: June 2010
http://maggieandchrishatch.blogspot.com/2010_06_01_archive.html
Monday, June 28, 2010. Starting to feel "normal". Thanks for the continued prayers. Links to this post. Friday, June 11, 2010. Reason for being MIA. Sorry for the delay in blog posts! It has been crazy around the Hatch house with lots of house projects and a little surprise birthday party thrown in there for my mother-in-law. which shows that yes, I am feeling well! I think i'll have my work cut out for me! We will CELEBRATE tonight! That's all for now for our wonderful blessings and good news! Aden and ...
Her Diamonds, Her Life: Lack of updates
http://maggieandchrishatch.blogspot.com/2013/09/lack-of-updates.html
Wednesday, September 25, 2013. September 26, 2013 at 1:44 PM. Hope you are doing well and are as happy and healthy as you can be! Subscribe to: Post Comments (Atom). A Glimpse Into My Story. The Basics of My Disease. Her Diamonds, Her Life. Style Me Pretty : The Ultimate Wedding Blog. Peonies, Paper Parasols and A White Horse. This Wedding is a Fairytale IRL. A Pinch of Lovely. Solid Colored Tops For Your Football Gameday Outfits. The Girl Who Ate Everything. Weekly Menu Plan #63. Your Cup of Cake.
Her Diamonds, Her Life: February 2010
http://maggieandchrishatch.blogspot.com/2010_02_01_archive.html
Friday, February 26, 2010. Going on an adventure. We're getting ready to leave for Atlanta. so say a couple prayers that I don't freak out on the plane! I woke up this morning with some slight muscle pain and a low grade fever. not sure if it was a fluke or if "my hunch" is right and my disease is becoming more active. Lovely how this occurs at the same time I'm facing my fear and flying again. oh well. God will see me through! I have my blood test on Monday so I'll know then whats up! Links to this post.
Her Diamonds, Her Life: A Glimpse Into My Story
http://maggieandchrishatch.blogspot.com/p/my-story.html
A Glimpse Into My Story. Pictures from our June 28, 2008 Wedding. Luckily, the hematoligist ruled out at this point no cause for cancer. Although, due to my weakend immune system, it will be very important for me to stay on top of screenings and check-ups as I'm a "high risk" patient. It seems as if the muscle enzymes are staying steady, but the lungs are not improving. we continue to strive on for new treatment options. Subscribe to: Posts (Atom). I am a twenty-something girl, trying to figure life out ...
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antisynthetasedays.blogspot.com
Antisynthetase Days: Groan...
http://antisynthetasedays.blogspot.com/2010/11/groan.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Friday, November 19, 2010. Hmm Where to start, where to start. The next few weeks were relatively uneventful.Mostly pottering about the house, painting the new patio area and repairing any niggling little problems which arose from time to time. Which brings us to today and yet another Infliximab infusion date. Peter was called and instructed the remainder of the Infliximab not be Infused, then hea...
antisynthetasedays.blogspot.com
Antisynthetase Days: November 2009
http://antisynthetasedays.blogspot.com/2009_11_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Friday, November 27, 2009. Kez and I have just returned from Pring (the QRNational Coal depot I am assigned as a driver to). Speaking with my soon-to-be former co workers at times made me think I was glad to be leaving, however there are complaints to be had in any workforce I imagine (there was in CSR too and they were similar) so it was a day of mixed emotions for me. Driving out of the Depot fo...
antisynthetasedays.blogspot.com
Antisynthetase Days: Tap. Tap. Tap...
http://antisynthetasedays.blogspot.com/2011/07/tap-tap-tap.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Monday, July 25, 2011. Tap Tap. Tap. Is this thing on? Wow Two posts within an hour huh? What is the occasion I hear you ask. Well, after my last post I decided to poke about in the Android app store and guess what? It turns out there IS an official Android app for Blogger. I'm using it right now. Does this mean I'll be posting more often? July 25, 2011 at 10:32 PM. Good work techno whiz :).
antisynthetasedays.blogspot.com
Antisynthetase Days: November 2010
http://antisynthetasedays.blogspot.com/2010_11_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Friday, November 19, 2010. Hmm Where to start, where to start. The next few weeks were relatively uneventful.Mostly pottering about the house, painting the new patio area and repairing any niggling little problems which arose from time to time. Which brings us to today and yet another Infliximab infusion date. Peter was called and instructed the remainder of the Infliximab not be Infused, then hea...
antisynthetasedays.blogspot.com
Antisynthetase Days: March 2011
http://antisynthetasedays.blogspot.com/2011_03_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Thursday, March 10, 2011. Why it's been so long between updates; really, I can. Speaking of beer, I have been more or less alcohol free for three months now. I say more or less, as I had half a glass of champagne with Kerry to celebrate our Anniversary / Valentines Day, and two Mid Strength beers at James 40th birthday party. Drug wise nothing much has changed. I am still receiving pain manage...
antisynthetasedays.blogspot.com
Antisynthetase Days: July 2011
http://antisynthetasedays.blogspot.com/2011_07_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Monday, July 25, 2011. Tap Tap. Tap. Is this thing on? Wow Two posts within an hour huh? What is the occasion I hear you ask. Well, after my last post I decided to poke about in the Android app store and guess what? It turns out there IS an official Android app for Blogger. I'm using it right now. Does this mean I'll be posting more often? Well, that's it. Procrastination is a thing right? There r...
