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Maroteaux-Lamy.com, complete online resource for MPS VI

Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.

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Maroteaux-Lamy.com, complete online resource for MPS VI | maroteaux-lamy.com Reviews
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Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.
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Maroteaux-Lamy.com, complete online resource for MPS VI | maroteaux-lamy.com Reviews

https://maroteaux-lamy.com

Welcome to Maroteaux-Lamy.com, your complete online resource promoting awareness and diagnosis of Maroteaux-Lamy syndrome (MPS VI), to advance optimal management of this rare disease and improve the lives of the people who are touched by it.

LINKS TO THIS WEBSITE

naglazyme.com naglazyme.com

Additional Clinical Information | Patient

http://www.naglazyme.com/additional-clinical-information

Number and Percentage of Patients With Selective Adverse Events in the Placebo-controlled Study. One of the 20 patients in the placebo group dropped out after week 4 infusion. Find an MPS VI clinic near you. NAGLAZYME.com does not warrant or guarantee the accuracy of information provided in the Clinic Locator. Know someone else who could benefit from Naglazyme.com? Forward to a family member, MPS VI patient, friend, or colleague. Simply fill out the fields below and click Send. All fields are required.

mpssociety.ru mpssociety.ru

Общество больных мукополисахаридозом. Россия. Фермент заместительная терапия.

http://www.mpssociety.ru/ert.html

Фермент заместительная терапия. Клинические исследования. 15 стан Евросоюза одобрили прием Aldurazyme (laronidaze) по 1 разу в неделю для долгосрочной терапии по замещению энзима у пациентов с подтвержденным диагнозом МПС-I. С целью лечения не-неврологических проявлений болезни. Aldurazyme был разработан компаниями BioMarin. В рамках ветурного соглашения, согласно которому BioMarin несет ответственность за коммерческое производство препарата, а Genzyme отвечает за маркетинг и продажу препарата на мировых...

mpssociety.ru mpssociety.ru

Общество больных мукополисахаридозом. Россия. ТКМ

http://www.mpssociety.ru/events.html

24 июля 2006 г. Объявила, что FDA США официально одобрила производство и распространение препарата заместительной терапии Elaprase. Первое специально разработанное лекарственное средство для лечения мукополисахаридоза II типа. 29 июня - 2 июля 2006 г. В Венеци, Италия, под девизом "Вместе к лучшей жизни! Состоялся 9й Международный Симпозиум, посвященный Мукополисахаридам и связанным с ними заболеваниям. Http:/ www.congress2006mps.it. 30 января 2006 г. 24 ноября 2005 г. 1 июня 2005 г. 10 декабря 2004 г.

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Maroteaux-Lamy.com, complete online resource for MPS VI

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