maxupdate.blogspot.com

MIGHTY MAX UPDATE

Maxwell Bennett McKinley (MIGHTY MAX) is an adorable little boy born to his proud mommy on June 22, 2005. Born two months early and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and spent the first six months at Children's Hospital in Seattle. He is now home and working hard to get healthy and strong. Max is proving to be quite a fighter and has already blessed so many lives with his strong character and beautiful soul.

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MIGHTY MAX UPDATE | maxupdate.blogspot.com Reviews

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Maxwell Bennett McKinley (MIGHTY MAX) is an adorable little boy born to his proud mommy on June 22, 2005. Born two months early and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and spent the first six months at Children's Hospital in Seattle. He is now home and working hard to get healthy and strong. Max is proving to be quite a fighter and has already blessed so many lives with his strong character and beautiful soul.

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MIGHTY MAX UPDATE | maxupdate.blogspot.com Reviews

https://maxupdate.blogspot.com

Maxwell Bennett McKinley (MIGHTY MAX) is an adorable little boy born to his proud mommy on June 22, 2005. Born two months early and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and spent the first six months at Children's Hospital in Seattle. He is now home and working hard to get healthy and strong. Max is proving to be quite a fighter and has already blessed so many lives with his strong character and beautiful soul.

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maxupdate.blogspot.com

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MIGHTY MAX UPDATE: 2006-11-05

http://maxupdate.blogspot.com/2006_11_05_archive.html

Friday, November 10, 2006. Miss Stephanie is one of my very favorite people! We have so much fun together! She comes over sometimes to play with me, so Mommy can get some things done in the house. But Mommy has a hard time staying away, because she just loves watching how much we enjoy each other. :). I am learning how to push on this toy to make the objects go round and round. Finally this week I did it! Amy and mighty max. MEGA coordination and strength required! But there was no consistency. And I alw...

2

MIGHTY MAX UPDATE: 2006-10-22

http://maxupdate.blogspot.com/2006_10_22_archive.html

Saturday, October 28, 2006. Many of you have posted or emailed me requesting Maxwell's clothing size, so I thought I would just post it here. :). He is definitely growing and looking good these days! He now weighs nineteen pounds! Thanks for caring so much about this precious lil' man. It really warms my heart knowing how many lives he has touched. :). Amy and mighty max. CHECK, CHECK, CHECK. Yep, we are checking "tricks" off of Mighty Maxwell's goal list every day! She was completely blown away! He has ...

3

MIGHTY MAX UPDATE: 2006-11-12

http://maxupdate.blogspot.com/2006_11_12_archive.html

Friday, November 17, 2006. ANOTHER DAY, ANOTHER TEST.SUCH IS THE LIFE OF MIGHTY MAX! We left Seattle early this morning (5:30 am) so we were back in Bellingham bright and early. Ok Mom wasn't too "bright", she didn't manage much sleep during my sleep study. (I guess you could say that was my fault, I woke up crying several times.those wires were a little overwhelming and scary.). Lady, what are you doing to me? Mommy, this really isn't all that fun. Don't make fun of my wire ponytail. Amy and mighty max.

4

MIGHTY MAX UPDATE: 2007-01-14

http://maxupdate.blogspot.com/2007_01_14_archive.html

Tuesday, January 16, 2007. The 20 Hour Crop for the Mighty Maxwell Guild is scheduled for Friday, April 20th and Saturday, April 21st. Details will be coming out in the next month, but for now.please mark it on your calendar. Last year we raised nearly $15,000 and we would love to match that again this time! Thank you to everyone for your support of this very worthy cause! Amy and mighty max. View my complete profile. Learn about CHARGE Syndrome and Meet Some of Max's Buddies!

5

MIGHTY MAX UPDATE: 2006-12-17

http://maxupdate.blogspot.com/2006_12_17_archive.html

Thursday, December 21, 2006. GUESS WHAT TODAY IS? MY ONE YEAR ANNIVERSARY! Yep I have officially been home one entire year from the hospital! Last year at this time. I was incredibly fragile. My mom was warned repeatedly "this kid has terrible lungs, he is on thin ice and when he starts to crack, he will go down quickly.very quickly." Yikes, that sure made her nervous! Mom says her emotions (happiness and fear) from that day are still very fresh. But look at me now.what a difference a year makes! And als...

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chargesyndrome.info

CHARGE Syndrome Info - Links

http://www.chargesyndrome.info/links.html

This is an assortment of links to web sites or articles we have accumulated over the years about CHARGE syndrome and Kennedy's associated conditions. If you find any broken links or know of any that should be included, please email me. In January 2005, the American Journal of Medical Genetics. And the articles can be found here. CHARGE CONFERENCE 2005 - Miami, Florida. If you would like to view the photos that we took on our trip to the conference, please visit: Graeme and Lisa's Miami Photos. If you wou...

bonafide-princess.blogspot.com

Tales of a Bonafide Princess: October 2006

http://bonafide-princess.blogspot.com/2006_10_01_archive.html

Tales of a Bonafide Princess. When I talk, you listen.or else! Wednesday, October 25, 2006. Decisions, decisions, decisions. My second pregnancy wasn't horrible but I had more problems. My feet were more swollen than anybody had ever seen. The positive side to that was getting a doctor's note, allowing me to wear open-toed sandals to work, which pissed off some co-workers! Especially people who have three or more kids, help me out here! Posted by 2-hot-4-you @ 7:27 AM. Wednesday, October 04, 2006. They l...

bonafide-princess.blogspot.com

Tales of a Bonafide Princess: May 2007

http://bonafide-princess.blogspot.com/2007_05_01_archive.html

Tales of a Bonafide Princess. When I talk, you listen.or else! Wednesday, May 16, 2007. Labels: mommy and daddy are in jail and mommy touches my butt. Our house burned down. Posted by 2-hot-4-you @ 7:44 AM. View my complete profile. Here In Her Head. OKI went into daycare about a week ago and all. Decisions, decisions, decisions. OK.I am a bi. OKwhat I call assertive, many people (film gee. Christmas is right around the corner! That is really my only hob. I got the tickets! Rt 75 will probably kil.

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MIGHTY MAX UPDATE

Saturday, March 03, 2007. NEW BLOG (mightymaxupdate.blogspot.com). Please visit my new blog. For the latest in my amazing journey! You won't believe all the incredible things I am doing these days.I'm definitely living up to my name "Mighty Max.". I'm still struggling with some health issues, but I am determined to not let them stop me from enjoying life and reaching my goals. So many fun things to do! And wants to share my wonderful spirit and energy with the world. Amy and mighty max. Children with CHA...

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