antisynthetasedays.blogspot.com
Antisynthetase Days: October 2009
http://antisynthetasedays.blogspot.com/2009_10_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Monday, October 26, 2009. Busy, busy, busy. Well it's been an interesting few weeks. Interspersed between these have been numerous specialists and GP's visits to get paperwork and checkups performed as well as bloods, etc. Dang, it's been busy. Never mind, helps to keep ones mind off things. I have now started on Cyclosporin again and will be going back for Infliximab infusions every month. I'...
antisynthetasedays.blogspot.com
Antisynthetase Days: August 2010
http://antisynthetasedays.blogspot.com/2010_08_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Friday, August 13, 2010. This is getting rediculous. Seriously, I go to Townsville for my regularly scheduled Infliximab infusion and what happens? I wind up in hospital again; this time for two weeks. Arrrrrrrrrrrrgh. Blood tests for CRP, ESR and CK levels, as well as Blood Cultures were about to become a daily part of life. Day four came and it was off to Nuclear Medicine to have a keyhole dye s...
antisynthetasedays.blogspot.com
Antisynthetase Days: I know, I know...
http://antisynthetasedays.blogspot.com/2010/10/i-know-i-know.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Monday, October 4, 2010. I know, I know. I know I said I was going to post almost two months ago, but I've been kind of busy with the house and stuff. With that, it was good-bye to sleeping properly and hello to constant bouts of insomnia. A quick education on Oxycodone for anyone interested. October 5, 2010 at 8:22 AM. Jason So sorry youre back up on steroids! Hope you feel a little better! Im su...
antisynthetasedays.blogspot.com
Antisynthetase Days: October 2010
http://antisynthetasedays.blogspot.com/2010_10_01_archive.html
Just me letting people know how I am doing and what I am REALLY thinking in a (slightly) more private forum. Monday, October 4, 2010. I know, I know. I know I said I was going to post almost two months ago, but I've been kind of busy with the house and stuff. With that, it was good-bye to sleeping properly and hello to constant bouts of insomnia. A quick education on Oxycodone for anyone interested. Subscribe to: Posts (Atom). There really isn't much to say. I am 40 years old, married with two lovely...
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Maggie and Bryon's blog
Maggie and Bryon's blog. Tuesday, December 22, 2009. So, there I went, telling people "Oh, we will be in Orlando, We will make sure to update the blog with pictures" and then we go and barely take any pictures. Well, We will try to do better the next day or two. Here are a few pictures from Magic Kingdom, these were from the new Tiana and the Frog "show" (and then Bryon and I went and saw the movie today, it was great! The alligator in the street parade. People exploring Tom Sawyer island. Becky and I we...
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Maggie & Charlie
City, State, Zip. Your Custom Text Here. Come celebrate WITH US. 9222017 and 9.23.2017. Sebago Lake, Maine. We cannot wait to see you in Maine! Photography by zac wolf.
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Our Journey On The Spectrum
Our Journey On The Spectrum. Wednesday, August 31, 2016. Chase's letters/notes are easy to write. Obvious. He is non-verbal, so there are lots of things to explain regarding his iPad, behaviors, non-verbal cues, wants, needs, strengths, weaknesses, etc. With Miles it's not so black and white. So to Miles's teacher. He spent the summer going to super hero and soccer camps, never missing a beat, and always asking/begging to know when it would be time to go back to school. He LOVES school! Miles knows pain,...
maggieandchrishatch.blogspot.com
Her Diamonds, Her Life
Wednesday, September 25, 2013. Links to this post. Monday, May 7, 2012. I keep asking that question to myself. What is next for me. So far, I haven't come up with an answer. I've been doing great and exercising about 6 times weekly. I've even lost about 7 pounds, but with much hard work and restraint in the dietary department. That prednisone sure did mess with my body and metabolism. That winter, Chris and I moved into our neighborhood and I started to become extremely ill. Needless to say that past...
maggieandchrisnewton.blogspot.com
Newton's Newlywed Nest
Our Married Life Adventures! Thursday, February 10, 2011. We decided to celebrate our anniversary a weekend early due to the Super Bowl being in Dallas on February 6th (our actual anniversary). We knew we wanted to go to dinner and stay somewhere nice but we knew that (while I'm sure it would have been great people watching) with everyone in town, we wouldn't have been able to get reservations anywhere. I received some beautiful flowers at work! We ate at Javier's downtown and it was AMAZING. We have bee...
maggieandchristopher.blogspot.com
Chris Carr & Maggie Brinley
Chris Carr and Maggie Brinley. Wedding Ideas for Our Guests. Friday, March 4, 2011. We hope to see you on October 1, 2011! Maggie Brinley and Chris Carr getting engaged on St. Kitts on April 23rd, 2010. Mallard Island Yacht Club. We think that the Long Beach Island, NJ, area is a wonderful place to get married and we hope you’ll enjoy your stay. Here’s a link to what’s happening on the island:. We had blocked rooms at The Holiday Inn. 151 Route 72 East, Manahawkin, NJ, 08050, Phone: 609-481-6100,. If you...
Chris & Maggie - Welcome
October 3, 2015. Though free to think and act, we are held together, like the stars in the firmament, with ties inseparable. These ties cannot be seen, but we can feel them. Nikola Tesla . Cover Photo by Kurista Williams Kurista and Seth Photography.
maggieandco
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Maggie & Co - Designer Womenswear and Fashion
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